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Advice For Itchy, Flakey Scalp


lilfrenchie

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lilfrenchie Rookie

HElp!!

I am not sure if this is gluten related or not, but for the past year or so I have had the worst scalp. Itchy, flaky, almost "soft" in a way. I can run my finger nail on it and a bunch of skin comes off. Not your regular dandriff. I am a recent celiac dx, within the past 6 months and am compliant with the diet as much as possible.

I am using scalp benefits shampoo/conditioner from aveda and have made sure my hair products (of which I use few of) are gluten free.

Has anyone else experienced this? I was hoping when I was dx that this would help it clear up my scalp, too, but now it has been months later and to no avail.

I just went to get my hair cut and the girl said that I even have scabs on my head because I itch it too much. YUCK!!! This is an embarrasing problem. I don't think it is DH but am not sure. I have been to a derm who just told me to put on some foam steroid but that didn't work very well.

What can give me relief? Any suggestions? I am dying to get this to go away for good! Think coconut oil rubbed into scalp would help?


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lovegrov Collaborator

Sounds like possible psoriasis. You may need to see a dermatologist, but I also use T-Gel plus.

richard

Mother of Jibril Enthusiast

I agree that psoriasis is a possibility. Seborrheic dermatitis and candida overgrowth can also cause flaking, but (as far as I know) these other conditions are not itchy. They also respond to different treatments (like anti-fungal shampoo). Psoriasis is itchy because your skin cells are turning over very rapidly... every few days instead of once a month. The flakes are the dead skin cells.

I've had terrible flakiness for about ten years! Hairdressers ALWAYS try to sell me products :( Right now I'm using a prescription zinc shampoo and taking zinc supplements. It seems to be helping... the flakes are greatly reduced. No more flakes on my pillows and clothes.

Sailing Girl Apprentice
HElp!!

I am not sure if this is gluten related or not, but for the past year or so I have had the worst scalp. Itchy, flaky, almost "soft" in a way. I can run my finger nail on it and a bunch of skin comes off. Not your regular dandriff. I am a recent celiac dx, within the past 6 months and am compliant with the diet as much as possible.

I am using scalp benefits shampoo/conditioner from aveda and have made sure my hair products (of which I use few of) are gluten free.

Has anyone else experienced this? I was hoping when I was dx that this would help it clear up my scalp, too, but now it has been months later and to no avail.

I just went to get my hair cut and the girl said that I even have scabs on my head because I itch it too much. YUCK!!! This is an embarrasing problem. I don't think it is DH but am not sure. I have been to a derm who just told me to put on some foam steroid but that didn't work very well.

What can give me relief? Any suggestions? I am dying to get this to go away for good! Think coconut oil rubbed into scalp would help?

Hi LilFrenchie,

I used to have the same exact problem, right down to the scabs from scratching too much. I couldn't wear anything dark in color or I'd look like I'd been out in the snow! I tried virtually every shampoo on the market, and none of them helped (plus some of them smelled so medicine-y that I could hardly stand to be around myself!).

I never did get "the horrible dandruff" diagnosed (I'm not big on doctors), but it was one of the things that lessened *significantly* when I first went gluten-free. I was mostly (but not completely) gluten-free for several years and it would come and go, generally coming back three days after gluten ingestion and lasting about two days.

Now that I'm obsessively gluten-free (no gluten-based vinegars or alcohol, no gluten-containing hair products, no processed foods, no grains, practically no restaurant meals, etc. etc.), it's GONE, and doesn't seem to come back even with CC.

I don't know how long you've been gluten-free, but if a dermatologist visit doesn't help, maybe it just needs more time to resolve. Good luck with it!

Amber M Explorer
HElp!!

I am not sure if this is gluten related or not, but for the past year or so I have had the worst scalp. Itchy, flaky, almost "soft" in a way. I can run my finger nail on it and a bunch of skin comes off. Not your regular dandriff. I am a recent celiac dx, within the past 6 months and am compliant with the diet as much as possible.

I am using scalp benefits shampoo/conditioner from aveda and have made sure my hair products (of which I use few of) are gluten free.

Has anyone else experienced this? I was hoping when I was dx that this would help it clear up my scalp, too, but now it has been months later and to no avail.

I just went to get my hair cut and the girl said that I even have scabs on my head because I itch it too much. YUCK!!! This is an embarrasing problem. I don't think it is DH but am not sure. I have been to a derm who just told me to put on some foam steroid but that didn't work very well.

