Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Legal Recourse For People Falsely Proclaiming Items To Be Gluten Free


UnhappyCoeliac

Recommended Posts

UnhappyCoeliac Enthusiast

Throwing this question out there to people alot smarter than me...

I am pretty sure there is not <_<;)

Just wondering if anyone can share some experiences!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gemini Experienced
Throwing this question out there to people alot smarter than me...

I am pretty sure there is not <_<;)

Just wondering if anyone can share some experiences!

I am not sure what kinds of experiences you are looking for but I would venture to guess that there are very few food items

that are knowingly advertised as gluten-free, which turn out to be non-gluten-free. I guess it also depends on where you live and how progressive liability laws are.

I have had nothing but good experiences with restaurants and food bought in grocery stores. I think any slight errors that may have occurred were

from the non-gluten-free population, in their efforts to help and provide me with information, got something wrong but that is understandable. It bothers me that

some people might resort to a lawsuit because all that will do is make others far less likely to market a good gluten-free product, because of fear of being sued.

Besides, a person would have to be harmed with lasting effects to win a case like that in court or be rendered unable to work and function as normal and that rarely

happens from a occasional gluten hit. Unless there is a product that can be proven to be non-gluten-free, and the purpose is to stop the marketing or get the company to fix the problem, I don't see the point, other than to not eat the product.

debmidge Rising Star
Throwing this question out there to people alot smarter than me...

I am pretty sure there is not <_<;)

Just wondering if anyone can share some experiences!

Hi, do you mean like a legal penalty not a lawsuit?

I am not certain if even something like "non fat" labeling would be in

violation of a fine or lawsuit worthy. I guess it'd be considered

fraud, but one would have to prove it was intentional & that would

be difficult.

Here in US there are groups which only eat certified food which

must be marked as so on the food (NOT due to a medically necessary

condition). If govt. finds that the manufacturer

is mismarking the labels of the food, the manufacturer will get fined.

The irony of this situation is that nothing physical (no food reactions)

will happen to anyone who eats this food even if it's mislabeled, yet

the govt. feels it must be regulated. The govt. will regulate businesses on a subjective basis which is only benefiting a very small group of people. If a manufacturer in this situation gets fined, they will pay the fine, and reorganize to continue to making the product the

correctway in order to stay in this market.

The fine doesn't make them stop producing their "certified" product.

If anything, after the fine, the manufacturer will take better steps to

insure that the certification is proper so that they don't get fined

again. I somewhat agree with the govt. getting involved because mislabeling in any way is consumer fraud.

However,

Contrary to the above, I agree with Gemini, that the more you paint

manufacturers in a corner about gluten free the more the

manufacturers will not want to be bothered even

trying to produce and label a product gluten free. "Celiacs "as whole are

too small a group and do not have enough clout......yet. The

operating word here is "clout." It's more important for celiacs to

have a good relationship with manufacturers than to look for legal

ways to force them to do something which the manufacturers

could "option out " of doing.

psawyer Proficient

Well said, Deb.

Lisa Mentor
Well said, Deb.

ditto ;)

Mother of Jibril Enthusiast
Here in US there are groups which only eat certified food which must be marked as so on the food (NOT due to a medically necessary condition). If govt. finds that the manufacturer is mismarking the labels of the food, the manufacturer will get fined.

I assume you were thinking of kosher food?

This is actually a very interesting comparison!

My understanding is that the kosher symbols are regulated by Jewish organizations which actually send representatives to factories to check out their manufacturing processes. I know someone who works as an engineer for Nestle and he said that a rabbi comes to the plant periodically to "bless the machinery" (and I assume, check the pork/meat/dairy status). The symbols are trademarks, so if someone uses them without permission that's what they get fined for... trademark infringement.

Wouldn't it be great if celiacs could send representatives to factories like this? We should come up with a special gluten-free symbol that manufacturers would WANT to have. In the beginning celiac organizations would probably have to hire the inspectors... in the future, manufacturers could pay. Just the cost of doing business with a very loyal group of customers who have specific needs ;)

GFinDC Veteran
I assume you were thinking of kosher food?

This is actually a very interesting comparison!

My understanding is that the kosher symbols are regulated by Jewish organizations which actually send representatives to factories to check out their manufacturing processes. I know someone who works as an engineer for Nestle and he said that a rabbi comes to the plant periodically to "bless the machinery" (and I assume, check the pork/meat/dairy status). The symbols are trademarks, so if someone uses them without permission that's what they get fined for... trademark infringement.

Wouldn't it be great if celiacs could send representatives to factories like this? We should come up with a special gluten-free symbol that manufacturers would WANT to have. In the beginning celiac organizations would probably have to hire the inspectors... in the future, manufacturers could pay. Just the cost of doing business with a very loyal group of customers who have specific needs ;)

Hmmm, maybe the Rabbis could do the gluten-free inspections also eh? That would be cool. I sometimes look for Kosher foods since some of them are made wheat free for Passover. Like potato pancake mix, or coconut macaroons. Manachevitza makes some awesome coconut macaroons!

I don't think there is an actual regulation in the USA for gluten free labeling. The FDA held hearings on it but I don't know that they finalized them yet.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      how much gluten do I need to eat before blood tests?

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    4. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    avery144
    Newest Member
    avery144
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.