Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Canker Sores And Finger Blisters

AngieInMidwest

Recommended Posts

AngieInMidwest Newbie
AngieInMidwest
Posted

Hello,

Does anyone else get severe canker sores (covers inside of cheeks, tongue, roof of mouth, etc.), blisters on their lips and blisters on their fingers? I get an outbreak like this once every 3 or 4 months, and I'm down for 3-4 weeks each time. I have been led to believe tht I have an allergy to caffeine, so i avoid it like the plague. But, after reading more about Celiacs, and looking at other symotoms in my life, I think I may need to go gluten free. Anyone else have a silimar experience? Thank you.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


LIS-Guy Rookie
LIS-Guy
Posted

Canker sores are one of the documented symptoms of Celiac. I get them all the time. I am currently being investigated for Celiac (biopsy on wednesday) and I am also undergoing testing for primary immune deficiency disease, because of my chronic infections (ears, sinuses, throat, etc).

jerseyangel Proficient
jerseyangel
Posted

I always had canker sores on and off--and for about the last 6 months before I was diagnosed I had odd "blisters" on my fingers and the inside of my forearm. They were not painful, but very itchy-- a lot like a chicken pox type blister.

Both have disappeared since going gluten-free.

fedora Enthusiast
fedora
Posted

I had blisters on my fingers and palms of hands. They ate half of my hand. They got so bad I could only use my index finger and thumb. I had to use steriod cream at that point to heal them. It was awful. I stopped eating wheat and they went away. I rarely get them now and if I do it is very minor.

AngieInMidwest Newbie
AngieInMidwest
Posted
  • Author

Thank you everyone for your feedback. This is very interesting. I visited my family doctor today, and had a series of blood tests done, including the one for Celiac. I will get my results next week, and will hopefully learn the cause of my sores! Thanks again!

AngieInMidwest Newbie
AngieInMidwest
Posted
  • Author
Canker sores are one of the documented symptoms of Celiac. I get them all the time. I am currently being investigated for Celiac (biopsy on wednesday) and I am also undergoing testing for primary immune deficiency disease, because of my chronic infections (ears, sinuses, throat, etc).

Good Luck tomorrow LIS_Guy. :)

I get my blood results back next Tuesday.

After the pain and hell of these breakouts, I am hoping I have finally found my answer.

AngieInMidwest Newbie
AngieInMidwest
Posted
  • Author
I had blisters on my fingers and palms of hands. They ate half of my hand. They got so bad I could only use my index finger and thumb. I had to use steriod cream at that point to heal them. It was awful. I stopped eating wheat and they went away. I rarely get them now and if I do it is very minor.

Fedora,

Were the blisters on your hands filled with a clear liquid, and start out looking like little bubble? I am anxiously awaiting my blood tests. Still have a week to wait. I have 19 finger blisters at the moment, and just want to itch my hand off!!! Thank you for sharing your info. Angie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dilettantesteph Collaborator
dilettantesteph
Posted

Canker sores and especially finger blisters are among the symptoms that went away when I stopped eating gluten and come back when I get glutened.

TedL Newbie
TedL
Posted

I also had a real problem with canker sores which has mostly gone away since going gluten free. I pretty much tried every product on the market to help with them. Here are some recommendations if you're still suffering:

Canker Cover -- this is a patch that goes in your mouth and slowly dissolves in about 8 hours. I recommend using this only at night as it makes it a little difficult to speak and eat.

Canker Rid (from Durham's Bee Farm) -- This is a bit messy and hard to apply, but it definitely works. Just a warning that it's painful when first applied, but the pain goes away quickly.

Orabase Soothe N Seal -- This is basically glue that dries over the sore and protects it. This is fairly easy to apply and it works, but it doesn't seem to last for too long.

I don't recommend any of the pain-numbing gels as they only work for a few minutes and irritate the sore when they're being applied.

Regards,

Ted

AngieInMidwest Newbie
AngieInMidwest
Posted
  • Author
I also had a real problem with canker sores which has mostly gone away since going gluten free. I pretty much tried every product on the market to help with them. Here are some recommendations if you're still suffering:

Canker Cover -- this is a patch that goes in your mouth and slowly dissolves in about 8 hours. I recommend using this only at night as it makes it a little difficult to speak and eat.

Canker Rid (from Durham's Bee Farm) -- This is a bit messy and hard to apply, but it definitely works. Just a warning that it's painful when first applied, but the pain goes away quickly.

Orabase Soothe N Seal -- This is basically glue that dries over the sore and protects it. This is fairly easy to apply and it works, but it doesn't seem to last for too long.

