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New To The Gluten Free Life.......


Michelle-Idaho

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Michelle-Idaho Rookie

Hello everyone. First off I just want to say thank you for any help and suggestions right off.....we have got a large learning curve, as I imagine most have!

My fiance was just diagnosed 5 days ago through blood tests and biopsy, so very, very, very new at this whole thing.

We live in Coeur d'Alene, Idaho (Northern Idaho, next to Spokane, Washington), so if any on here knows where to shop up here, any help would be appreciated. I have gone to many places without much luck other than a small section of gluten free items.

Once again thank you for any help, suggestions overall on how to make this transition easiest. ;)


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ShayFL Enthusiast

Welcome to the board!

First, there is no need to buy expensive ready made gluten-free items. There is an abundance of naturally gluten-free foods at every grocery store. PLUS he can heal faster and feel better eating natural foods. Save the highly processed gluten-free foods for later when he is all healed.

All meats (without marinade or rubs, etc.), fish, eggs, veggies, fruits, rice, potatoes, most corn tortillas (you will have to check tho) and nuts are a good place to start. McCormick spices are mostly gluten-free. They are one company that will CLEARLY state on the package if there is gluten/wheat in the product.

What does he like to eat? If you tell us, we can help you find subs or offer suggestions on recipes.

frec Contributor

Hi Michelle--Shay is right. Natural food, cooked from scratch, is your best bet. It's what we all should be eating anyway. Any kind of takeout or processed, prepared, packaged food is usually full of gluten. BUT let's face it. We're all busy, and some of us (like me) are not great cooks--I'm learning--and we crave the foods we grew up with, especially at the beginning.

Since you are in Idaho (I'm in Oregon) I assume you have Albertsons? They aren't great for gluten free food once you get through the produce and meat sections. Rice Chex is now gluten free--I use them in snack mixes and as emergency soup croutons. You can eat corn chips, nut butters, jam, dried fruits... They have a few boxed soups that are gluten free. They have a Bob's Red Mill display, I hope, with many kinds of flour and some gluten free baking mixes for pancakes, brownies, and spice cake. Do you have Trader Joe's in your area? They have great nondairy milks, gluten-free pasta, decent rice bread, some rice and soy crackers, and even a few gluten-free baking mixes. If all else fails you can order things online on.

Has your fiance seen a dietician? He/she would have good dietary advice and knowledge of where to shop locally. Your gastro could recommend one if he/she hasn't already.

Be careful of cross contamination, since you can eat gluten and he can't. Even a crumb can make your fiance sick. Any wooden utensils are contaminated, and so is your toaster. He either needs his own peanut butter and jam or you must promise never to double dip! ( :

You can Google specific topics within this website and find a gold mine of information. Your fiance is lucky to have you!

Michelle-Idaho Rookie

Thanks to both of you :D

He loves all sorts of food, he was a big carb eater and craver.....his favorite meal used to be strawberry crepes ;) He loved pasta, especially simple mac and cheese (lol at 31 years old you think he would have outgrown that). Was never a big fan of bread! Loved raisin bran or oatmeal in the mornings. Luckily likes meats, potatoes and fruits/veggies.

We have been eating the plain meats that I cook up and lots of fresh fruits and veggies, really not that much different than usual. I am doing this with him to avoid the cross contamination issue as I don't really mind what I eat lol. It will make it a lot easier in the long run I think.

I think I just need to try the cooking with the gluten free ingredients.....I used to make most of our food from scratch before, so I will just need to learn to convert the recipes over from what I have read so far. Hopefully that is pretty easy. I purchased some gluten free all purpose flour and xanthan (sp?) gum, checked all the spices, and rid my cupboards of anything that wasn't safe for him. I also got new PB and jelly ;) thanks for that advice, I would have not thought of it!

We do have an Albertson's. I faired pretty well at the Fred Meyer's here in their health food section and the lady who worked in the area was very helpful and even offered to keep items in stock if I found something online or somewhere else that I would like to buy.

His doctor hasn't referred us yet. We are set to see him for followup this coming week, so I will ask then. I wasn't too impressed with the doctor as he was basically very unhelpful on it while we were there last. I am a clinical pharmacist and certified diabetes educator, and all he said is "corn and rice". :angry: So we will see where that goes.

