Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My First Time Of Here, Hi. I Have Celiac And Curious


dhorseygirls

Recommended Posts

dhorseygirls Newbie

I just got diagnosed with Celiac, and I finally found a "List" of gluten-free foods, and know to check labels. right now I am kind of overwhelmed, but it should get easier, right?? Anyway, I had an upper endoscopy and it showed mild esophogitis( I had ulcers before that are now erosions) and I am very fatigued and I have oral thrush. Is the thrush part of this disease? Someone please help! Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

Thrush is due to an overgrowth of the Candida Albicans yeast. It may or may not be related. But you need to treat it. You will need to eat a NO SUGAR diet for awhile. Sugar feeds them. No honey. Only a bit of fruit like berries that are low sugar till it is under control. No refined carbs like rice flour, etc. Simple foods: Meats, Eggs, Veggies, Low sugar fruits, nuts & seeds, oils and spices. Lots of water.

Caprylic Acid will kill the yeast in the intestines. Swishing the mouth with colloidal silver and spitting out. Then 2 drops of oregano oil under the tongue. Will help.

Google Candida + alternative treatment and you will find many helpful sites.

Hope it clears up soon.

GlutenGuy36 Contributor
I just got diagnosed with Celiac, and I finally found a "List" of gluten-free foods, and know to check labels. right now I am kind of overwhelmed, but it should get easier, right?? Anyway, I had an upper endoscopy and it showed mild esophogitis( I had ulcers before that are now erosions) and I am very fatigued and I have oral thrush. Is the thrush part of this disease? Someone please help! Thanks

Yes there a links between Candida and Celiac Disease. Alot of doctors don't like to admit it for whatever reason. If you buy some virgin coconut oil ( make sure its virgin) it will help get the yeast under control. It has Caprylic acid, lauric acid and Capric acid in it. It breaks the coating down on the outside of the yeast that allows it to survive. Then your bodies normal acids will destory it.

Cut out alot of sugars. Go with fruit because it is readily absorbed and doesnt really have to be converted before it is used by the body. Don't worry about the oil it is actually good for your body and cholesterol levels. Once again make sure it is virgin coconut oil. Take a teaspoon a day at first then build up by a teaspoon a day until u are at 3-4 table spoons a day.

They yeast can "die off " fast if you use too much. This can cause more symptoms because the toxins from the yeast dying are being absorbed back into your body. Just do it slowly and watch the sugar and you will slowly see improvements.

My doctor said I didn't have Candida. I know that I do. It can give you alot of the same symptoms as Celiac Disease because the protein chains are very similar. My Breath got really bad when I was diagnosed with Celiac Disease. Along with major aches and pains. Since I started the virgin coconut oil, I am slowly feeling a little better. It took a long time to feel this way so it's gong to be slow to heal. Good luck. -Ted

Lisa Mentor

We can talk about our personal experiences, but I always think it wise find information from many sources and then to consult a medical doctor.

GlutenGuy36 Contributor
We can talk about our personal experiences, but I always think it wise find information from many sources and then to consult a medical doctor.

Well I use to think that to. Until it took them 9 months to diagnose me. You have to trust what your body is telling you. If I had listened to the doctors, I still wouldn't be diagnosed with Celiac Disease. They wanted me to believe for 7 months that it was just anxiety. Here take some Paxil and Prozac and you will be fine. That's why they call it "Practicing" medicine. Doctors make mistakes and it's a known fact that they don't like to diagnose Celiac disease because they can't write you all kinds of prescriptions. I'm in no way saying don't go to the doctors. I am saying listen and trust what your body is telling you. There are also natural things that can help you heal. Everything isn't cured with a pill.

Lisa Mentor

I certainly understand where you're coming from. Most of us here have experienced the frustration you have. Celiac takes and average 11 years to diagnose.

We DO need to listen to our bodies and TEACH our doctors. But we must be careful not to play doctors on the internet, unless of course, we are one. ;)

Goose Newbie

and then there's Dr. Baker, very wise.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor
and then there's Dr. Baker, very wise.

My kid sarcastic? nahhh :rolleyes: Hello Goose ;)

ToddZ Newbie
Well I use to think that to. Until it took them 9 months to diagnose me. You have to trust what your body is telling you. If I had listened to the doctors, I still wouldn't be diagnosed with Celiac Disease. They wanted me to believe for 7 months that it was just anxiety. Here take some Paxil and Prozac and you will be fine. That's why they call it "Practicing" medicine. Doctors make mistakes and it's a known fact that they don't like to diagnose Celiac disease because they can't write you all kinds of prescriptions. I'm in no way saying don't go to the doctors. I am saying listen and trust what your body is telling you. There are also natural things that can help you heal. Everything isn't cured with a pill.

Exactly how I feel. With all of these auto-immune disorders popping up everywhere with no cure it's amazing to me how ill informed most doctors are. They think everything is in your head. However, I am convinced that someday we'll have a cure for all of these problems. Unfortunately right now, it's a cash cow for the drug companies as well as the mainstream medical establishment.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,554
    • Most Online (within 30 mins)
      7,748

    Becky 0163
    Newest Member
    Becky 0163
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.