Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is This Normal?


cressy75

Recommended Posts

cressy75 Rookie

Hi everyone

It's been roughly 3 weeks now since i went gluten free and i'm still super grumpy, irritable, restless and foggy headed. Is this normal? I know it isn't something i'm eating because i'm only consuming fresh fruit, veggies and meat. I can't believe how manic i feel, i swear i feel like i'm craving something or going through some kind of withdrawal. Surely after 3 weeks i should be feeling better in myself.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tom Contributor

Maybe something else you're consuming is a problem??

Soy was a bad for me & many other celiacs.

Or gluten in a non-food product? Years ago I forgot to recheck and ended up using toothpaste w/ gluten :ph34r::o

AndrewNYC Explorer
Hi everyone

It's been roughly 3 weeks now since i went gluten free and i'm still super grumpy, irritable, restless and foggy headed. Is this normal? I know it isn't something i'm eating because i'm only consuming fresh fruit, veggies and meat. I can't believe how manic i feel, i swear i feel like i'm craving something or going through some kind of withdrawal. Surely after 3 weeks i should be feeling better in myself.

It can take months to recover.

caek-is-a-lie Explorer
I know it isn't something i'm eating because i'm only consuming fresh fruit,

If I said this to my boyfriend, he'd be rolling on the floor in fits of laughter. For me, there are quite a few fruits that mess with my brain that I have to avoid completely. Same with gluten-free grains. Some of us here have more than one food problem and sometimes going gluten-free makes these other foods more apparent. You might find you're in the same boat. Try an elimination diet and see if you can't find the culprit(s).

SGWhiskers Collaborator

At 3 weeks, I thought I should be feeling better as well. Everyone said be patient and recheck your potential for gluten exposure. Well, they were right on both counts. I thought I was gluten free enough. I've since changed 100% of my personal hygine items (makeup included) and 95% of my household cleaning items. The kitchen has gotten a 75% scrub down. My hands are chapped from washing them. I've dropped soy and dairy. Even though I accidentally gluten myself every 2 weeks, I'm feeling SO much better 3 months after my diagnosis. I still feel pretty rough compared to before I got sick, but I'm ALIVE again. I didn't feel even remotely well for at least 1 month, then had a day or two here and there that were a little better. After 6 weeks, I started to notice more decent days, and after about 10, I started to feel alive again.

I ate like a teenage boy for 2 months straight, and had a few bouts with insane thirst. The hunger is starting to mellow out. I still have 85% of my original neurologic symptoms, but the lifting of the worst 15% of the problems has restored my hope of a normal-ish life.

So, my advice to you is be patient and recheck your potential for gluten exposure. You will start to feel better as time passes. Rest, eat, and call manufacturers until then.

Wishing you a swift recovery,

SGWhiskers

nasalady Contributor
Hi everyone

It's been roughly 3 weeks now since i went gluten free and i'm still super grumpy, irritable, restless and foggy headed. Is this normal? I know it isn't something i'm eating because i'm only consuming fresh fruit, veggies and meat. I can't believe how manic i feel, i swear i feel like i'm craving something or going through some kind of withdrawal. Surely after 3 weeks i should be feeling better in myself.

Withdrawal from gluten can be similar to withdrawal from alcohol or drugs....please check out the following link:

Open Original Shared Link

I hope you start to feel better soon!

JoAnn

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,204
    • Most Online (within 30 mins)
      7,748

    JaymeC
    Newest Member
    JaymeC
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.