Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thyroid Cyst Treatment


GFinDC

Recommended Posts

GFinDC Veteran

Hi all,

I have had a thyroid cyst on the front of my throat for the last 3.5 years. It developed over the course of a month and grew to the size of a small tree frog right smack dab in the middle of my throat where the adam's apple is. I had it biopsied by FNA (fine needle aspiration) and there was no problem, just a fluid filled cyst. My thyroid specialist wanted to do do a thyroidectomy back then but I decided to wait and see if the gluten-free diet would help it. It actually was one of the symptoms that led to my sister figuring out I probably had celiac disease.

My thyroid doctor wanted to remove the whole thyroid due to the cyst on the bridge between the 2 thyroid lobes. I thot that was kind of extreme. Anyhow he said that was the only treatment. My company changed health insurance and so I changed doctors this year.

Well,it hasn't gotten smaller on the gluten-free diet and in fact has grown. Got to be more the size of large toad really. My new doctor, an endocrinologist suggested a different approach. He offered to inject the cyst with alcohol to kill off some of the cells producing fluid. He said this works in about 50% of cases. Anyway, I had that done this week and am waiting to see how it works out.

I thot I would share in case other people have cysts and wanted to know about an alternative to surgery.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



georgie Enthusiast

You may like to research Iodine and Cysts. I know that many have used Iodine supplements to get rid of ovarian cysts. Iodine is not good for DH, but have a bit of think about it. I use Lugols Iodine, but there are tablets called Iodoral as well. Some use up to 50mg for a start of the treatment. There are yahoo groups that have more info .... Open Original Shared Link and Open Original Shared Link Are your Thyroid levels OK ? The TSH , FREE T4 and FREE T3, and Thyroid Antibodies ?

harp1 Apprentice

i have had a related concern with my parathyroid - levels got on the high side. Different organ, organs. I was told by the doc to drink alot of water before taking the blood test again - that would bring the levels down. Also the surgery to remove the nodes appears to not be very effective now. So they're less likely to do surgery. In case some one is interested/ Susam

GFinDC Veteran

Hi Georgie,

Thanks, that is interesting about the iodine Georgie. I will look into it. I am not anxious to take large amount of iodine, but maybe a small amount extra wouldn't hurt. I did see where the amount of vitamin D that people require has been called into question recently, so maybe the RDA for iodine is low too.

Hi Susan Harp1,

My doc said they usually leave the parathyroid glands when removing the thyroid. He said that was not a problem these days. Seems strange to tell you to drink water before the tests if it affects the results. Maybe they thought you were de-hydrated last time? It seems like they would want you to be in a your normal everyday state for the tests is all. So they could get results from your normal operating state as it were. For myself I try not to take any vitamins or whatnot the day of a blood test so they can see what things are normally like in my system, rather than getting a "juiced" reading ya know!

Well, I guess I will know in about a month if this procedure worked or not. It takes a while for the cyst to fill back up with fluid. If it doesns't work I will probably do the thyroidectomy this year. The darn thing is right on top my carotid artery and that seems like a bad place to put the squeeze on.

  • 2 weeks later...
Lovey25 Rookie
Hi all,

I have had a thyroid cyst on the front of my throat for the last 3.5 years. It developed over the course of a month and grew to the size of a small tree frog right smack dab in the middle of my throat where the adam's apple is. I had it biopsied by FNA (fine needle aspiration) and there was no problem, just a fluid filled cyst. My thyroid specialist wanted to do do a thyroidectomy back then but I decided to wait and see if the gluten-free diet would help it. It actually was one of the symptoms that led to my sister figuring out I probably had celiac disease.

My thyroid doctor wanted to remove the whole thyroid due to the cyst on the bridge between the 2 thyroid lobes. I thot that was kind of extreme. Anyhow he said that was the only treatment. My company changed health insurance and so I changed doctors this year.

Well,it hasn't gotten smaller on the gluten-free diet and in fact has grown. Got to be more the size of large toad really. My new doctor, an endocrinologist suggested a different approach. He offered to inject the cyst with alcohol to kill off some of the cells producing fluid. He said this works in about 50% of cases. Anyway, I had that done this week and am waiting to see how it works out.

