Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could Someone Explain Enterolab Test?

Gfresh404

Recommended Posts

Gfresh404 Enthusiast
Gfresh404
Posted

I understand that it tests for antibodies in the stool, but what does it really tell you? I have had neg blood work, neg biopsy, but a positive dietary response. And how reliable are they, how accurate? Do they mean more than a biopsy/blood work?

Will the Enterloab test just tell me if I am truly sensitive to gluten? Thanks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted
Will the Enterloab test just tell me if I am truly sensitive to gluten?

Maybe, but you already know that. I have never seen any independent studies as to the accuracy of Enterolab's testing.

ravenwoodglass Mentor
ravenwoodglass
Posted

As you said Enterolab looks for antibodies to gluten and if desired, casien, eggs and soy. If your body is producing antibodies to a substance that means it is trying to protect you from that substance. Someone who is not reactive will not produce antibodies.

Enterolab does not diagnose celiac, they simply tell you if your body is reacting to gluten.

Opinions on Enterolab vary here. I did not use them for diagnosis but did use them years later to look for a reaction to soy and casien and also to check what genes I have.

happygirl Collaborator
happygirl
Posted
Do they mean more than a biopsy/blood work?

In terms of Celiac, no.

Gfresh404 Enthusiast
Gfresh404
Posted
  • Author

Has anyone had a neg biopsy w/ neg blood work? but positive Enterolab results?

I would just like some confirmation that I have celiac, just for my own personal gratification. Does anyone have any suggestions? My next step is going for genetic testing.

happygirl Collaborator
happygirl
Posted

There are many people who have had positive E. results, but neg blood/biopsy.

Enterolab does not diagnose Celiac.

You may not have Celiac, and instead, a non-Celiac gluten intolerance.

Gfresh404 Enthusiast
Gfresh404
Posted
  • Author
There are many people who have had positive E. results, but neg blood/biopsy.

Enterolab does not diagnose Celiac.

You may not have Celiac, and instead, a non-Celiac gluten intolerance.

Would non-Celiac gluten intolerance include symptoms of depression, steatorrhea, insomnia, and fatigue? I would assume that bloating and loose stools are common in both.

And according to wikipedia, non-Celiac gluten intolerance does not exist and not according to Web-MD either. Apparently it's not an official diagnosis, but maybe more of an allergy?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted
Would non-Celiac gluten intolerance include symptoms of depression, steatorrhea, insomnia, and fatigue? I would assume that bloating and loose stools are common in both.

And according to wikipedia, non-Celiac gluten intolerance does not exist and not according to Web-MD either. Apparently it's not an official diagnosis, but maybe more of an allergy?

There are many different presentations to gluten induced illness. For some gluten intolerance is simply celiac that has not yet or even will not ever have serious enough gut effects to fit the classic celiac diagnosis.

DH is an example, not all folks with DH develop villi damage but they are still recognized as celiac. For some of us gluten's impact on the brain with symptoms like depression and anxiety and brain fog can exist for years before gut impact is felt. Many would call those folks gluten intolerant rather than celiac. For some the definition of gluten intolerance is simply that the villi are not totally destroyed or the biopsy was negative but the person still responds well to the diet.

The study of celiac and it's many presentations in the US is a bit centered on only the gut stuff. Many don't realize it can impact other organs. What many here call gluten intolerance really needs to be treated the same as biopsy proven celiac by the total exclusion of gluten.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,196
    • Most Online (within 30 mins)
      7,748
    Jen Fleming
    Newest Member
    Jen Fleming
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By xxnonamexx · Posted

      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Scott Adams · Posted

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      nothing has changed

      By Scott Adams · Posted

      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.