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"diminished Prominence"


RollingAlong

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RollingAlong Explorer

The initial endoscopy report said that the duodenum had valuvulae with

"diminished prominence" and the muscosa was friable, but the final report

said that everything was negative or within the normal range.

Beats me. The report came with pics so we can see that his duodenum

doesn't look like the ones in google, but that's about it.

Next we'll try to get the pathologist's report in writing and we've already asked for the

intraepithelial lymphocyte count.

no positive bloodwork, but has tested positive at Enterolab for gluten, casein, soy and (barely) eggs.

He's eating gluten-free/CF and feeling much, much better, but I doubt his sister (major migraines, kidney stones, ulcerative colitis) will try it, so we want to be as certain of the diagnosis as possible.

I just wish I understood better if he needs to avoid cross

contamination, ie every single spec of gluten. I'm thinking he might

need to anyway, because yesterday he had diarrhea and the only thing

he ate that he hadn't had before was one of the Tazo green tea's from starbucks

(oops, must remember to check EVERYTHING)

has anyone had similar endoscopy comments ?


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nora-n Rookie

My daughter also had an abnormal looking duodenum and she is very gluten sensitive. She did get a positive diagnosis despite of gative blood tests or biopsy. That is because of the dramatic symptoms on gluten and she is fine off gluten.

ang1e0251 Contributor

SEveral people have written to say Starbucks has a serious problem with CC. If remember one was an employee. You do need to watch every single thing that goes in his mouth.

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
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