I thot I would share in case other people have cysts and wanted to know about an alternative to surgery.

Hi there!

I have Hashimoto's too (oh how I hate it! :angry: ), but no nodule/cyst to date. (Thank God).

I'm just wondering if you do an anti-Candida diet as well as the gluten-free. I see by your signature that you're not eating yeast, but there are many other things to avoid on an anti-Candida diet. I do both diets and they really go hand-in-hand for alot of people with autoimmune disease. I know that alot of natural health advocates who are experts on Candida believe that cancer is caused by Candida, and so I guess, using that same line of thought, perhaps Candida can cause the inflammation of the nodule you have. I'm just thinking out loud here... I'm not saying this is necessarily true, but the overgrowth of yeasts in the system can cause inflammation as well. Since our immune systems are down, yeasts tend to multiply out of control. Don't take this as 100% fact, but I'm just throwing it out there... maybe it will make sense for your situation.

Even if this nodule could never be cured with an anti-Candida diet, it would still do you alot of good to get on it!

debmidge Rising Star

Please clarify: cyst or nodule?

GFinDC Veteran
Hi there!

I have Hashimoto's too (oh how I hate it! :angry: ), but no nodule/cyst to date. (Thank God).

I'm just wondering if you do an anti-Candida diet as well as the gluten-free. I see by your signature that you're not eating yeast, but there are many other things to avoid on an anti-Candida diet. I do both diets and they really go hand-in-hand for alot of people with autoimmune disease. I know that alot of natural health advocates who are experts on Candida believe that cancer is caused by Candida, and so I guess, using that same line of thought, perhaps Candida can cause the inflammation of the nodule you have. I'm just thinking out loud here... I'm not saying this is necessarily true, but the overgrowth of yeasts in the system can cause inflammation as well. Since our immune systems are down, yeasts tend to multiply out of control. Don't take this as 100% fact, but I'm just throwing it out there... maybe it will make sense for your situation.

Even if this nodule could never be cured with an anti-Candida diet, it would still do you alot of good to get on it!

Hi Lovey,

My endo says my thyroid levels are fine as of my most recent tests 5 months ago. So maybe I am ok there. I am not on the candida diet although my sister had a book on it and I read through it some. I am feeling a lot betterr since going on a home made diet of mostly rice, quinoa, veggies, fruit and dead critters. I don't do dairy or wine. Not much sugar or salt or fat except for olive oil too. Regular black tea and not the fruity flowery kinds also, since I have hayfever. Lately I have been making candy since I went home for the holidays and got interested in it. I have a feeling the anti-candida diet wouldn't fit in with making candy... I also eat peanuts and that dreaded peanut butter stuff, which I understand is another no-no. I do think there is something to the candida/yeast idea. And so I try to not eat any sugar for 2 days in a row. I skip at least a day on it. I figure that might help keep the yeastie buggers from getting too engrained if they aren't constantly getting yummy sugar to eat every day. My biggest health improvement lately was getting off the HCTZ hydroclorathiazide I was taking for hypertension. That stuff is nasty! That and cutting out most salt has helped a lot.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran
Please clarify: cyst or nodule?

Hi Debmidge,

I have both a cyst and a nodule. The cyst is on the buttterfly body of the thyroid (isthmus), right in front of the throat where the adam's apple is. I also have a calcified nodule. The alcohol treatment is for the cyst only, not the nodule. At least that's my understanding. I've had MRI with contrast a couple times and am beginning to think that is the cause of the cyst and nodule. So far the treatment seems to be working, as the cyst hasn't grown noticeably in size.

debmidge Rising Star

I had a nodule & dr. said that when biopsy of thyroid is done, they sometimes don't get the diseased tissue & end up biopsying healthy tissue & the patient gets a false negative -- so they just took the half of the throid that had the nodule and now I take thyroid supplements for the rest of my life to reduce chance of growing new nodules.

