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Does Anyone Else?

GlutenGuy36

By GlutenGuy36
in Coping with Celiac Disease

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GlutenGuy36 Contributor
GlutenGuy36
Posted

Have alot of neck pain at the base of the skull? Right where your skull and spine meet? Mine has been killing me. Some days are far worse than others. I have alot of issues with Celiac Disease and even though I have been gluten-free for 4 months with maybe one or two accidental "glutenings", I am still having that pain in my neck and it feels like my glands under my jaw and arms are swollen from time to time. I just had Ct scans on chest, abdomen and pelvis and they were all good so I didn't know if maybe my immune system is causing the glands to be swollen? I don't have a cold and I have had tons of CBCs done. All my blood work was fine. :)

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jerseyangel Proficient
jerseyangel
Posted

I had pain at the base of my skull for months before I was diagnosed and now only when accidently glutened. It was awful--like I'd been hit in the back of the head with a 2x4. It's actually one of the first things I feel the morning after I get a gluten reaction.

It was a while before it went away completely--hopefully as you are gluten-free longer and get the hang of the diet it'll subside

I also have diagnosed TMJ Disfunction (by ENT), and mine is always worse when glutened--has to be a tie-in there somewhere :D

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      Unfortunately, the development of celiac disease usually is not an end in and of itself. It usually brings along friends, given time. It is at heart an immune system dysfunction which often embraces other immune system dysfunctions as time goes on.
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