What can give me relief? Any suggestions? I am dying to get this to go away for good! Think coconut oil rubbed into scalp would help?

What shakes me up here is the fact that you say,"and am compliant with the diet AS MUCH AS POSSIBLE." Sounds like you are not 100% gluten free......My scalp cleared with 100% gluten free. I also heard zinc helps, but you need to read the daily recommended amount, because it can be toxic if you get too much. Are you totally gluten free? And, could you be having "Cross Reactivity" with other foods?

mushroom Proficient
What shakes me up here is the fact that you say,"and am compliant with the diet AS MUCH AS POSSIBLE." Sounds like you are not 100% gluten free......My scalp cleared with 100% gluten free. I also heard zinc helps, but you need to read the daily recommended amount, because it can be toxic if you get too much. Are you totally gluten free? And, could you be having "Cross Reactivity" with other foods?

I am 100% gluten free and my scalp is worse than ever!! :(

lonewolf Collaborator

I have the same problem with my scalp. I have psoriasis. I am fanatically gluten-free and have been for several years. I'm not sure what to do either. No shampoo works well - even T-gel doesn't work anymore. The only time that my scalp (and skin) has ever been completely clear was when I was on large doses of prednisone. That was the only "good" side effect of it and I would never take prednisone just to clear my scalp/skin. One other time I was off dairy, eggs, soy, peanuts, red meat, nightshades and citrus fruits and my scalp and skin were pretty good.

I'm trying to eliminate ALL dairy and might eliminate eggs and maybe red meat again. I still avoid soy. I just started taking oil of oregano twice a day and bought some cod liver oil to take. Sometimes I rub olive oil into my scalp at night and sleep with it on. It relieves a little itching and dryness, but doesn't work as well as I hoped it would.

Good luck! If you find anything that helps please post it!


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mushroom Proficient
I have the same problem with my scalp. I have psoriasis. I am fanatically gluten-free and have been for several years. I'm not sure what to do either. No shampoo works well - even T-gel doesn't work anymore. The only time that my scalp (and skin) has ever been completely clear was when I was on large doses of prednisone. That was the only "good" side effect of it and I would never take prednisone just to clear my scalp/skin. One other time I was off dairy, eggs, soy, peanuts, red meat, nightshades and citrus fruits and my scalp and skin were pretty good.

I'm trying to eliminate ALL dairy and might eliminate eggs and maybe red meat again. I still avoid soy. I just started taking oil of oregano twice a day and bought some cod liver oil to take. Sometimes I rub olive oil into my scalp at night and sleep with it on. It relieves a little itching and dryness, but doesn't work as well as I hoped it would.

Good luck! If you find anything that helps please post it!

Hi Lonewolf: It is reassuring to know I am not alone. I have tried all the remedies, from zinc to T-gel to Dovonex, all the Rx shampoos, eucalyptus, tea tree. Have never tried prednisone because I do not tolerate it at all. I started off with dandruff as a kid, progressed to seborrhea and then to psoriasis, initially only small patches, then whole scalp, in my ears too (as well, of course, as all the mentionable and unmentionable places.) I think I am being punished. Back before I knew what psoriasis was Dh and I used to see these commercials on TV (can't remember the product being advertised for the life of me) talking about "the heartbreak of psoriasis" (don't know if they still do those any more. ) Anyway, we used to make mocking fun of "the HEARTBREAK of psoriasis". Well now I am experiencing it :lol:

I am soy free and nightshade free, don't do lactose but do do other dairy and eggs. Do you really think these things might make a difference?? And the nuts, red meat and citrus?? I would have to eliminate 75% more of my recipes! if I did that and would be really dietary challenged :(

Amber M Explorer
Hi Lonewolf: It is reassuring to know I am not alone. I have tried all the remedies, from zinc to T-gel to Dovonex, all the Rx shampoos, eucalyptus, tea tree. Have never tried prednisone because I do not tolerate it at all. I started off with dandruff as a kid, progressed to seborrhea and then to psoriasis, initially only small patches, then whole scalp, in my ears too (as well, of course, as all the mentionable and unmentionable places.) I think I am being punished. Back before I knew what psoriasis was Dh and I used to see these commercials on TV (can't remember the product being advertised for the life of me) talking about "the heartbreak of psoriasis" (don't know if they still do those any more. ) Anyway, we used to make mocking fun of "the HEARTBREAK of psoriasis". Well now I am experiencing it :lol:

I am soy free and nightshade free, don't do lactose but do do other dairy and eggs. Do you really think these things might make a difference?? And the nuts, red meat and citrus?? I would have to eliminate 75% more of my recipes! if I did that and would be really dietary challenged :(

I am eliminating one thing at a time and if I don't get better, then the next. But I notice a few of you are not 100% gluten free. Good luck, I know how hard it is!

mushroom Proficient
I am eliminating one thing at a time and if I don't get better, then the next. But I notice a few of you are not 100% gluten free. Good luck, I know how hard it is!

