Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could Someone Explain Enterolab Test?

Gfresh404

Recommended Posts

Gfresh404 Enthusiast
Gfresh404
Posted

I understand that it tests for antibodies in the stool, but what does it really tell you? I have had neg blood work, neg biopsy, but a positive dietary response. And how reliable are they, how accurate? Do they mean more than a biopsy/blood work?

Will the Enterloab test just tell me if I am truly sensitive to gluten? Thanks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted
Will the Enterloab test just tell me if I am truly sensitive to gluten?

Maybe, but you already know that. I have never seen any independent studies as to the accuracy of Enterolab's testing.

ravenwoodglass Mentor
ravenwoodglass
Posted

As you said Enterolab looks for antibodies to gluten and if desired, casien, eggs and soy. If your body is producing antibodies to a substance that means it is trying to protect you from that substance. Someone who is not reactive will not produce antibodies.

Enterolab does not diagnose celiac, they simply tell you if your body is reacting to gluten.

Opinions on Enterolab vary here. I did not use them for diagnosis but did use them years later to look for a reaction to soy and casien and also to check what genes I have.

happygirl Collaborator
happygirl
Posted
Do they mean more than a biopsy/blood work?

In terms of Celiac, no.

Gfresh404 Enthusiast
Gfresh404
Posted
  • Author

Has anyone had a neg biopsy w/ neg blood work? but positive Enterolab results?

I would just like some confirmation that I have celiac, just for my own personal gratification. Does anyone have any suggestions? My next step is going for genetic testing.

happygirl Collaborator
happygirl
Posted

There are many people who have had positive E. results, but neg blood/biopsy.

Enterolab does not diagnose Celiac.

You may not have Celiac, and instead, a non-Celiac gluten intolerance.

Gfresh404 Enthusiast
Gfresh404
Posted
  • Author
There are many people who have had positive E. results, but neg blood/biopsy.

Enterolab does not diagnose Celiac.

You may not have Celiac, and instead, a non-Celiac gluten intolerance.

Would non-Celiac gluten intolerance include symptoms of depression, steatorrhea, insomnia, and fatigue? I would assume that bloating and loose stools are common in both.

And according to wikipedia, non-Celiac gluten intolerance does not exist and not according to Web-MD either. Apparently it's not an official diagnosis, but maybe more of an allergy?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted
Would non-Celiac gluten intolerance include symptoms of depression, steatorrhea, insomnia, and fatigue? I would assume that bloating and loose stools are common in both.

And according to wikipedia, non-Celiac gluten intolerance does not exist and not according to Web-MD either. Apparently it's not an official diagnosis, but maybe more of an allergy?

There are many different presentations to gluten induced illness. For some gluten intolerance is simply celiac that has not yet or even will not ever have serious enough gut effects to fit the classic celiac diagnosis.

DH is an example, not all folks with DH develop villi damage but they are still recognized as celiac. For some of us gluten's impact on the brain with symptoms like depression and anxiety and brain fog can exist for years before gut impact is felt. Many would call those folks gluten intolerant rather than celiac. For some the definition of gluten intolerance is simply that the villi are not totally destroyed or the biopsy was negative but the person still responds well to the diet.

The study of celiac and it's many presentations in the US is a bit centered on only the gut stuff. Many don't realize it can impact other organs. What many here call gluten intolerance really needs to be treated the same as biopsy proven celiac by the total exclusion of gluten.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Churley
      - Churley replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    3. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    4. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    5. David Blake
      - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

      My question I have proposed to the FDA through their website is why Prescription and OTC drug manufacturers are not required to list what binding ingredients were used to bine the drug? They list this on Capsules which are made of cellulose but not on pills? As it stands I or my pharmacist must contact the manufacturer to find out and my list is long from...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,344
    • Most Online (within 30 mins)
      7,748
    Scottweath
    Newest Member
    Scottweath
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Churley
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Churley · Posted

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.