Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm Gonna See An Allergist Soon


mr. moore

Recommended Posts

mr. moore Explorer

i really want to have an offical diagnoses because i felt like such a weirdo avoiding pasta and chip dip and looking at the ingredient list like im monk. but do i have to make myself eat bread before i go? ive been gluten free for 4 days now...thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lizard00 Enthusiast

For the allergy testing, no, you do not have to be eating gluten.

To be tested for celiac, you do. So if you think the allergist would run celiac tests, then you need to be eating it.

ravenwoodglass Mentor

Celiac is not an allergy it is an autoimmune disease. However sometimes an allergist can be helpful for folks that have a false negative on the panel. But not because they are testing for an allergy but because they can guide you through a true elimination diet. That is a long process but can be helpful.

Have you had a celiac panel done? If so what were your results? Even a positive only one point into range is a positive. Your first step if you haven't done it yet is a celiac panel and you do need to be consuming a full gluten diet for it to be accurate.

mr. moore Explorer
For the allergy testing, no, you do not have to be eating gluten.

To be tested for celiac, you do. So if you think the allergist would run celiac tests, then you need to be eating it.

see im just s damn sure i have it, but i want an offical little paper that will make me rest easier, plus to show peopl im not making it up. but if i end feeling better then i should just write up my own piece of paper with a celiac diagnoses and forge a doctors signature.

ravenwoodglass Mentor
see im just s damn sure i have it, but i want an offical little paper that will make me rest easier, plus to show peopl im not making it up. but if i end feeling better then i should just write up my own piece of paper with a celiac diagnoses and forge a doctors signature.

Forging a doctors signature on something could get you in serious trouble. Is there a reason you don't want to get the celiac panel or see a GI doctor? An allergist is really not likely to be able to diagnose you easily. The elimination diet he will have you do will take months and if you think your diet is restrictive now wait till you get your starting diet point. You will start out with 5 foods and the doctor will give you a diet list to show him what foods you eat every day. Your starting point will be foods you rarely eat, for most of us that means foods we dont like. My starting diet had turkey, sweet potatoes, peas, pineapple and cranberry juice. That was it. No salt or seasoning of any kind, no butter or margerine, no beverages other than the cranberry juice and water, no coffee, no tea. I had to eat only those foods for a month and then start adding other foods in one by one once a week. If you can handle a diet that is that restrictive for a few months then the allergist may be able to help you. Otherwise please start with the celiac panel and/or a visit to a GI doctor.

mef Newbie

Even if you get the diagnosis you want, you're still going to have to go through the same behavior. If the diet makes you feel better, keep doing it. My mom doesn't have celiac, but going gluten-free has improved her health.

While I know you were being facetious, please don't forge any medical documents. That can get you into a world of trouble.

Amyleigh0007 Enthusiast

My allergist was very helpful when my Celiac tests came back negative and my primary doctor brushed me off. She seemed more informed about Celiac and gluten intolerance then my primary doctor. She dx me with gluten intolerance based on a positive response to the diet, family history (my son has Celiac and bowel issues run in my family), and my past history (IBS dx at 14). Although it's not a Celiac dx I am happy that she was so understanding because I was like you. I needed a paper stating my dx to feel like it was "real". That sounds stupid but it's the truth. Good luck at the allergist!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Amber M Explorer
see im just s damn sure i have it, but i want an offical little paper that will make me rest easier, plus to show peopl im not making it up. but if i end feeling better then i should just write up my own piece of paper with a celiac diagnoses and forge a doctors signature.

I am another one that came back negative on the celiac blood test and biopsy. I had the diet from the allergist and the gene test. I am "gluten sensitive", so bear in mind that you may be either.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    2. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    3. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    Moooey
    Newest Member
    Moooey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.