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Celiac & Ssi


shade34098

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shade34098 Newbie

I have been reading alot about Celiac since my son was diagnosed almost immediately after starting solid foods as an infant. Fearing that it may be the case with my daughter after she was born, she was tested as soon as we could and saw indications that were similar to that of my son's.

We all know that times are tough and that Gluten-Free food is much more expensive.

I was reading the other day that Celiac has been listed as a "disability" requiring protection under Americans with Disabilities Act" (ADA)

Does anyone know, or have any means to find out if because of this I can file for SSI Disability benefits for my children to help off-set the cost of their food. I don't care if all I get is $100 each, it would be a huge difference and make things alot easier to provide.

I know I can file, thats a no-brainer... but does anyone know if it will be accepted? Has anyone filed on behalf of their children ???

If possible, could you PM me?? and post it here? I am sure I am not alone.


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mommida Enthusiast

I don't know of many that can handle going through all the red tape for help.

I did just find out about an organization, angel food ministries, that helps provide food for less cost for every body. They are a nation wide organization and you do not have to provide personal financial information. They have one rule that you order a "basic" package. I think they might take Celiac into consideration for letting you buy just the fruit+veggie and meat package. Or find a friend that can use the "basic" package and add your order to theirs.

ang1e0251 Contributor

I run the Angel food program at my church and I would find a way for you to buy the fruit and vegetable box if you needed it. The basic box is full of gluten so not acceptable. But get with your local provider and see if they can't accomodate you. I would.

mamaw Community Regular

celiac & SSi

Here is a little info regarding your question. Anyone can file for anything getting approved is the problem. It depends on each case as no one is clumped together --- all individual per family critria.

First number of children. Cash on hand can not be over $3000.00 for a two parent household & $2000.00 for a one parent household. All earned & unearned income must be reported. ie: savings, certificates & etc. Rental income & so on. Income cannot exceed $3500-$4000.00 gross a month.

This above is based on two children. More children would change the income levels.

One car but some can waiver in a second car.

With all the dominos in a row still will not guarentee approval.

I know everyone wishes for help because of the price of food but it usually never happens. Italy is the only place I know of where gluten-free food is given each month....

hth

mamaw

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