Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hand And Food On One Side 'drawing Up'


ravenwoodglass

Recommended Posts

ravenwoodglass Mentor

I have been having episodes lately where my second and third toes will draw up like they are cramping. It is uncomfortable but not as painful as it looks like it would be. It tends to happen to my foot after I lay down at night. I have just been getting up and walking the foot off then yesterday it started to happen to the third and fourth fingers hand on the same side. It eventually frees up after I shake the hand for a bit. While it is not unknown for me to have my hands spasm if I am holding something this out of the blue thing is getting annoying. I won't be able to continue my search for a doctor until the weather clears a bit, I have been looking for one for a couple years now, so if there is anything you guys know of that might help please let me know.

I don't think this is gluten related as I have none of my 'glutened' symptoms.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

I did used to get something like what you describe. One or two toes would just be drawn sideways or upwards, and the best I found for immediate relief was to apply pressure to the top of the effected foot with the heel of the other foot. But not against a surface. In other words, using the ankle joint to push that foot upward against something - I used the heel of my other foot.

While I can't offer anything specific, if it was me I'd be thinking along the lines of mineral (or vitamin) deficiencies, toxic levels of something like artificial flavors/colors, or naturally occurring substances which aren't well tolerated. I do know that the toxic alkaloids in nightshades effect motor nerve function. A quick Google suggests deficiencies in magnesium, potassium, and calcium.

Thankfully, it has not happened in a while, which I attribute to the supplements I take.

Here's a link which may help:

Open Original Shared Link

ravenwoodglass Mentor

Thanks for the reply. I knew about the magniesium and thought I was taking a supplement that had it. Turns out the amount is 1% of the daily value so I think I'll pick up a supplement as well as googling high mag foods. Do you know if I should supplement that above the daily value for a while? Thanks for the link, these are spasms more than cramps by their definition. I've been eating a lot of potatoes lately, my favorite cold weather comfort food so perhaps I'll cut down on those also just to be on the safe side.

jerseyangel Proficient

Hi Ravenwood,

I get the toe thing you described--the middle toes on my left foot will sometimes draw up/back painlessly for no reason. With my hands, if I grab something tightly sometimes they seem to lock into that position and then slowly release.

I was just on another thread the other day (restless legs) and a couple of us were talking about muscle cramping and tightness. Another thing that happens to me, as I said over there, is if I stretch my legs out in bed, my calf muscles frequently sieze up, as well as the arch in my foot.

One thing I notice is that when I make sure I drink plenty of water, it's not as frequent. Magnesium is another good thought, but I'm leery of taking that myself since I'm so prone to D.

Fiddle-Faddle Community Regular

I think the B-vitamins and vitamin D also play a role in neuro issues, and DH (a PhhD chemist) says that multivitamin supplements contain the RDA which according to him is a bare minimum, not an optimum amount.

I would also wonder if something else is going on to cause either a malabsorption issue or if something is bonding to the vitamins (in supplement form or in food) that you are consuming?

I know I was told that thyroid hormone supplements, for example, should not be taken within 5 hours of vitamins as they bind to the vitamins.

Is it possible that a virus could cause this sort of thing if it attacks in the brain? Or could this even be a kind of mini-stroke?

I remember seeing both hands and feet draw up in a friend who was in a coma. The PT put her hands and feet in splints to prevent locking and atrophy.

SOrry I have no definitive answers to help. :(

RiceGuy Collaborator
Thanks for the reply. I knew about the magniesium and thought I was taking a supplement that had it. Turns out the amount is 1% of the daily value so I think I'll pick up a supplement as well as googling high mag foods. Do you know if I should supplement that above the daily value for a while? Thanks for the link, these are spasms more than cramps by their definition. I've been eating a lot of potatoes lately, my favorite cold weather comfort food so perhaps I'll cut down on those also just to be on the safe side.

I haven't ever read anything that suggested taking a lot of magnesium to bring levels up faster, and I'd think there'd possibly be a laxative effect in that case. Some forms are less prone to the laxative effect, but it's really only something to expect with high doses. However, calcium tends to balance out magnesium, so you can always take calcium with it if you need to. Otherwise, it is suggested to take calcium apart from magnesium, so they don't compete for absorption. The typical recommendation I've seen is to start with 200-400mg. The citrate form is supposed to be well-absorbed.

The suggestion of B-complex and vitamin D seems like sound advice as well.

You can search foods by nutrient Open Original Shared Link.

sbj Rookie

Sounds like cramping due to dehydration or lack of potassium - drink plenty of water and eat bananas!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

I picked up a Calcium-Magnesium supplement this morning. I take a multi that is pretty high in most everything but I also take a D3 and a biotin supplement. We'll see if the additional Cal-Mag supplements help a bit. I will up my daily water intake. I never really get hungrey or thirsty and I may be consuming less than I should. If Things don't improve I guess I will have to speed up my search for a new doctor. Not an easy thing in my neck of the woods. Thanks for everything guys.

maile Newbie
Sounds like cramping due to dehydration or lack of potassium - drink plenty of water and eat bananas!

I'll second this one as I get the toe creeping thing as well the arches of the foot. at one point I was on a Dr monitored very low carb, low fat diet and was supplemented with potassium daily. my cramping/creeping continued until I was on a fairly high dose supplement (liquid), apparently it's quite common when you eat lower carb.

Not sure if this applies to your situation but adding in a daily supplement might be worth trying.

JNBunnie1 Community Regular
I picked up a Calcium-Magnesium supplement this morning. I take a multi that is pretty high in most everything but I also take a D3 and a biotin supplement. We'll see if the additional Cal-Mag supplements help a bit. I will up my daily water intake. I never really get hungrey or thirsty and I may be consuming less than I should. If Things don't improve I guess I will have to speed up my search for a new doctor. Not an easy thing in my neck of the woods. Thanks for everything guys.