Well, I have eliminated gluten, soy, corn, lactose, nightshades and all my digestive problems have gone away. The intractable problems are RA and psoriasis, the other auto-immune things brought on by gluten. I have just started Humira injections to calm down the inflammation still raging through my body. I just was (self) diagnosed too late to be able to arrest those, I believe. (Age 69, gluten free 15 months.)

Amber M Explorer
Well, I have eliminated gluten, soy, corn, lactose, nightshades and all my digestive problems have gone away. The intractable problems are RA and psoriasis, the other auto-immune things brought on by gluten. I have just started Humira injections to calm down the inflammation still raging through my body. I just was (self) diagnosed too late to be able to arrest those, I believe. (Age 69, gluten free 15 months.)

That's why I am afraid my neurological problems are not going to completely go away. This dizzy feeling of falling all of the time and the facial and body twitches and numbess as well as visual disturbances just drives me insane. I don't go far from home. My social life is suffering. I do have a few good days here and there, and will be completely corn free as soon as my new supplements come. So far I'm gluten, soy, corn, yeast, lugume (allergies) free, and cut back to almost no nightshades. ( a few potatoes here and there, usually one per week.)

I started years ago with some of my symptoms and I wonder if I have permanent nerve damage. I have read that it takes a few years sometimes, so I will not loose hope! I realize I may have to give up more yet.

lonewolf Collaborator
Hi Lonewolf: It is reassuring to know I am not alone. I have tried all the remedies, from zinc to T-gel to Dovonex, all the Rx shampoos, eucalyptus, tea tree. Have never tried prednisone because I do not tolerate it at all. I started off with dandruff as a kid, progressed to seborrhea and then to psoriasis, initially only small patches, then whole scalp, in my ears too (as well, of course, as all the mentionable and unmentionable places.) I think I am being punished. Back before I knew what psoriasis was Dh and I used to see these commercials on TV (can't remember the product being advertised for the life of me) talking about "the heartbreak of psoriasis" (don't know if they still do those any more. ) Anyway, we used to make mocking fun of "the HEARTBREAK of psoriasis". Well now I am experiencing it :lol:

I am soy free and nightshade free, don't do lactose but do do other dairy and eggs. Do you really think these things might make a difference?? And the nuts, red meat and citrus?? I would have to eliminate 75% more of my recipes! if I did that and would be really dietary challenged :(

I remember the "heartbreak of psoriasis" commercials too. Didn't understand at the time what they meant.

I eliminated all of the above mentioned foods because I had horrible arthritis and was desperate to have some relief. I had an ELISA food allergy panel done and I showed reactions to a LOT of foods. For a whole year all I ate was fish, rice, some fruits and some vegetables and sunflower seeds. The arthritis went completely away and the psoriasis was almost completely gone. As I added foods back the psoriasis (and horrible dandruff) came back.

I still avoid gluten (fanatically), soy and most dairy, although I cheat with the dairy too much. I also don't eat much red meat. I think that all dairy, not just lactose, isn't good for psoriasis or arthritis. You might want to eliminate all dairy and see if that helps with your arthritis.

Several years ago I tried to challenge gluten, soy and dairy with disastrous results. My joints started aching, psoriasis got way worse and digestive problems came back, and I developed a kidney problem. I cut out all gluten, soy and dairy again and everything got better except for the psoriasis/dandruff.

I'm trying oil of oregano because I've read that there can be a relationship between strep infections and psoriasis. I used to have chronic tonsillitis and strep throat as a college student and wonder if there are some lingering strep germs somewhere inside. I'm also trying cod liver oil because it's a healthy fat and can't hurt with the dryness.

Amber M Explorer
I remember the "heartbreak of psoriasis" commercials too. Didn't understand at the time what they meant.

