Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Anyone Have Recovery Tips?

fringfring

Recommended Posts

fringfring Rookie
fringfring
Posted

Hi. I was diagnosed celiac in august. I have been strictly gluten free checkin' the tea bags, everything but-

I have terrible

allergies to everything

the runs and constipation cycle

leaky gut

adrenal fatigue

and I'm a young thing!! college age!

I take approx 21376123 different vitamins, go to bed early, drink filtered water, refrain from dairy, alcohol, eggs, non-organic things, processed foods, sweets, dragons, excessive consumption of the same things, overeating, you name I'm doing it!

Any tricks to faster recovery? I can stand this set back, I am an artist!

Ahkgh!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MELINE Enthusiast
MELINE
Posted

wow!!! there is one thing you are missing!!! patience.....

I think you think that it is more easy than it really is. You were sick for how long before your diagnosis? I bet it was more than 4 months. And it is only 4 months since you started your treatment. Your body is not a robot. I wish there were "time vitamins"......but there are not. You have to be patient and give your body the time it needs to heal. You will meet people here that are on the diet for 1 or more years and still have symptoms. it is a journey, not a short walk. But you will feel ok at the end, and you will see it was worth it. You will learn many things about yourself as time will go by. And you must expect some ups and downs. Of course everyone is different, and you might be one of these people who get well faster than others. but if you are not, you must learn to live with it.

maybe you are taking TOO many supplements?? have you checked them? have you called the manufacturers to double check that they are gluten free? have you checked your cosmetics? but even if you do EVERYTHING PERFECT it is still too early to be completely healthy. Believe me this site would keep each member for just few weeks if it was so fast!! just be patient!! :)

I must admit you sound like you are well informed about the diet. so keep it that way, and I am sure you will be completely ok I just don't know when this is going to happen..

gfpaperdoll Rookie
gfpaperdoll
Posted

Oh I am so sorry that you are not better yet. Dealing with allergies has been a lifelong hobby of mine. It is always a challenge. & yep, the way they change can drive you crazy. My allergies did get much much better when I went gluten-free.

If you are getting cross contamination or just getting glutened from something, we can help you better identify it, if you can give up some idea of your living arrangements & exactly what you are eating & the who & the where it is being cooked.

the tiny little details of the diet are difficult to master. It takes about 3 months to get the idea, another 3 months to correct those mistakes & at about the end of the first year you should be getting the hang of it and feeling much better. You slid into year two getting better by the day!!!

frec Contributor
frec
Posted

The only good thing I can say is at least you caught the disease early, before you caused even more damage (read the bios on this website--whew). Because you are relatively young you will heal faster, especially because you are doing so many good things. As my naturopath said, what other disease forces you to eat all the right things and thus reduces your risk for diabetes, heart disease, cancer, etc? Of course I nearly punched him--easy for him to say, he can eat pizza any time he wants! But he's right.

It does take time. I hope you are on probiotics? They help with constipation and diarrhea and with gut healing.

This site has tons of information and lots of nice (and smart) people. I hope you feel better soon.

dilettantesteph Collaborator
dilettantesteph
Posted

BioK helped me.

wschmucks Contributor
wschmucks
Posted

Hello!

I am 7 weeks Gluten Free... and have wondered the same thing. I think that the first thing is getting the hang of it. I was able to have a 100% gluten free thanksgiving (I cooked everything myself), but then was glutened by a digestive enzyme. I would recommend only taking 1 multi-vitamin and then maybe an Iorn supplement (you want a timed release pill like Slow FE, it is gluten free). Keep it simple so its harder to mess up. The only other 2 things I have heard help are wine (the anti-oxidants are absorbed in the intestines instead of the stomach, so then get right in there) and then some people say Okra pills *might help but definetly dont hurt. Oh-- and Dairy products slow recovery, so I would stay clear of Dairy for about 2-6 months.

I have stared having 1 glass of red wine with dinner and am trying to find okra pills. And as already posted-- patience i think it going to be key to healing and more importantly staying optimistic. That is the part I am really struggling with as well. Lets work together on that part ;-)

  • 2 weeks later...
dawn p Newbie
dawn p
Posted
Hello!

I am 7 weeks Gluten Free... and have wondered the same thing. I think that the first thing is getting the hang of it. I was able to have a 100% gluten free thanksgiving (I cooked everything myself), but then was glutened by a digestive enzyme. I would recommend only taking 1 multi-vitamin and then maybe an Iorn supplement (you want a timed release pill like Slow FE, it is gluten free). Keep it simple so its harder to mess up. The only other 2 things I have heard help are wine (the anti-oxidants are absorbed in the intestines instead of the stomach, so then get right in there) and then some people say Okra pills *might help but definetly dont hurt. Oh-- and Dairy products slow recovery, so I would stay clear of Dairy for about 2-6 months.

