Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Does The Gene Test Take To Come Back?

3groovygirls

Recommended Posts

3groovygirls Contributor
3groovygirls
Posted

Violet's GI Dr. tested her for this yesterday at her appt. She's allergic to wheat so she's been on a gluten free diet for 9 months or so now so the regular test wouldn't be accurate (and she's only 19 months old) so he ran the gene test. But I forgot to ask how long it takes to get the results! Is it the standard few days or b/c it's a gene test does it take several weeks?

Thanks!

Linda

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lizard00 Enthusiast
lizard00
Posted

I had mine done through Prometheus, and the turn around time is pretty quick. I think a day or two and the results are faxed back to the doctor.

My doc sent me a letter with the results, and I think it was exactly a week from the day I had the blood drawn. I think the letter went out a week later, and I got a day or two thereafter, so a week and a half, maybe?

A lot of that depends on the speed of your doctor's office. Most labwork takes only a few days to do. Blood has a specific window of time.

jerseyangel Proficient
jerseyangel
Posted

Mine was done through Quest and it had to be sent to Virginia (I'm in PA). It took about a week.

littleguyw/CD Newbie
littleguyw/CD
Posted

I have a dumb question :huh: what is the gene test for? Our son was DX on 12-05-08 with Celiac (blood work) and we are going to see a GI Dr at the end of this month. I guess I do not understand who and why we should get a gene test?? I am still very new to Celiac and I have alot of question...sorry

Also, could this be why my husband tested neg for Celiac... should he have the gene test done? He is the one with GI problems

sonia

littleguyw/CD Newbie
littleguyw/CD
Posted

sorry one more question!!! I have 4 kids and only 1 has been tested for Celiac should all of my children be gene tested or just for Celiac? :o

3groovygirls Contributor
3groovygirls
Posted
  • Author

I'm not an expert by any means so hopefully someone else will answer!!

I'll tell you our situation. My DD was diagnosed with a wheat allergy. Her reaction though to all gluten is vomiting and diarrhea (we're talking she eats 5 cheerios and has diarrhea for 12 hours!). Her GI wants to see if it's Celiacs or just a plain old allergy but since she has been gluten free for 9 months the standard blood tests won't work. So he did the gene test. If someone tests positive for the gene it doesn't necessarily mean they have it, but in my DD"s case it would point towards it given her reactions. Does that make sense? Her blood tests would be negative b/c she's been gluten free but her reaction is too severe to have her be on gluten to get the blood test. So they did the genetic test.

Honestly I don't know about your DH or your children....I bet someone else can answer!

littleguyw/CD Newbie
littleguyw/CD
Posted

thanks I am just going to put a post out there!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 8 years later...
MM79 Newbie
MM79
Posted
On 02/01/2009 at 2:07 AM, littleguyw/celiac disease said:

I have a dumb question :huh: what is the gene test for? Our son was DX on 12-05-08 with Celiac (blood work) and we are going to see a GI Dr at the end of this month. I guess I do not understand who and why we should get a gene test?? I am still very new to Celiac and I have alot of question...sorry

 

Also, could this be why my husband tested neg for Celiac... should he have the gene test done? He is the one with GI problems

 

sonia

I was recommended to have gene test because I was too scared to gluten load for blood test because I knew how unwell it would make me. Practitioners told me if I test negative what Evers wrong with me will not be celiac with negative gene result, therefore I wouldn’t have to do gluten loading fo celiac blood test. I came back positive as a gene carrier so I’m now doing the gluten challenge for celiac test (and sick as a dog!).

My understanding is gene testing can rule you out altogether for celiac disease, or be indicator for monitoring in the future if previous celiac test negative and gene positive.

hope this helps ☺️

MM79 Newbie
MM79
Posted

I was recommended to have gene test because I was too scared to gluten load for blood test because I knew how unwell it would make me. Practitioners told me if I test negative what Evers wrong with me will not be celiac with negative gene result, therefore I wouldn’t have to do gluten loading fo celiac blood test. I came back positive as a gene carrier so I’m now doing the gluten challenge for celiac test (and sick as a dog!).

My understanding is gene testing can rule you out altogether for celiac disease, or be indicator for monitoring in the future if previous celiac test negative and gene positive.

hope this helps ☺️

Judy3 Contributor
Judy3
Posted

I had the gene test because I was too sick to eat at the time and the GI said that there are only two things that can make your insides look like that (ground meat) and one is cancer which he biopsied already and the other is Celiac.   My tests were positive for the genes.   I've been told that someone with a negative gene test will never be diagnosed with Celiac but a person with a positive gene test will need to be followed for symptoms or biopsied to make sure they don't have damage.     

kareng Grand Master
kareng
Posted

You are responding to someone from 2009.  Hopefully they have gotten the test results back by now! ?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen...
    2. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    3. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
    4. Scott Adams
      - Scott Adams commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      2

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      Better to know late than never, and it is too bad they did not test you for it earlier!
    5. Scott Adams
      0

      Koikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748
    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.