I don't recommend any of the pain-numbing gels as they only work for a few minutes and irritate the sore when they're being applied.

Regards,

Ted

Hi Ted,

Thank you for your recommendations. I tried that Canker Cover last week, and I think it would be great for individualized sores. My entire mouth, and lips are covered in ulcers, so i'd need a Canker Blanket! I did however put 6 of those patches in one spot, and it did help there. But, I cant imagine a whole mouth of those things! (They puff up, and get jelly-like).

I may try some of your other topical ideas.

Thanks again,

Angie

SeMeCl Apprentice
SeMeCl
Posted

I grew up with canker sores always in my mouth. ALWAYS! My mom would bug the dentist about things to help. I was six, eight, ten, etc. and hardly had a brake from the things. Once I went gluten free, they were gone and stayed gone. I now get them if I get glutened sometimes and I also get ones that are random and far apart like normal people. It was definitely one of my symptoms.

AngieInMidwest Newbie
AngieInMidwest
Posted
  • Author
I grew up with canker sores always in my mouth. ALWAYS! My mom would bug the dentist about things to help. I was six, eight, ten, etc. and hardly had a brake from the things. Once I went gluten free, they were gone and stayed gone. I now get them if I get glutened sometimes and I also get ones that are random and far apart like normal people. It was definitely one of my symptoms.

SeMeCl,

Wow, thank you for sharing your experiences. I am at my witts end with these darn things. And just today I was told by a nurse, "Oh those aren't one of the symptoms of Celaics." I wish she could see this forum!!

Thank you.

LIS-Guy Rookie
LIS-Guy
Posted
And just today I was told by a nurse, "Oh those aren't one of the symptoms of Celaics."

That's interesting, since canker sores are well-documented to be associated with Celiac Disease and is referenced by every reputable site I have looked at, including the Mayo Clinic:

Open Original Shared Link

LIS

IMWalt Contributor
IMWalt
Posted

I had plenty of canker sores when I was young. Not so much anymore. No blisters, but I have had a big problem with the skin on the end of my fingers cracking, usually when it is cold. My GI does not think it's related, but since going gluten-free, I rarely get them, and when I do they are not as severe.

Walt

leadmeastray88 Contributor
leadmeastray88
Posted

Yes!!

I know when I've been glutened because I get really painful canker sores. It's the tell-tale sign for me.

nikki-uk Enthusiast
nikki-uk
Posted
Hello,

Does anyone else get severe canker sores (covers inside of cheeks, tongue, roof of mouth, etc.), blisters on their lips and blisters on their fingers? I get an outbreak like this once every 3 or 4 months, and I'm down for 3-4 weeks each time. I have been led to believe tht I have an allergy to caffeine, so i avoid it like the plague. But, after reading more about Celiacs, and looking at other symotoms in my life, I think I may need to go gluten free. Anyone else have a silimar experience? Thank you.

I almost forgot about the finger blisters my hubby used to get (he's been dx with celiac disease 4 yrs now).....not DH, but huge angry red eruptions on his fingers that wouldn't heal, that would get infected/ulcerated ...cause the infection to track up his arm :rolleyes:always required hefty antibiotics and dressings.

There are many, many weird symptoms of celiac disease (or a body under attack)......most of them docs DON'T think are related....but we know different ;)

AngieInMidwest Newbie
AngieInMidwest
Posted
  • Author
I almost forgot about the finger blisters my hubby used to get (he's been dx with celiac disease 4 yrs now).....not DH, but huge angry red eruptions on his fingers that wouldn't heal, that would get infected/ulcerated ...cause the infection to track up his arm :rolleyes:always required hefty antibiotics and dressings.

There are many, many weird symptoms of celiac disease (or a body under attack)......most of them docs DON'T think are related....but we know different ;)

Hi Everyone,

I just wanted to leave a quick update, since I started this thread. Yesterday a dermatologist diagnosed me with Erythema Multiforme as the cause of my mouth sores and finger blisters. Finally, and answer after 8 years. And, just today my doctor called to tell me some of my blood work was in, and I am Vitamin D and B12 deficient. I will will get my Celiac results on Tuesday. I'm a "healthy" eating vegetarian, so i am shocked that I am low in any vitamins. I wonder if I have had Celiac's for a long time, and the "aftermath" is just now showing it's ugly head. Come on test results.... Angie

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,194
    • Most Online (within 30 mins)
      7,748
    Eliana123
    Newest Member
    Eliana123
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By xxnonamexx · Posted

      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Scott Adams · Posted

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      nothing has changed

      By Scott Adams · Posted

      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.