I have stared having 1 glass of red wine with dinner and am trying to find okra pills. And as already posted-- patience i think it going to be key to healing and more importantly staying optimistic. That is the part I am really struggling with as well. Lets work together on that part ;-)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Amber M Explorer
Amber M
Posted
Hello!

I am 7 weeks Gluten Free... and have wondered the same thing. I think that the first thing is getting the hang of it. I was able to have a 100% gluten free thanksgiving (I cooked everything myself), but then was glutened by a digestive enzyme. I would recommend only taking 1 multi-vitamin and then maybe an Iorn supplement (you want a timed release pill like Slow FE, it is gluten free). Keep it simple so its harder to mess up. The only other 2 things I have heard help are wine (the anti-oxidants are absorbed in the intestines instead of the stomach, so then get right in there) and then some people say Okra pills *might help but definetly dont hurt. Oh-- and Dairy products slow recovery, so I would stay clear of Dairy for about 2-6 months.

I have stared having 1 glass of red wine with dinner and am trying to find okra pills. And as already posted-- patience i think it going to be key to healing and more importantly staying optimistic. That is the part I am really struggling with as well. Lets work together on that part ;-)

I use "Digest" Enzymes from Enzymedica. I know I checked them out, but now I am questioning it. Please tell me they weren't them! Thanks

AliB Enthusiast
AliB
Posted

Many don't get better on gluten-free.

Whilst some health issues may improve, many don't and sometimes even get worse. Many of us actually have issues with rogue bacteria, yeasts and even in some cases parasites.

I can see by the evidence of the Leaky Gut that Candida is very likely an issue for you and may well be accompanied by other pathogens. The yeasts and other bacteria digest and feed on carbs - particularly undigested ones - that a damaged gut will provide them with a copious amount of.

gluten-free foods are typically much higher in carbs than even gluten foods and that will often actually in the long run make things worse. The carbs just keep the damage going.

some of us have been struggling with this problem for years - but some of us also have finally found a remedy.

It is the Specific Carb Diet - it works by cutting out the long-chain carbs that do the damage - we can still get carbs from plenty of fruit and veg but they are good carbs that feed us instead of the bugs.

To be getting your health back after 35 years in my case is a wonderful thing. I am also taking herbs and vitamins/minerals that are good anti-bacterials which also helps.

You may have radically restricted your diet but if you are still eating something that is triggering the reactions - it is a fruitless exercise.

If you would like to know more - please check out the SCD thread in the 'Other Food Intolerances' section and have a look at 'breaking the vicious cycle' and 'Pecanbread' websites.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      20

      My only proof

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac...
    2. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together. Our bodies can make Taurine from meats consumed. Our bodies cannot make Thiamine and must consume thiamine from food. Meat is the best source of B vitamins like Thiamine. Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine...
    3. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      20

      My only proof

      @Jmartes71, I went to Doterra's site and had a look around. The Doterra TerraZyme supplement really jumped out at me. Since we, as Celiacs, often have digestive problems, I looked at the ingredients. The majority of the enzymes in this supplement are made using black mold, Aspergillus! Other enzymes are made by yeast Saccharomyces! Considering...
    4. Scott Adams
      - Scott Adams commented on Scott Adams's article in Additional Concerns
      2

      Gluten Transfer from Biodegradable Tableware: What a New Study Found and Why It Matters (+Video)

      Thanks for mentioning this, and here is an older article on the topic:
    5. Scott Adams
      - Scott Adams commented on Scott Adams's article in Gluten-Free Grains and Flours
      18

      Cricket Flour Makes Really Good Gluten-Free Bread

      Your concern about certified gluten-free cricket powder is completely valid, as cross-contamination in both feedstock and processing is a real issue. Currently, the availability of certified gluten-free options is limited, but brands like Chapul and Entomo Farms, which I believe have offered products processed in dedicated facilities and labeled gluten-free...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,543
    • Most Online (within 30 mins)
      7,748
    Jeanette K.
    Newest Member
    Jeanette K.
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      Are Lindt chocolate balls gluten free?

      By RUKen · Posted

      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
    • lmemsm
      Supplements for those Diagnosed with Celiac Disease

      By lmemsm · Posted

      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.