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Can We Start A List Of Vitamins/supplements To Speed Healing/alleviate Symptoms?

emcmaster

By emcmaster
in Coping with Celiac Disease

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emcmaster Collaborator
emcmaster
Posted

Hello everyone,

I thought we might keep a running list of supplements that you all take on a daily basis to help heal or alleviate glutening symptoms.

- L-Glutamine, for intestinal healing

- Multivitamin by Doctor's Choice for Sensitive Stomachs

- Fennel Seed, for bloating and stomach irritation

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happygirl Collaborator
happygirl
Posted

L-carnitine Open Original Shared Link

Lisa Mentor
Lisa
Posted
Hello everyone,

I thought we might keep a running list of supplements that you all take on a daily basis to help heal or alleviate glutening symptoms.

- L-Glutamine, for intestinal healing

- Multivitamin by Doctor's Choice for Sensitive Stomachs

- Fennel Seed, for bloating and stomach irritation

Brand names that guarantee gluten free status would be very helpful to many members. Great idea!

emcmaster Collaborator
emcmaster
Posted
  • Author
Brand names that guarantee gluten free status would be very helpful to many members. Great idea!

Oops, good catch. I use NOW brand for the Glutamine and Fennel Seed, and the multi is from Doctor's Choice.

Jenny (AZ via TX) Enthusiast
Jenny (AZ via TX)
Posted

emcmaster,

Is the multi from Doctor's Choice made by Enzymatic Therapy?

solarglobe Rookie
solarglobe
Posted

Hi,

I've been gluten-free for 5 months now, and have been glutened a few times along the way. When that happens I just get knocked flat, no energy, and spend a day or two in the bathroom with the big D (sorry). Here's what helps me:

-- Probiotic -- super strength, 2 hours after eating

-- Straight iced green tea eliminates my gassy problems after glutening

My daily supplement routine:

-- Liquid B-12 (had to search to find a gluten-free liquid form)

-- Liquid Calcium/Magnesium

-- Liquid Iron

-- Flaxseed Oil

-- Aloe Vera Gel -- pure form, mixed with cold water or juice -- swig it quickly

I go liquid form on everything because it seems to absorb so much better for me.

I have to pretty much hold my nose to take all these things. There can be an evil aftertaste -- especially with the iron (think rusty nails). But the supplements definitely help with energy levels, and overall healing.

AMQmom Explorer
AMQmom
Posted

When my girls get gluttened, I give them a dose of George's Aloe Vera juice immediately. It is amazing how quickly they recover. One has emotional responses and the other, physical. The aloe vera juice seems to work for both. I like George's brand because it tastes like water and you do not have to store it in the fridge. I have other medical issues and no longer have a colon - it helps my digestive tract, too. I have no scientific proof - it just seems to work for us.

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mef Newbie
mef
Posted

After a glutening, I up my vitamin D supplement. It works well for bone/joint pain.

Bobette Newbie
Bobette
Posted

Just an FYI -- Costco sells a great gluten-free multi-vitamin and mineral supplement under their Kirkland brand.

:D

newburyport Newbie
newburyport
Posted

Hi Friends,

I've only just begun figuring this all out - but I'm definitely allergic to wheat, probably celiac (history of fatigue, anemia etc)...have been having crazed bloating & constipation all year. Like my digestion just came to a halt. Just went to naturopath a few weeks ago..

-on anti-inflammatory/hypoallergenic diet for 3 weeks

-2 weeks of Replete (gluten-free) probiotics, followed by Spectra (gluten-free) probiotics

-2-3 OmegaZyme (Garden of Life) digestive enzymes after each meal

-warm water with lemon and honey each morning and before dinner

-1 cup of nettle tea, 1 cup of dandelion tea each day

-application of castor oil pack/heating pad working up to 1 hour a day in ten minute intervals. this has been the MOST helpful thing for me for the bloating and to just get my system feeling like it is moving/less toxic. i haven't heard a peep out of my stomach in a year and now it is begging to gurgle and growl again! thank goodness. (be sure to check with dr. before trying this!)

anyone else using castor oil?

great post, keep feeling healthy!

~newburyport

lisa25 Rookie
lisa25
Posted
Hi,

I've been gluten-free for 5 months now, and have been glutened a few times along the way. When that happens I just get knocked flat, no energy, and spend a day or two in the bathroom with the big D (sorry). Here's what helps me:

-- Probiotic -- super strength, 2 hours after eating

-- Straight iced green tea eliminates my gassy problems after glutening

My daily supplement routine:

-- Liquid B-12 (had to search to find a gluten-free liquid form)

-- Liquid Calcium/Magnesium

-- Liquid Iron

-- Flaxseed Oil

-- Aloe Vera Gel -- pure form, mixed with cold water or juice -- swig it quickly

I go liquid form on everything because it seems to absorb so much better for me.

I have to pretty much hold my nose to take all these things. There can be an evil aftertaste -- especially with the iron (think rusty nails). But the supplements definitely help with energy levels, and overall healing.

What brand of liquid calcium/magnesium do you use?

njbeachbum Explorer
njbeachbum
Posted

my daily vitamins/supplements include...

in the morning (all vitamins are Nature Made):

Super B Complex

Multi Complete

Antioxidant Formula

Calcium w/ Vitamin D

Vitamin C

in the evening before bed i take FloraQ2 probiotic

when i've been glutened, i make sure i keep taking the probiotic, but i also begin using Acacia Fiber supplement, which i already take a few doses a few times a week, but when i am glutened, i take it morning and night and it really seems to calm down the tummy symptoms, since it has a prebiotic effect.

*Daniella* Apprentice
*Daniella*
Posted

I just got diagnosed 2 months ago so I'm very ignorant when it comes to vitamin supplements. How did you all know which vitamins to take?

emcmaster Collaborator
emcmaster
Posted
  • Author
emcmaster,

Is the multi from Doctor's Choice made by Enzymatic Therapy?

Yes! That's the one!

solarglobe Rookie
solarglobe
Posted
What brand of liquid calcium/magnesium do you use?

I have been using LifeTime -- it's a calcium magnesium citrate (and it has a pleasant taste).

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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