Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Info Fast Befor I Make A Big Mistake


bknutson

Recommended Posts

bknutson Apprentice

I have had Celiac Spru for about 5 or 6 years. Along with a few other things. I am 51 years old. I go up and down from a 140lbs to 110lbs all the time. I am sick constantly. I dont know why but I can not seem to get anything under controll. Recently I heard about Allegenix. It is done by this chyroprator out here in Utah that we know and mayber alot other dr.s I dont know. What I need to know is Has ANYONE HEARD OF IT AND DOES IT WORK? I keep thinking that if it works why are there so many of us still celiac sufferers?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sbj Rookie

Even if this did work it doesn't have anything to do with celiac disease. This treatment supposedly eliminates allergies. Celiac disease is not an allergy.

bknutson Apprentice
Even if this did work it doesn't have anything to do with celiac disease. This treatment supposedly eliminates allergies. Celiac disease is not an allergy.

Yes it is we are alergic to the gluten.

bigbird16 Apprentice

I'd be careful, BK. Maybe it'll work for allergies, but celiac and an allergy to wheat are different beasts. It sounds a bit like snake oil to me, though. (The lady saying she's been cured works for the chiropractor; she's not a neutral party.) Do some research on the internet and look for reputable medical studies on it (like from medical journals, rather than sites selling/advocating books, services, pills, etc.) If it seems to good to be true, it probably is.

Take care,

Kat

Mother of Jibril Enthusiast

Celiac disease is not an allergy. It's an autoimmune reaction. Gluten causes your body to produce antibodies (EMA, Ttg) that destroy your intestines. It's currently the only autoimmune disorder that can be prevented or "cured" by avoiding the trigger (although your body will always be able to start producing antibodies again if you go back to eating gluten).

It is possible, however, that you also have one or more true allergies... which cause your body to produce histamines. I would make an appointment with an allergist before buying any products.

bknutson Apprentice
Celiac disease is not an allergy. It's an autoimmune reaction. Gluten causes your body to produce antibodies (EMA, Ttg) that destroy your intestines. It's currently the only autoimmune disorder that can be prevented or "cured" by avoiding the trigger (although your body will always be able to start producing antibodies again if you go back to eating gluten).

It is possible, however, that you also have one or more true allergies... which cause your body to produce histamines. I would make an appointment with an allergist before buying any products.

Ok you guys are really helping me now. Thankyou. Please anyone keep throwing things at me. I have had this so long I think I have gotten myself confused with all the other stuff I have too. Also I have a memory problem. I know Celiac is an autoimmune thing but it is caused from the alergy to the wheat by products isnt it? Or is is triggered by them. Oh my gosh I need to go back to studing. I have been sick for so long I am reaching for miricles I guess. I have never been able to feel good since I got this stuff. Thankyou so much for your info and patience. I am just an old lady who has been about ready to throw in the towel....

bknutson Apprentice
Ok you guys are really helping me now. Thankyou. Please anyone keep throwing things at me. I have had this so long I think I have gotten myself confused with all the other stuff I have too. Also I have a memory problem. I know Celiac is an autoimmune thing but it is caused from the alergy to the wheat by products isnt it? Or is is triggered by them. Oh my gosh I need to go back to studing. I have been sick for so long I am reaching for miricles I guess. I have never been able to feel good since I got this stuff. Thankyou so much for your info and patience. I am just an old lady who has been about ready to throw in the towel....

I just read right on this very site "Gluten Alergy symtoms" So I am so confused.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mtndog Collaborator
I just read right on this very site "Gluten Alergy symtoms" So I am so confused.

Hi BKnutson! I think a lot of people use the term allergy/intolerance loosely around here. Celiac is an autoimmune disorder that makes us intolerant of gluten.

I would think twice before doing this treatment only because you don't seem to know much about it. It may work but it may not and I'd hate to see you spend the money if it doesn't work :( See if you can find out more of it.

You have been gluten-free for awhile and are still feeling poopy (I was too). Have you tried eliminating other foods that seem to give a lot of people trouble here- like soy, dairy? Have you seen your doctor lately for a checkup?

