I Don't Know What To Eat And Lots Of Questions

[clnewberry1]

I had a food sensitivity test I tested positive for Milk (not cheese so the doctor said they Whey in the milk - although she wants me to give up cheese too since it's fermented. I am not sure I can do that since I love cheese) A skin prick test showed that I am allergic to none of these foods. I didn't test positive for any foods.

I was also tested for Celiac but it came back negative. The doctor said she thinks I still have it so I am confused even more. Should I ask for more tests or another test. Can you test negative or not have antibodies and then still have it?

I don't know what I can eat or what I can't eat. They have so many hidden names for things that I am so confused. I was basically told that I can forget about bread again.

This forum is great but there is so much information it's overwhelming. Can anyone recommend some good resources for a beginner. Books or posts I will read anything.

Thanks for the help.

Crystal

[Mother of Jibril]

Welcome to the group!

A negative result on a celiac panel doesn't rule it out. Also, allergies are different from intolerances. A skin prick test is for allergies... a IgE reaction that causes your body to produce histamines (this happens quickly... within minutes or a few hours). An intolerance is a delayed IgA or IgG reaction that causes your body to produce antigens that damage your own organs. The best way to tell if you have an intolerance is to eliminate that food and see how you feel. Have you tried that with gluten?

I know it might seem impossible to eliminate dairy. I grew up in Wisconsin! What kind of cheesehead can't eat cheese??! But... I've been off dairy for almost eight months and it's actually not that bad. There are substitutes for milk (soy, rice, almond, hemp), yogurt (soy, coconut, goat's milk), ice cream (sorbet, coconut, rice, soy), cheese (made of nuts)... a lot of them are pretty tasty.

What I would recommend for dairy is that you eliminate it completely for about a month. See how you feel. Maybe you'll feel so great you don't ever want to go back! If you still feel like having dairy, try a food like hard cheese (cheddar, swiss, etc...). If you have a reaction, then casein in the culprit and you should stay off dairy. If you don't have a reaction, try some milk. If that causes a problem (gas, bloating), then lactose is the culprit. I wonder where your doctor got the idea that cheese is fermented? Some kinds are made with bacteria (like bleu cheese), but I've only heard of one that's fermented... in Germany it's called "Musik." Nasty stuff, IMO.

The most helpful book I read about gluten intolerance was "Dangerous Grains" by Ron Hoggan and James Braly. I haven't found one about casein (dairy) intolerance.

[ShayFL]

Check out the SCD (Specific Carbohydrate Diet) at:

www.pecanbread.com

There is a thread here as well. It is helping MANY of us heal our "leaky gut", food sensitivities and candida overgrowth.

[GFinDC]

It's easy, you can eat anything that doesn't make you sick. Think about foods made from scratch, with veggies, rice, meat whatever, as long as it dosen't have wheat rye or barley flour in it. There is a thread around here somewhere about treat or dessert that is full of neat ideas.

From what I have read, the tests for the antibodies are pretty good, but not perfect. So, yes, they could give a false negative.

Have you checked the main site page? There are some articles there that may help. There is a list of popular articles on the lower right side border with one being a list of unsafe foods/ingredients.

celiac com root site

https://www.celiac.com/

Unsafe ingredients article

https://www.celiac.com/articles/182/1/Unsaf...ents/Page1.html

There are also articles about testing and so forth.

Have a happy Thanksgiving and don't worry, it gets easier after a while.

[Juliebove]

My daughter and I have IgG allergies aka sensetivities. We do not test positive to a skin prick. She used to be allergic to gluten and soy and dairy. She is still supposed to limit those things to twice a week. And she is still allergic to wheat.

Food For Life and Ener-G both make yeast free breads. Food For Life comes frozen. Some grocery and health food stores carry it. Ener-G is also available at those places or you can order it online.

Open Original Shared Link

I buy the Ener-G products online because I can get 2 slice packs of bread and for us that is really the way to go. If I get a loaf, my daughter might only eat 2 or 4 slices out of the loaf and I wind up throwing the rest away. Yes, it is more expensive to buy it that way, but it works out better in the end. I also like that it is portable and keeps for a very long time.

Here's another place I order stuff from:

Open Original Shared Link

Their cheeses taste like the real thing, but I have additional medical issues and find they are a bit too high in fat for me to digest well. I can eat the Parmesan with no problems. I also love the gravies, the chocolate cake, the oatmeal cookies and the cornbread. But they are large. Plan on freezing some unless you have a large family who will eat it all at once.

If you look at alternate cheeses, you will see a lot of them. They are not all necessarily free of dairy though. So be careful. Vegan rice cheese is free of dairy and is very good. I like it on sandwiches, pizza and nachos. It doesn't have much protein in it though.

Soy can be tough because these days it's in everything. Ask if you must avoid soybean oil and soy lecithin. They are not considered an allergen by some. If you can have those things it will make it easier to dine out and eat some prepared foods.

Most chocolate contains soy lecithin. Enjoy Life makes chocolate that is not. Or you can buy some here:

Open Original Shared Link

Some of their products are also dairy free.

Smart Squeeze margarine is free of all your allergens. You may have to hunt for it though. QFC carries it here, and also Grocery Outlet. Haven't seen it anywhere else.

To make mashed potatoes, you can use rice milk (not Rice Dream, not gluten-free) or broth. I use Savory Choice concentrated broth. I boil the potatoes, drain off most of the water then add the broth concentrate. I also add avocado or light olive oil for a good mouth feel and the margarine.

For frozen desserts there is Coconut Bliss and some sorbets are free of your allergens.

So Delicous makes a coconut yogurt. My daughter loves the vanilla and raspberry flavors.

[clnewberry1]

Thanks for all of the replies. I will check out those websites.

I have two children age 2 and 6 and because I prepare the meals in this house the entire family will have to follow any diets I have to follow. I figure they probably will benefit also and since they are biologically contected to me some of my issue may be hereditary. I do not think I was tested for leaky gut but I did not have an over growth of yeast.

I have been looking through a lot of cookbooks and wondered if there are any in particular that you can recommend? I am not a great cook, I need pictures if at all possible but will try anything.

Thanks again. I also have thyroid issues and the forum in that group has helped me so much. Just to know I am not alone and to be able to vent helps so much.

Crystal