GFinDC Veteran

My doc said my nodule was too small to biopsy at the moment. I guess that's a good thing. I hope to avoid the surgery, but if that's the way it ends up I guess I will be taking the thyroid meds too. I'd like to get them to leave some of the thyroid, but the docs are resistant to that idea for some reason. I think they have a big thyroid collecting hobby really. Just kidding! :-)

  • 1 year later...
Littlem Newbie

Hi Georgie,

Thanks, that is interesting about the iodine Georgie. I will look into it. I am not anxious to take large amount of iodine, but maybe a small amount extra wouldn't hurt. I did see where the amount of vitamin D that people require has been called into question recently, so maybe the RDA for iodine is low too.

Hi Susan Harp1,

My doc said they usually leave the parathyroid glands when removing the thyroid. He said that was not a problem these days. Seems strange to tell you to drink water before the tests if it affects the results. Maybe they thought you were de-hydrated last time? It seems like they would want you to be in a your normal everyday state for the tests is all. So they could get results from your normal operating state as it were. For myself I try not to take any vitamins or whatnot the day of a blood test so they can see what things are normally like in my system, rather than getting a "juiced" reading ya know!

Well, I guess I will know in about a month if this procedure worked or not. It takes a while for the cyst to fill back up with fluid. If it doesns't work I will probably do the thyroidectomy this year. The darn thing is right on top my carotid artery and that seems like a bad place to put the squeeze on.

Hello All,

I am new to this board and issue. Well I have actually been dealing with cysts on my thyroid for over a year now. I had a biopsy done on them and they said they are benign. That is good, but the one on my right side (of my thyroid) is growing right next to my carotid artery (as user above). My thyroid is functioning normally, but my right side of my neck seems like it is getting puffy. I have an appointment to see and endo at the end of the month, but I am wondering if there is anything out there to reduce cysts without having to have my thyroid taken out. All I know is that my anxiety attacks are getting really really bad, and I am so stressed out over all of this. Any help would be GREATLY appreciated.

georgie Enthusiast

Check out www.parathyroid.com re your neck swelling... You will find anxiety is a symptoms of parathyroidism.

http://sphotos.ak.fbcdn.net/hphotos-ak-ash2/hs310.ash2/58990_114296981959771_100001384097697_111590_8267737_n.webp

New developments in thyroid and parathyroid surgery are coming up. Ultrasound !!

Open Original Shared Link

Open Original Shared Link

Complete thyroid replacement - with TSH to near zero - shut down my thyroid and nodules...

Hello All,

I am new to this board and issue. Well I have actually been dealing with cysts on my thyroid for over a year now. I had a biopsy done on them and they said they are benign. That is good, but the one on my right side (of my thyroid) is growing right next to my carotid artery (as user above). My thyroid is functioning normally, but my right side of my neck seems like it is getting puffy. I have an appointment to see and endo at the end of the month, but I am wondering if there is anything out there to reduce cysts without having to have my thyroid taken out. All I know is that my anxiety attacks are getting really really bad, and I am so stressed out over all of this. Any help would be GREATLY appreciated.

GFinDC Veteran

@LittleM

Hey LittleM, anxiety can be caused by lots of things. Hyperthyroidism is one. Too much thyroid hormone running around your system can cause increased heat rate and excitability etc. Sometimes flushed, redness in the face, short temper, nervousness, heart palpitations, all are possible in any combination.

There is a condition known as Hashimoto's thyroiditis, which is another auto-immune disease like celiac is. Hashimoto's is when your body makes anti-bodies to the thyroid gland, and slowly destroys it. That can cause swelling in the throat, and increased thyroid hormone release due to the damage. Eventually if not stopped, the thyroid is completely destroyed and the person ends up hypo-thyroid, low on thyroid hormone.

Hashimoto's is one of the many auto-immune diseases that celiacs get more often than other people do. There is some chance that if you are celiac and go on the gluten free diet, your Hashimoto's symptoms will reduce. But no guarantee.

As far as the cyst goes, I have a fluid filled cyst on my thryoid, as well as a couple of nodules. The cyst was treated with alcohol and is much smaller than before, but hasn't completely gone away.

The nodules are not nessecarily a problem,as over 90% are benign growths, and most people develop them as they get older.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    Moooey
    Newest Member
    Moooey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.