I hope you find the answer- don't stop until you do!

bknutson Apprentice
Hi BKnutson! I think a lot of people use the term allergy/intolerance loosely around here. Celiac is an autoimmune disorder that makes us intolerant of gluten.

I would think twice before doing this treatment only because you don't seem to know much about it. It may work but it may not and I'd hate to see you spend the money if it doesn't work :( See if you can find out more of it.

You have been gluten-free for awhile and are still feeling poopy (I was too). Have you tried eliminating other foods that seem to give a lot of people trouble here- like soy, dairy? Have you seen your doctor lately for a checkup?

I hope you find the answer- don't stop until you do!

Thanks Beverly,

I actualy decided I would put in a call to my Dr. and ask him about it. I mean if it is such a miricle why arent we all healed? I have not been in for a while. I am sick all the time. But I Have some other problems and lactose is one. Fybromyalgia is one. Artoritis, so I am an old lady who is a mess. But thank you. I am wondering if you are the Beverly who sent me a huge list of foods about four years ago. It was called ----- list. I cant remember. I lost it when my computer crashed.

BK

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      18

      My journey is it gluten or fiber?

    2. - olivia11 replied to olivia11's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      suggest gluten free food

    3. - knitty kitty replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      GI DX celiac despite neg serology and no biopsy

    4. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      18

      My journey is it gluten or fiber?

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      18

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,750
    • Most Online (within 30 mins)
      7,748

    Celiac Daughter
    Newest Member
    Celiac Daughter
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • xxnonamexx
      I looked further into Thiamax Vitamin B1 by objective nutrients and read all the great reviews. I think I will give this a try. I noticed only possible side affect is possibly the first week so body adjusts. Life Extensions carries Benfotiamine with Thiamine and the mega one you mentioned. Not sure if both in one is better or seperate. some reviews state a laxative affect as side affect. SHould I take with my super B complex or just these 2 and multivitamin? I will do further research but I appreciate the wonderful explanation you provided on Thiamine.
    • olivia11
      Thanks I am mostly looking for everyday staples and easy meal ideas nothing too specialty if possible.
    • knitty kitty
      There are other Celiac genes. HLA DQ 2 and HLA DQ 8 show up in people from Northern European descent.   People of Mediterranean descent have HLA DQ 7.  People of Asian descent have HLA DQ 9.   There's other Indigenous populations that have other HLA genes that code for Celiac disease.   Are you still having symptoms?   What do you include in your diet?  Are you vegetarian? Are you taking any prescription medication?  Omeprazole?  Metformin?   Do you have anemia?  Thyroid problems? Are you taking any vitamins or herbal supplements?  
    • knitty kitty
      There are eight essential B vitamins.  They are all water soluble.  Any excess of B vitamins is easily excreted by the kidneys.   Thiamine is Vitamin B 1.  Thiamine is safe and nontoxic even in high doses.  Benfotiamine and TTFD are forms of Thiamine that the body can utilize very easily.   The form of Thiamine in the supplements you mentioned is Thiamine Mononitrate, a form that the body does not absorb well and does not utilize well.  Only about thirty percent of the amount on the label is actually absorbed in the small intestine.  Less than that can actually be used by the body.  Manufacturers add thiamine mononitrate to their products because it's cheap and shelf-stable.  Thiamine and other B vitamins break down when exposed to light and heat and over time.  Thiamine Mononitrate is a form that does not break down over time sitting on a shelf waiting for someone to buy them.  What makes Thiamine Mononitrate shelf stable makes it difficult for the body to turn into a useable form.  In fact, it takes more thiamine to turn it into a useable form.   Gastrointestinal Beriberi is a localized shortage of Thiamine in the gastrointestinal tract.  High carbohydrate meals can result in gastrointestinal symptoms of Gastric Beriberi.  Fiber is a type of carbohydrate.  So, high fiber/carbohydrate snacks could trigger Gastric Beriberi.   Since blood tests for Thiamine and other B vitamins are so inaccurate, the World Health Organization recommends trying Thiamine and looking for health improvement because it's safe and nontoxic.  
    • xxnonamexx
      Thanks very interesting I have to see if I should take these 2 vitamins along with my multi and super Vit B complex or if its too much or would hurt me. I don't have any other health issues but would love to see if this improves anything especially to feel stronger build muscle.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.