Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Maybe Apple Ceo Steve Jobs Has celiac disease?


Bill in MD

Recommended Posts

Bill in MD Rookie

Open Original Shared Link

This sounds a lot like *my* personal experience and diagnosis. Whatever it is, good luck to him.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

If he does, describing it as a "hormone imbalance" is ... a little o_O.

celiac-mommy Collaborator

Maybe that's why my iphone is about the only phone on the planet nowadays that can't send a picture text..... :blink::blink:

powerbraid Rookie
Open Original Shared Link

This sounds a lot like *my* personal experience and diagnosis. Whatever it is, good luck to him.

Wow. I just read this story and totally agree. It was my first reaction. I doubt anyone can just "email" Steve Jobs, but I'm highly suspicious he has Celiac. :(

disneyfan Apprentice

I can't believe these responses...that is EXACTLY what I thought when I read the article this morning. You would think someone like him with internet access at his fingertips could research a little on his own....Unbelievable that doctors still can't figure this out!

rumbles Newbie

I think he has pancreatitis, - causing his pancreas to not

make the enzymes to digest protein (protease), and possibly

not making the enzymes to digest fat (lipase) and starch/carbs

(amylase), through it's normal hormone synthesis. He says that

he has a hormone imbalance that is robbing him of protein and

was confirmed through bloodwork - which almost matches pancreatitis

(the pancreas endocrine function makes hormones [insulin and

glucagon] and it's exocrine function makes enzymes, - it wouldn't

actually be a hormone imbalance, but I could see where someone

might call it that). His history of pancreatic cancer probably puts

him at risk for pancreatitis. Enzyme supplements will manage the

imbalance, which would eventually allow him to regain the weight.

(It's not uncommon for people with celiac disease to also have

pancreatic enzyme deficiencies.)

happygirl Collaborator
Open Original Shared Link

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jcford33 Rookie

I was diagnosed as having a pancreatic enzyme deficiency due to pancreatic atrophy that was found in the testing prior to my Celiac diagnosis. I was placed on an enzyme replacement for about 4 months before the Celiac was diagnosed. I looked a lot like Steve Jobs now when I was at my lowest point (had gone from 205lbs to 148 lbs in about 8 months). I think Celiac affects so many functions in the body that the symptoms are often diagnosed as the cause.

neesee Apprentice

He has pancreatic cancer. He had this type of surgery. Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      Supplements for those Diagnosed with Celiac Disease

    2. - par18 replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is it gluten?

    3. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    4. - par18 replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,340
    • Most Online (within 30 mins)
      7,748

    Abbyyoung417
    Newest Member
    Abbyyoung417
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel.  they offered me an endoscopic biopsy 3 months later, but that i would need to continue eating gluten for it to be accurate. so i quit eating gluten and my intestine had healed by the time i had the biopsy (i'm guessing??). Why else would my TTgIgA be so high if not celiacs? Anyway, your ferritin will rise as your intestine heals and take HEME iron (brand 4 arrows). I took 20mg of this with vitamin c and lactoferrin and my ferritin went up, now sits around 35.  you will feel dramatically better getting your ferritin up, and you can do it orally with the right supplements. I wouldn't get an infusion, you will get as good or better results taking heme iron/vc/lf.  
    • par18
      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.