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I Love This Board!

Mtndog

By Mtndog
in Coping with Celiac Disease

Recommended Posts

Mtndog Collaborator
Mtndog
Posted

I have to say, having been on this board for over 3 years, that I LOVE it!!!!!!!!! I know people argue and there has been some negativity lately, but I love the fact that I learn something new every day. I just learned I can now drive 2 exits away and get gluten-free pizza at Uno's.

People here are wonderful!!!!!!! If you want to argue about that, give me your best shot!!!!

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Jenny (AZ via TX) Enthusiast
Jenny (AZ via TX)
Posted

I love this board too! Without it, I would still be wondering what I could eat and where I could eat. Also, the recipes are great. I don't even need a cookbook! :P

Mother of Jibril Enthusiast
Mother of Jibril
Posted

I love this place too! :) :) :)

I don't have a lot of support in the small town where I live... this forum has really helped me learn about gluten intolerance... plus casein intolerance, other food intolerances, thyroid issues, and autoimmune disorders! I wish I had known about it when we first figured out that our son is intolerant to casein.

MaryJones2 Enthusiast
MaryJones2
Posted

Me too! I'm not sure where I would be without you guys.

missy'smom Collaborator
missy'smom
Posted

Me too! :) I think it's hard to communicate when you're limited to words on a screen. I'm sure I come across the wrong way sometimes. I try to give everyone an extra measure of grace. I was just thinking this week how I was so lucky to find this board, and so early on and have gotten so much support. I was thinking "now if I could only find one for diabetes like this"! My local celiac disease support group is great at what they do too. It's just different from what I get here.

:) THANK YOU GUYS!!!!! :)

ShayFL Enthusiast
ShayFL
Posted

I love it too. :) Some really wonderful people on here.

purple Community Regular
purple
Posted
:D Me too...we are a family and families have sibling rivalry but still love each other!
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pele Rookie
pele
Posted

It's pretty hard to imagine living gluten-free without the internet.

ang1e0251 Contributor
ang1e0251
Posted

I thank you all for the great support. Life is so much clearer since I visit this family every day. I don't feel isolated. The other great thing is you can talk about any subject without judgement. Thanks...

*lee-lee* Enthusiast
*lee-lee*
Posted

ok, i'll jump on the bandwagon too!

i don't know what i would do without this board. i've learned so much in 4 months and i know i'd be glutening myself all the time if not for all the good tips i've read. i tell everyone i know about how much of a resource and a support this is. one of my friends is currently awaiting her blood test results and she's already asking for the board info in case she is diagnosed.

so thank you everyone, for being so knowledgeable and supportive!

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    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
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      Disaccharide deficient, confusing biopsy results, no blood test

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      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
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      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
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