Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Don't Want To Eat Anymore


dfish

Recommended Posts

dfish Apprentice

Hello all! I'm just hoping for some suggestions because, well, I'm totally frustrated. I've been in the process of a gluten challenge for more testing because my other test results were inconclusive, but I decided to stop the challenge and just go for some Enterolab testing. I haven't felt any better or any worse, honestly, while eating gluten. I have decided that I want to try eliminating some foods to see if I start feeling better, but honestly, I don't know what to eat anymore and kind of feel like just not eating anything. From my personal "stomach" experience, I can't eat any grains, including rice, etc, dairy, soy, eggs, or chicken. I also cannot eat salads because they basically don't even digest, so that leaves out living on salads. Tomatoes hurt my stomach, as do citrus fruits, etc. What do people eat when they can't eat wheat, grains, dairy, eggs, chicken, or soy? I can't cope with not knowing what to put into my stomach and being totally terrified to eat. There's no rhyme or reason to what makes me sick. These least few weeks I have been eating gluten and felt the same as I did before when I was gluten free, I can eat rice with soy sauce and be sicker than a dog, but then I can eat cheese one day and I'm fine and the next day I'm a wreck; hence, that's why I've decided to eliminate most of the "main culprits" of food allergies/sensitivies, but what does that leave when even a lot of veggies hurt my tummy?

Any suggestions on how to cope with such a limited diet would help. I should also add I live in a small town with very few options for specialty foods; basically, if I can't find it at Safeway, I can't buy it :(

Thanks again!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

Before I was diagnosed everything I would eat would upset my stomach. I didn't feel like eating anymore because I was sick of feeling so bad. I was also lactose intolerant on and off my whole life as well. After a few months gluten free I was no longer lactose intolerant and nothing irritated my stomach except for gluten. Some people are sensitive to alot of things though and when going gluten free it may or may not clear it up.

Have you found out what you are sensitive too? It also depends how sensitive you are to these foods because some foods you could have in moderation. As your body gets better and heals your body will most likely start accepting some of these foods again.

Also if you are not on enzymes and probiotics I would highly recommend getting on them. They should help you with digesting food and give you less problems when eating. Liquid vitamins are good for you too.

Hope you start feeling better and get some answers if I can be of any help let me know :D

mopsie Newbie

Your story sounds very familiar! Before I was diagnosed so many things made me sick. I felt the best eating small amounts of the following: buckwheat, apples, bananas, carrots, potatoes, poached eggs or broiled fish - that was what I lived on for quite a while till my bowel healed, then I slowly started adding other foods. Caffiene, and citrus , tomatoes, were a big no-no. Even now if I accidentally get some gluten, I have to go back to eating completely bland for several weeks. Hope this makes you feel not so alone.

angel-jd1 Community Regular

I have been feeling similar the last couple of weeks. I have not been hungry, nothing sounds good to eat. If I SMELL food, I get hungry, but otherwise not hungry. Living alone, you don't SMELL much food!! ha I try to make myself eat one meal a day. I know I have to eat. Just not sure why I haven't been in the mood for food lately.

-Jessica :rolleyes:

CateK Newbie

I may be off base here even suggesting this... but years ago I went through a period of depression. I lost my appetite completely. I lost 65 pounds before I finally went for help.

You might want to make sure you are not experiencing depression. Certainly, the upheavals of this illness could contribute to depression. ;)

Guest nini

before my diagnosis everything made me sick, I was also lactose intolerant until I had been gluten-free for several weeks, then I was able to eat dairy again. I also am allergic to penicillin and other antibiotics and also hormone sensitive, I found if I eat "clean" meats (no hormones or antibiotics ever) than I could eat chicken, pork and beef without getting ill.

I'm still afraid to try new things or even things that I ate pre-dx, like shrimp and lobster, because I thought I was reacting to shellfish even though the allergy screening didn't show any of the major food allergens. After a while you get so sick of feeling sick everytime you eat that eating becomes terrifying. I will go hungry if I am in doubt about whether or not something is gonna make me sick.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,860
    • Most Online (within 30 mins)
      7,748

    Rena Celiac
    Newest Member
    Rena Celiac
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      Some interesting articles regarding the use of Zinc Carnosine to help heal gastric ulcers, gastritis and intestinal permeability. I would consult a medical professional about it's use. https://www.nature.com/articles/ncpgasthep0778 https://www.rupahealth.com/post/clinical-applications-of-zinc-carnosine---evidence-review https://pmc.ncbi.nlm.nih.gov/articles/PMC7146259/ https://www.fallbrookmedicalcenter.com/zinc-l-carnosine-benefits-dosage-and-safety/
    • Jillian83
      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
    • Jillian83
      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.