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Celiac And Hospital Stay


happygirl

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happygirl Collaborator

Everything you ever needed to know about a hospital stay while on the gluten free diet. Prepared by the Gluten Intolerance Group (GIG)

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Country Girl Newbie

This is great link. I am a licensed health facility administrator and there are so many things going on when a patient admits that this will be helpful to nurses. When a patient is able to provide basic helpful information to staff it gets everyone off to a better start. Unfortunately, as we have all experienced, celiac disease is not a disease people are well versed in and we as family members and patients must take control.

mimommy Contributor

Very useful info! Thank you for sharing. I printed it off for my files--you never know when you could need it. Thanks!

Lisa Mentor

Thank you for this!!!!! This is a great source. Everyone should have this information available!!!

lizard00 Enthusiast

Thanks for the info! I may have a hospital stay in my future... ;)

ang1e0251 Contributor

Thanks for that!! I'm going to show my husband. He has an employee and patient/client who have celiac disease.

taweavmo3 Enthusiast

Thank you so much for this! My 9 year old was recently in a children's hospital, and he didn't have much to eat at all. We had to let him have dairy for the few days he was there b/c it limited his food choices even more. The dietitian was really helpful, after realizing they basically had nothing for him to eat besides fruit and a few veggies, she had us make a list of his favorite foods, and she went out and bought them. She also interviewed us for ideas for their new menu. This was great, but I was a little shocked that we had to go to such great lengths just to get him a gluten & dairy free meal.

This handout will come in handy....I will have it packed in our hospital bag for next time. Thanks again!


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    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
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