I eliminated all of the above mentioned foods because I had horrible arthritis and was desperate to have some relief. I had an ELISA food allergy panel done and I showed reactions to a LOT of foods. For a whole year all I ate was fish, rice, some fruits and some vegetables and sunflower seeds. The arthritis went completely away and the psoriasis was almost completely gone. As I added foods back the psoriasis (and horrible dandruff) came back.

I still avoid gluten (fanatically), soy and most dairy, although I cheat with the dairy too much. I also don't eat much red meat. I think that all dairy, not just lactose, isn't good for psoriasis or arthritis. You might want to eliminate all dairy and see if that helps with your arthritis.

Several years ago I tried to challenge gluten, soy and dairy with disastrous results. My joints started aching, psoriasis got way worse and digestive problems came back, and I developed a kidney problem. I cut out all gluten, soy and dairy again and everything got better except for the psoriasis/dandruff.

I'm trying oil of oregano because I've read that there can be a relationship between strep infections and psoriasis. I used to have chronic tonsillitis and strep throat as a college student and wonder if there are some lingering strep germs somewhere inside. I'm also trying cod liver oil because it's a healthy fat and can't hurt with the dryness.

Have you tried "Oil Pulling?" It is suppose to help all of our conditions. Check it out on Google.

I have been doing it for 6 weeks and seeing some results.

FruitarianGirl Newbie

I have heard that Manuka honey works wonders for Lupus scalp rashes which are similar.

Manuka honey reduces inflamation and kills bacteria, fungus and parasites. It is actually used in surgery in New Zealand. Apparently it kills micro-organisms by sticking to them and removing the moisture from them until they die. Therefore, it is effective on bacteria that is resistant to medication. It penetrates deep into the tissues and is so anti-inflamatory that if you have a swollen joint, for example, it will absorb throught the skin and target the swelling deep within.

Try Comvita 100% Active Manuka Honey New Zealand Wound Management UMF 18+. It's on Amazon (search by "Comvita Wound Care"). They also have their own site (combvita.com). For more information about Manuka Honey watch this youtube video: Open Original Shared Link or see the website manukahoneyusa.com.

If you use coconut oil, be sure to use virgin coconut oil. The best I know of is Tropical Traditions (tropicaltraditions.com). On their website they also provide information about virgin coconut oil in general. Virgin coconut oil is another miracle food that is anti-bacterial, anti-fungal, anti-parasitic and anti-inflammatory. To find it on amazon search by "tropical traditions 16 oz gold label"

C.S. Blogsmith Newbie
Have you tried "Oil Pulling?" It is suppose to help all of our conditions. Check it out on Google.

I have been doing it for 6 weeks and seeing some results.

Oil pulling has worked really well for my skin problems. A large portion of my body (including my scalp) was covered with a blistery rash (that appears to autoimmune related). It started healing immediately after I started oil pulling.

Amber M Explorer
Oil pulling has worked really well for my skin problems. A large portion of my body (including my scalp) was covered with a blistery rash (that appears to autoimmune related). It started healing immediately after I started oil pulling.

I had read that it did that, but it's always good to hear confirmations. Sometimes I wonder if the oil is making me feel better or not. Thanks

lonewolf Collaborator

I've read that oil pulling can be hard on your teeth. Mine are full of fillings and I have 2 crowns and a root canal. Is it worth trying or would it make my teeth fall out?

Amber M Explorer
I've read that oil pulling can be hard on your teeth. Mine are full of fillings and I have 2 crowns and a root canal. Is it worth trying or would it make my teeth fall out?

There is a thread that "Shay" started here on the site about oil pulling. A bunch of us are doing it and keeping tract there. Check it out. But I read a book on it that gets into all of that. If you have "mercury fillings" it can draw out the mercury as it detoxes and can cause the fillings to fall out possibly. I have about 6 thirty year old fillings and none have fallen out yet. (after over 2 months of daily oil pulling.

Just google oil pulling, there's a ton of information out there. I think it is helping me a many ways.