I also get a non-painful spasm, but it's always been in my left hand, very rarely in my left foot. My pinky and ring finger mostly, will curl up uncontrollably. I started twitching a lot all over about six months ago, mentioned it to my health guru, and she also said to take magnesium. I take it 250 mgs every other day and not only has the all-over twitching gone away (thank god, you look really wierd when your eyelid twitches) but the left arm spasming has gone too. I can tell you also, Patti, I also have an unfortunate propensity to D at the slightest provocation, and have had zero problems with this new supplement. I get those cramps in my legs when I stretch at night too, that hasn't gone away though, so I guess that's not a magnesium thing.

Fiddle-Faddle Community Regular

You know, I had occasional eyelid twitching before going gluten-free, usually when I was really tired.

It never occurred to me that I don't have it any more til you mentioned it.

If it has to do with magnesium, maybe it's because I wasn't absorbing my multivitamin?

Anyway, Raven, how are you doing? Keep us posted, okay?

ravenwoodglass Mentor

Thanks all for the replies. It most likely was the magnesium issue. I started taking a calcium-magnesium supplement 1000-500. I have also added a D3 to my daily supplements. It does seem to be helping as the cramping has stopped. I have never been a fan of supplements but I have been doing just a little research and some of us do have issues with absorption from food even after we have healed. Mostly of course folks like me who were undiagnosed for so long. Oh well, if I still have to live off pills at least they aren't the toxic drugs I was given for so long.

pookie91260 Rookie

I have had the same problem for several years now. I cramp in my toes, hands, and legs. my mom always said grab on to something metal thats cold and squeeze. beleive it or not it works! I tried magnesium but it didn't help. I started doing a lot of walking and that has helped with night cramps. I also take an excercise class that invloves a lot of stretching. I strech out every night before bed and every morning when I get up.

[

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,003
    • Most Online (within 30 mins)
      7,748

    JoEllen Ball
    Newest Member
    JoEllen Ball
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Wheatwacked
      Welcome @JoJo0611. That is a valid question.  Unfortunately the short answer is slim to none.  Be proactive, when the diagnosis process is completed, start GFD.  Remember also that the western diet is deficient in many nutrients that governments require fortification.  Read the side of a breakfast cereal box. Anti-tTG antibodies has superseded older serological tests It has a strong sensitivity (99%) and specificity (>90%) for identifying celiac disease. A list of symptoms linked to Celiac is below.  No one seems to be tracking it, but I suspect that those with elevated ttg, but not diagnosed with Celiac Disease, are diagnosed with celiac disease many years later or just die, misdiagnosed.  Wheat has a very significant role in our economy and society.  And it is addictive.  Anti-tTG antibodies can be elevated without gluten intake in cases of other autoimmune diseases, certain infections, and inflammatory conditions like inflammatory bowel disease. Transient increases have been observed during infections such as Epstein-Barr virus.Some autoimmune disorders including hepatitis and biliary cirrhosis, gall bladder disease. Then, at 65 they are told you have Ciliac Disease. Milk protein has been connected to elevated levels.   Except for Ireland and New Zealand where almost all dairy cows are grass fed, commercial diaries feed cows TMR Total Mixed Rations which include hay, silage, grains and concentrate, protein supplements, vitamins and minerals, byproducts and feed additives. Up to 80% of their diet is food that cannot be eaten by humans. Byproducts of cotton seeds, citrus pulp, brewer’s grains (wheat and barley, rye, malt, candy waste, bakery waste. The wheat, barley and rye become molecules in the milk protein and can trigger tTg Iga in persons suseptible to Celiac. I can drink Grass fed milk, it tastes better, like the milk the milkman delivered in the 50's.  If I drink commercial or Organic milk at bedtime I wake with indigestion.    
    • captaincrab55
      Can you please share your research about MMA acrylic containing gluten?   I comin up blank about it containing gluten.  Thanks in Advance,  Tom
    • Aretaeus Cappadocia
      I strongly recommend 2 dedicated gluten free (gluten-free) restaurants in my area (East Bay of San Francisco Bay Area) (2025) -- Life is Sweet Bakery and Café in Danville. I've been a few times with friends and tried multiple entrees and salads. All very good and worth having again. I've also tried a number of their bakery goods. All extremely good (not just "good for gluten-free"). https://lifeissweetbakeryandcafe.com/ -- Kitara Kitchen in Albany (they have additional locations). I've been once and had the "Buritto Bowl". Six individual items plus a sauce. Outstanding. Not just "for gluten-free", but outstanding in its own right. Vibrant flavors, great textures. I can't wait to go back. https://www.kitava.com/location/kitava-albany/  
    • Martha Mitchell
      I'm 67 and have been celiac for 17yrs. I had cataract surgery and they put a gluten lens in my eye. Through a lot of research, I found out about MMA acrylic...it contains gluten. It took 6 months for me to find a DR that would remove it and replace it with a gluten-free lens . I have lost some vision in that eye because of it . I also go to a prosthodontist instead of a regular dentist because they are specialized. He has made me a night guard and a few retainers with no issues... where my regular dentist didn't care. I have really bad reactions to gluten and I'm extremely sensitive, even to CC. I have done so much research on gluten-free issues because of these Drs that just don't care. Gluten is in almost everything shampoo, lotion, food, spices, acrylic, medication even communion wafers! All of my Drs know and believe me I remind them often.... welcome to my world!
    • trents
      If this applies geographically, in the U.K., physicians will often declare a diagnosis of celiac disease based on the TTG-IGA antibody blood test alone if the score is 10x normal or greater, which your score is. There is very little chance the endoscopy/biopsy will contradict the antibody blood test. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.