Thanks!

Ohhhhh......and any restaurant suggestions? We don't go out often, but sure would be nice to know anywhere that might be halfway decent. We did go to a local restaurant called Bonsai Bistro where they have an awesome gluten free menu and were certified gluten free and their chef had speicalized training somewhere!

Shelly D. Newbie

Michelle,

Welcome and don't panic. I'm in Lewiston and have found some interesting places to shop and dine out in our areas.

Rosauers has the BEST section of foods for us in their "Huckleberries" sections.

I'm all for eating basic diet foods until feeling better, but it is a bit frustrating at first! So try to feed him well but have snacks to nibble when the urge strikes.

Shelly D. Newbie

As for restaurants...PF Changs if you want to make the trip into Spokane. Applebees and Red Robin will print out special menu suggestions, and I've had pretty good luck just ordering meat grilled with veggies on the side. Nothing breaded or deep fried (deep fryers seem to be able to spread the gluten) Salads are usually good as long as you remember to go without croutons. Most of the restaurants have ingredient and special menu info on their websites so you can plan ahead. Fast food is more limiting to me than dine-in. Taco Time and Wendy's are about the only places I'll drive through anymore.

I can't eat any dairy or eggs along with some other random stuff that I sensitized myself to by eating a lot of (garlic, almonds) so I try to be fairly picky about my eating.

It will amaze you where you find gluten. Pringles are bad but Stax are okay. Fritos are good but Lays are bad; it's weird. Be careful with the corn and rice stuff though because it has a high glycemic index and can cause weight gain. It has only been since July that I have been gluten free and, honestly, there are so many times each day that I miss my regular food or special treats, but I just keep telling myself that its for the better. I feel better, my family says I look healthier and am less grumpy so I just keep going, one day at a time.

Your guy might go through a bit of a rough spot anywhere from a week to a month in, it seems to be some sort of withdrawal. I relied heavily on this site to help when I felt crappy.

Get some cook books, just knowing that there are bunches of really great food to eat helps with the depression when it gets to be too much. Barnes and Noble has lots of good ones. I like the "For Dummies" one.

Michelle-Idaho Rookie

Thanks Shelly!!! A lot of good info, I truly appreciate it. :D

He does need to gain weight in a healthy manner, so a few carbs would be good. We exercise daily, so hopefully he will start to gain muscle mass soon instead of fat. He is 6 feet 1 inch tall and only 135 pounds......A BMI of17.8. So hopefully this will all help, he is very self conscious about it, and has been skinny for so long wishing he could gain weight. (I think he is still very handsome ;) )


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Shelly D. Newbie

Wow, he is very thin. I think this is a symptom of celiac disease, the more experienced members would be able to confirm this. In one of the books (Gluten-free Cooking for Dummies) she talks about her son looking like a starving baby even though he ate and it was due to the malabsorption caused by his gluten intolerance (leaky gut). My son, who is an undiagnosed, and in denial, celiac sufferer has the opposite problem, he's not fat but he has this soft tire around his middle and fatty pectorals even though he's in good shape.

I can ask my LPN and chiropractor if they know anyone who might be better able to help you both down this road if you'd like since your doctor isn't being helpful and supportive.

Michelle-Idaho Rookie

yep he is thin ;)

I will have to get that cookbook for Dummies. I was hoping to be able to find one in the stores around here so I could look at it, but I haven't had very good luck. I would love some suggestions on some more cookbooks as I hate just buying one online without looking at it first. I seem to have bad luck that way lol! I end up with impossible recipe books with very difficult recipes.

We have an appointment with his gastroenterologist this week, I will let you know if he is any better this time around compared to last time. Thanks!

  • 2 weeks later...
mindwiped Rookie

I don't know if you have either Trader Joe's or Whole Foods anywhere nearby, but they have many gluten-free items in the store. Also, since you said your SO like oatmeal, Bob's Red Mill makes a gluten-free hot cereal that is the only hot cereal I ever eaten (I'm not gluten-free, my dh is a celiac). For now, I'd try to keep his diet as simple as possible, in order to let him system heal.

Janessa Rookie

Annie's makes a gluten free mac and cheese that is yummy and you can order off amazon cheaper than a store anyways

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    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
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      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
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