  • 9 months later...
StacyA Enthusiast

Lonewolf - Make sure you're watching your mercury intake, however, with the fish and the cod liver oil. Some symptoms of mercury poisoning look like celiac's.

tiredofbeingsickandtired Apprentice

Try an SLS, ALS- (sulfate) free shampoo and also try conditioner only washings. I started this a few months ago and my head cleared up well...I was losing my hair. Well I fell prey to the coupons and bought some SLS shamppo on sale, within a month my hair was falling out again and my head had the horrible rash like you described. I'm back to using Avalon peppermint shamppo 1-2 itmes a week and conditoner only washings 1-2 times a week with a water only wash 1-2 times a week.. For my conditoner only washes I use Giovanni tea tree conditoner mixed with water. I'm also terrbily allergic to sunflower oil, that will break me out all over in a few seconds after contact...learned the hard way with a dove conditioner.

  • 2 weeks later...
sickchick Community Regular
Try an SLS, ALS- (sulfate) free shampoo and also try conditioner only washings. I started this a few months ago and my head cleared up well...I was losing my hair. Well I fell prey to the coupons and bought some SLS shamppo on sale, within a month my hair was falling out again and my head had the horrible rash like you described. I'm back to using Avalon peppermint shamppo 1-2 itmes a week and conditoner only washings 1-2 times a week with a water only wash 1-2 times a week.. For my conditoner only washes I use Giovanni tea tree conditoner mixed with water. I'm also terrbily allergic to sunflower oil, that will break me out all over in a few seconds after contact...learned the hard way with a dove conditioner.

THIS IS A GODSEND... darling you are the best. I know exactly where to get Avalon shampoos and conditioners I have been brainstorming and brainstorming with no reason why my hair is falling out- I am not anemic all my vitamin levels are perfect. I started buying KMS dandruff shampoo a few months ago (b/c it's antifungal) thinking it would help- and no way! It made things worse! And Sodium Laureth Sulfate is ingredient #2!! ugh. you are the best :):):)

  • 3 months later...
tiredofbeingsickandtired Apprentice

THIS IS A GODSEND... darling you are the best. I know exactly where to get Avalon shampoos and conditioners I have been brainstorming and brainstorming with no reason why my hair is falling out- I am not anemic all my vitamin levels are perfect. I started buying KMS dandruff shampoo a few months ago (b/c it's antifungal) thinking it would help- and no way! It made things worse! And Sodium Laureth Sulfate is ingredient #2!! ugh. you are the best :):):)

awww I never saw this, so sweet. I'm definitly not the best LOL, very much a goober about most everything...but I did want to update. My skin/scalp BLEW UP after about a month of the Avalon, then California Baby - found out that I am allergic to anything with chamomile & lavender (or related plants)- a slight positive to tea tree. I'm trying Johnsons & Johnson no more tangles for curly hair, its SLS free and so far the past 24 hours have been dramatically different-no itch, redness, or weeping. Praying this works because I've broke the bank trying to find something that works.

Tummy Frustration Rookie

For what seemed to be forever, I dealt with dandruff--the worst was noticing it on dark clothing. Redken Anti-dandruff shampoo/conditioner is amazing! It did wonders with my scalp. I no longer have dryness/dandruff on my scalp (except verrrry little when the weather just changed) and nothing ends up on my clothing anymore.

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      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when gluten is consumed, it triggers an autoimmune reaction in this area which, of course, generates inflammation. The antibodies connected with this inflammation is what the celiac blood tests are designed to detect but this inflammation, over time, wears down the finger-like projections of the villous lining. Of course, when this proceeds for an extended period of time, greatly reduces the absorption efficiency of the villous lining and often results in many and various nutrient deficiency-related health issues. Classic examples would be osteoporosis and iron deficiency. But there are many more. Low D3 levels is a well-known celiac-caused nutritional deficiency. So is low B12. All the B vitamins in fact. Magnesium, zinc, etc.  Celiac disease can also cause liver inflammation. You mention elevated ALP levels. Elevated liver enzymes over a period of 13 years was what led to my celiac diagnosis. Within three months of going gluten free my liver enzymes normalized. I had elevated AST and ALT. The development of sensitivities to other food proteins is very common in the celiac population. Most common cross reactive foods are dairy and oats but eggs, soy and corn are also relatively common offenders. Lactose intolerance is also common in the celiac population because of damage to the SB lining.  Eggs when they are scrambled or fried give me a gut ache. But when I poach them, they do not. The steam and heat of poaching causes a hydrolysis process that alters the protein in the egg. They don't bother me in baked goods either so I assume the same process is at work. I bought a plastic poacher on Amazon to make poaching very easy. All this to say that many of the issues you describe could be caused by celiac disease. 
    • catnapt
      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
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