Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Frustrated With Constant Accidential Dosing With Allergen


Stefani

Recommended Posts

Stefani Newbie

On October 1st I finally faced the truth about my food allergies and my eating habits, so I turned my life around and made a commitment to eat foods that would not make me sick. For 3.5 months I was feeling GREAT with only 2 accidental dosing of allergen. Now, for the past 2 weeks I have been so sick :( and this morning is horrible. My body feels like it has been run over by a truck and all my joints ache. My nose is stuffed up something horrible and my throat feels a bit tight and swollen. I itch from head to toe and I have a blistering headache. And speaking of blisters, the skin on the back of my hands feels like its burnt and raw. And I wont even go into the stomach details - gack! All I know is that I want to crawl back into bed and sleep - I'm exhausted today.

Recent Changes - bought Dove shampoo and conditioner because they dont have soy and wheat. Found Soy in all my lotions so tossed those out. I found Cayenne Pepper (I'm allergic to peppers) in a herbal thyroid pill I take - so I cut that out. I felt great the next day and then the following day felt dosed again. I dont take any other pills - so I can rule that out. So now I'm thinking it may be one of these other things I am eating:

Pork (which I just read often gets a glaze of caesin before heading out to market and is sometimes filled with antibiotics which can cause a reaction)

Eggs

Bananas

Nuts

Corn

Citrus

Avocado

Chocolate

I'm just so frustrated (and bloated) today and wonder, when will this ever end??? When do I find out I'm allergic to air?

I know by my severe reaction today that it was something ingested yesterday. Chocolate glazed pork (homemade with baking chocolate), eggs, almonds, banana, avocado, and citrus went into my mouth yesterday - so here we go again trying to figure out what I am allergic to this time!

Frustrating! :angry:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



PaulaJ Newbie

Stefani--I understand your frustration and pain, believe me - food allergies suck so very bad, and I have more food allergies than I have fingers and toes combined. Tonight I had a hive in the back of my head and my back and face itches (I think I've got some hives going there too). I think I am allergic to tea (or maybe it was something else I got into), but anyway it's sucking! It's tough to cope sometimes.

I've got a thread on this site called Low Dose Allergen therapy, which is a therapy I am embarking on, if you are interested in reading it. It's one way to treat allergies, other than elimination, when you've got a lot of them.

Paula

Mother of Jibril Enthusiast
Pork

Eggs

Bananas

Nuts

Corn

Citrus

Avocado

Chocolate

Personally... I can't eat corn. I can't even eat processed foods with corn derivatives (corn starch, corn syrup, xantham gum, etc...). It makes me gassy and bloated.

Eggs are a problem for a fair number of people on this board. Nuts are a "major allergen." The rest of the foods on your list are probably OK, but you never know... my daughter is allergic to pumpkin seeds (not pumpkin, just the seeds). :blink: Unfortunately, there's no easy test for intolerances.

  • 1 month later...
Crayons574 Contributor
On October 1st I finally faced the truth about my food allergies and my eating habits, so I turned my life around and made a commitment to eat foods that would not make me sick. For 3.5 months I was feeling GREAT with only 2 accidental dosing of allergen. Now, for the past 2 weeks I have been so sick :( and this morning is horrible. My body feels like it has been run over by a truck and all my joints ache. My nose is stuffed up something horrible and my throat feels a bit tight and swollen. I itch from head to toe and I have a blistering headache. And speaking of blisters, the skin on the back of my hands feels like its burnt and raw. And I wont even go into the stomach details - gack! All I know is that I want to crawl back into bed and sleep - I'm exhausted today.

Recent Changes - bought Dove shampoo and conditioner because they dont have soy and wheat. Found Soy in all my lotions so tossed those out. I found Cayenne Pepper (I'm allergic to peppers) in a herbal thyroid pill I take - so I cut that out. I felt great the next day and then the following day felt dosed again. I dont take any other pills - so I can rule that out. So now I'm thinking it may be one of these other things I am eating:

Pork (which I just read often gets a glaze of caesin before heading out to market and is sometimes filled with antibiotics which can cause a reaction)

Eggs

Bananas

Nuts

Corn

Citrus

Avocado

Chocolate

I'm just so frustrated (and bloated) today and wonder, when will this ever end??? When do I find out I'm allergic to air?

I know by my severe reaction today that it was something ingested yesterday. Chocolate glazed pork (homemade with baking chocolate), eggs, almonds, banana, avocado, and citrus went into my mouth yesterday - so here we go again trying to figure out what I am allergic to this time!

Frustrating! :angry:

For me, I cannot tolerate eggs, corn, citrus, and especially chocolate from the list you named above. And I know people who cannot tolerate nuts. It is best to try the elimination diet. It is a pain to do, but really the only way to tell, because you know your body best and you know when something you're ingesting is making you feel bad. Try to eliminate one thing at a time for a few days. You can add it back after a few days and see if it causes problems again. In the meantime, read all the labels on all the products your ingesting and make sure they do not say "Made on equipment that also manufactures wheat, soy, peanuts, etc." Best of luck!

dtgirl Rookie

I cannot eat nuts or corn; eggs very, very rarely. I know how frusterating it is, especially when I feel like I have things figured out, something else happens and I get a strange reaction to a safe food. I hate the bloat and fluid retention, it makes me feel so gross. Hope you figure it out..

dilettantesteph Collaborator

Sometimes when nuts are seasoned, a gluten coating is applied first to get the seasoning to stick better. If your nuts came from a place where that is used, they could contain trace gluten.

ang1e0251 Contributor

What company does this? I usually buy Planters.

I agree with the elimination diet. Also I would keep a food/symptom journal. It will help you with that hindsight needed to find a sneaky problem and dr's like to see how you've come to that conclusion. Sometimes just thinking about your food enough to write it down can cause the lightbulb to come on.

By the way, I reacted to a tea this winter. Still don't know why, but went back to my more expensive safe tea.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

    2. - trents replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

    3. - Dizzyma posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,923
    • Most Online (within 30 mins)
      7,748

    cmckurtz
    Newest Member
    cmckurtz
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      Hi @Dizzyma I note what @trents has commented about you possibly posting from the UK.  Just to let you know that am a coeliac based in the UK, so if that is the case, do let me know if can help you with any questions on the NHS provision for coeliacs.    If you are indeed based in the UK, and coeliac disease is confirmed, I would thoroughly recommend you join Coeliac UK, as they provide a printed food and drink guide and also a phone app which you can take shopping with you so you can find out if a product is gluten free or not. But one thing I would like to say to you, no matter where you live, is you mention that your daughter is anxious.  I was always a bit of a nervous, anxious child but before my diagnosis in mid-life my anxiety levels were through the roof.   My anxiety got steadily better when I followed the gluten-free diet and vitamin and mineral deficiencies were addressed.  Anxiety is very common at diagnosis, you may well find that her anxiety will improve once your daughter follows a strict gluten-free diet. Cristiana 
    • trents
      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.