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Could Someone Explain Enterolab Test?

Gfresh404

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Gfresh404 Enthusiast
Gfresh404
Posted

I understand that it tests for antibodies in the stool, but what does it really tell you? I have had neg blood work, neg biopsy, but a positive dietary response. And how reliable are they, how accurate? Do they mean more than a biopsy/blood work?

Will the Enterloab test just tell me if I am truly sensitive to gluten? Thanks

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Lisa Mentor
Lisa
Posted
Will the Enterloab test just tell me if I am truly sensitive to gluten?

Maybe, but you already know that. I have never seen any independent studies as to the accuracy of Enterolab's testing.

ravenwoodglass Mentor
ravenwoodglass
Posted

As you said Enterolab looks for antibodies to gluten and if desired, casien, eggs and soy. If your body is producing antibodies to a substance that means it is trying to protect you from that substance. Someone who is not reactive will not produce antibodies.

Enterolab does not diagnose celiac, they simply tell you if your body is reacting to gluten.

Opinions on Enterolab vary here. I did not use them for diagnosis but did use them years later to look for a reaction to soy and casien and also to check what genes I have.

happygirl Collaborator
happygirl
Posted
Do they mean more than a biopsy/blood work?

In terms of Celiac, no.

Gfresh404 Enthusiast
Gfresh404
Posted
  • Author

Has anyone had a neg biopsy w/ neg blood work? but positive Enterolab results?

I would just like some confirmation that I have celiac, just for my own personal gratification. Does anyone have any suggestions? My next step is going for genetic testing.

happygirl Collaborator
happygirl
Posted

There are many people who have had positive E. results, but neg blood/biopsy.

Enterolab does not diagnose Celiac.

You may not have Celiac, and instead, a non-Celiac gluten intolerance.

Gfresh404 Enthusiast
Gfresh404
Posted
  • Author
There are many people who have had positive E. results, but neg blood/biopsy.

Enterolab does not diagnose Celiac.

You may not have Celiac, and instead, a non-Celiac gluten intolerance.

Would non-Celiac gluten intolerance include symptoms of depression, steatorrhea, insomnia, and fatigue? I would assume that bloating and loose stools are common in both.

And according to wikipedia, non-Celiac gluten intolerance does not exist and not according to Web-MD either. Apparently it's not an official diagnosis, but maybe more of an allergy?

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ravenwoodglass Mentor
ravenwoodglass
Posted
Would non-Celiac gluten intolerance include symptoms of depression, steatorrhea, insomnia, and fatigue? I would assume that bloating and loose stools are common in both.

And according to wikipedia, non-Celiac gluten intolerance does not exist and not according to Web-MD either. Apparently it's not an official diagnosis, but maybe more of an allergy?

There are many different presentations to gluten induced illness. For some gluten intolerance is simply celiac that has not yet or even will not ever have serious enough gut effects to fit the classic celiac diagnosis.

DH is an example, not all folks with DH develop villi damage but they are still recognized as celiac. For some of us gluten's impact on the brain with symptoms like depression and anxiety and brain fog can exist for years before gut impact is felt. Many would call those folks gluten intolerant rather than celiac. For some the definition of gluten intolerance is simply that the villi are not totally destroyed or the biopsy was negative but the person still responds well to the diet.

The study of celiac and it's many presentations in the US is a bit centered on only the gut stuff. Many don't realize it can impact other organs. What many here call gluten intolerance really needs to be treated the same as biopsy proven celiac by the total exclusion of gluten.

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes!
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      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

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      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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