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Different Symptoms Than Most


codyb87

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codyb87 Rookie

I am waiting for my doctors appointment in very early Febuary. It seems that everyone on these forums suffer from stomach problems when consuming gluten, yet it appears that my only symptom for now is extremely annoying heart palpitations for hours on end after eating gluten, which also keep me up at night. Also I am apparently no longer anemic, which I have been dealing with for years.

Whats going on? Am I looking into the wrong thing as to the cause of all this?


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MySuicidalTurtle Enthusiast

I do not know about heart palpitations but I do know that not everyone has tummy issues as reactions. My Mother (also Celiac), for instance, gets migraines. Good luck!

Aleshia Contributor
I am waiting for my doctors appointment in very early Febuary. It seems that everyone on these forums suffer from stomach problems when consuming gluten, yet it appears that my only symptom for now is extremely annoying heart palpitations for hours on end after eating gluten, which also keep me up at night. Also I am apparently no longer anemic, which I have been dealing with for years.

Whats going on? Am I looking into the wrong thing as to the cause of all this?

no tummy issues here.... although after going gluten-free i can tell by my tummy in part if i have eaten gluten but isnt severe

casnco Enthusiast
I am waiting for my doctors appointment in very early Febuary. It seems that everyone on these forums suffer from stomach problems when consuming gluten, yet it appears that my only symptom for now is extremely annoying heart palpitations for hours on end after eating gluten, which also keep me up at night. Also I am apparently no longer anemic, which I have been dealing with for years.

Whats going on? Am I looking into the wrong thing as to the cause of all this?

I would never rule any symptom out as caused by gluten. My symptoms are different every time. the stomach cramping being the worst of them. However, the DH is laughing matter and it seems I have some all the time.

veggienft Rookie

Gluten disease classifications are nested, one inside the other.

Gluten sensitivity: All diseases caused by ingesting gluten.

Gluten intolerance: All autoimmune diseases caused by gluten.

Celiac disease: The autoimmune disease where digestive gluten causes the digestive immune system to attack the lining of the small intestine.

You appear to have non-celiac gluten intolerance. It's actually very common, perhaps more common than celiac disease. Celiac disease was associated with gluten because both are digestive. What's unusual about you is that you were able to associate your non-digestive symptoms with gluten ingestion. Most non-celiac gluten-intolerant people never do that.

When a celiac ingests gluten, the small intestine thinks it's an invading antigen, like a bacteria or a virus. The small intestine responds by producing tissue transglutaminase (ttg). The ttg tags intestinal lining tissue for destruction by IgA antibodies, the antibodies which operate in the digestive system.

When a person with gluten sensitivity ingests gluten the small intestine responds by releasing zonulin, a cytokine which makes the small intestine lining permeable. This passes the partially digested stomach contents into the bloodstream. The circulatory system of a person with gluten intolerance responds with blood-based ttg. The ttg tags tissue it thinks has been compromised by gluten for destruction.

The circulatory system uses IgG antibodies to destroy tissue, and that appears to be what's going on in you. If a gluten-free diet resolves your heartbeat irregularities then you are gluten intolerant.

A common cause of heartbeat irregularities among gluten intolerant people is thyroid malfunction, a result of gluten and IgG attacking the thyroid gland, and attacking the brain systems which control the thyroid gland. You have a choice. You can go totally gluten-free, and see if your symptoms resolve. Mine did. Or you can have a doctor check your thyroid chemicals.

Your thyroid may be too damaged to return to normal hormone production. After you go gluten-free, blood tests could tell you if you need further thyroid-specific treatment, but your response to a gluten-free diet might also tell you that.

Other autoimmune issues besides thyroid malfunction can cause heartbeat irregularity .......adenosine shortage, calcification, nerve attack, liver choline under-production....... A gluten-free diet stands a good chance of resolving these issues. You could search years trying to identify the exact tissue being destroyed. You'll spend time eating gluten and harming more tissue so that you can do what you would have done without the tests ........eat a gluten-free diet.

..

MELINE Enthusiast

Hey me too I don't have any stomach pain or D when glutened . My only symptom is extreme fatigue, headache and eczema within 5-7 hours and I was totally asymptomatic till 29 years old when my eczema begun.

Meline

jitters Apprentice

Hi there, I know your frustration! I just want to let you know that until the last couple of years heart palpitations and insomnia were my two biggest symptoms (sometimes my only symptoms). Once I went gluten free for a long time I could start to feel some stomach issues and other weird things started happening. As far as the anemia, I'm not sure what to tell you there... I'm usually anemic too and once in awhile it seems like my body cooperates and gives me a normal test in that area. I guess I'm just trying to say you're not alone in this, hang in there! Feel free to PM me if you just want to vent or talk about it.


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    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
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