Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could Someone Explain Enterolab Test?

Gfresh404

Recommended Posts

Gfresh404 Enthusiast
Gfresh404
Posted

I understand that it tests for antibodies in the stool, but what does it really tell you? I have had neg blood work, neg biopsy, but a positive dietary response. And how reliable are they, how accurate? Do they mean more than a biopsy/blood work?

Will the Enterloab test just tell me if I am truly sensitive to gluten? Thanks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted
Will the Enterloab test just tell me if I am truly sensitive to gluten?

Maybe, but you already know that. I have never seen any independent studies as to the accuracy of Enterolab's testing.

ravenwoodglass Mentor
ravenwoodglass
Posted

As you said Enterolab looks for antibodies to gluten and if desired, casien, eggs and soy. If your body is producing antibodies to a substance that means it is trying to protect you from that substance. Someone who is not reactive will not produce antibodies.

Enterolab does not diagnose celiac, they simply tell you if your body is reacting to gluten.

Opinions on Enterolab vary here. I did not use them for diagnosis but did use them years later to look for a reaction to soy and casien and also to check what genes I have.

happygirl Collaborator
happygirl
Posted
Do they mean more than a biopsy/blood work?

In terms of Celiac, no.

Gfresh404 Enthusiast
Gfresh404
Posted
  • Author

Has anyone had a neg biopsy w/ neg blood work? but positive Enterolab results?

I would just like some confirmation that I have celiac, just for my own personal gratification. Does anyone have any suggestions? My next step is going for genetic testing.

happygirl Collaborator
happygirl
Posted

There are many people who have had positive E. results, but neg blood/biopsy.

Enterolab does not diagnose Celiac.

You may not have Celiac, and instead, a non-Celiac gluten intolerance.

Gfresh404 Enthusiast
Gfresh404
Posted
  • Author
There are many people who have had positive E. results, but neg blood/biopsy.

Enterolab does not diagnose Celiac.

You may not have Celiac, and instead, a non-Celiac gluten intolerance.

Would non-Celiac gluten intolerance include symptoms of depression, steatorrhea, insomnia, and fatigue? I would assume that bloating and loose stools are common in both.

And according to wikipedia, non-Celiac gluten intolerance does not exist and not according to Web-MD either. Apparently it's not an official diagnosis, but maybe more of an allergy?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted
Would non-Celiac gluten intolerance include symptoms of depression, steatorrhea, insomnia, and fatigue? I would assume that bloating and loose stools are common in both.

And according to wikipedia, non-Celiac gluten intolerance does not exist and not according to Web-MD either. Apparently it's not an official diagnosis, but maybe more of an allergy?

There are many different presentations to gluten induced illness. For some gluten intolerance is simply celiac that has not yet or even will not ever have serious enough gut effects to fit the classic celiac diagnosis.

DH is an example, not all folks with DH develop villi damage but they are still recognized as celiac. For some of us gluten's impact on the brain with symptoms like depression and anxiety and brain fog can exist for years before gut impact is felt. Many would call those folks gluten intolerant rather than celiac. For some the definition of gluten intolerance is simply that the villi are not totally destroyed or the biopsy was negative but the person still responds well to the diet.

The study of celiac and it's many presentations in the US is a bit centered on only the gut stuff. Many don't realize it can impact other organs. What many here call gluten intolerance really needs to be treated the same as biopsy proven celiac by the total exclusion of gluten.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified...
    2. trents
      - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you...
    3. Paulaannefthimiou
      - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Are Bobresmill gluten free oats ok for sensitive celiacs?
    4. jenniber
      - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks! i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me b...
    5. trents
      - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,849
    • Most Online (within 30 mins)
      7,748
    Jadelucia
    Newest Member
    Jadelucia
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Bob red mill gluten free oats

      By trents · Posted

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Bob red mill gluten free oats

      By Paulaannefthimiou · Posted

      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      High TTG-IgG and Normal TTG-IgA

      By trents · Posted

      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.