Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac & Ssi


shade34098

Recommended Posts

shade34098 Newbie

I have been reading alot about Celiac since my son was diagnosed almost immediately after starting solid foods as an infant. Fearing that it may be the case with my daughter after she was born, she was tested as soon as we could and saw indications that were similar to that of my son's.

We all know that times are tough and that Gluten-Free food is much more expensive.

I was reading the other day that Celiac has been listed as a "disability" requiring protection under Americans with Disabilities Act" (ADA)

Does anyone know, or have any means to find out if because of this I can file for SSI Disability benefits for my children to help off-set the cost of their food. I don't care if all I get is $100 each, it would be a huge difference and make things alot easier to provide.

I know I can file, thats a no-brainer... but does anyone know if it will be accepted? Has anyone filed on behalf of their children ???

If possible, could you PM me?? and post it here? I am sure I am not alone.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

I don't know of many that can handle going through all the red tape for help.

I did just find out about an organization, angel food ministries, that helps provide food for less cost for every body. They are a nation wide organization and you do not have to provide personal financial information. They have one rule that you order a "basic" package. I think they might take Celiac into consideration for letting you buy just the fruit+veggie and meat package. Or find a friend that can use the "basic" package and add your order to theirs.

ang1e0251 Contributor

I run the Angel food program at my church and I would find a way for you to buy the fruit and vegetable box if you needed it. The basic box is full of gluten so not acceptable. But get with your local provider and see if they can't accomodate you. I would.

mamaw Community Regular

celiac & SSi

Here is a little info regarding your question. Anyone can file for anything getting approved is the problem. It depends on each case as no one is clumped together --- all individual per family critria.

First number of children. Cash on hand can not be over $3000.00 for a two parent household & $2000.00 for a one parent household. All earned & unearned income must be reported. ie: savings, certificates & etc. Rental income & so on. Income cannot exceed $3500-$4000.00 gross a month.

This above is based on two children. More children would change the income levels.

One car but some can waiver in a second car.

With all the dominos in a row still will not guarentee approval.

I know everyone wishes for help because of the price of food but it usually never happens. Italy is the only place I know of where gluten-free food is given each month....

hth

mamaw

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,353
    • Most Online (within 30 mins)
      7,748

    ace14219
    Newest Member
    ace14219
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.