Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pins And Needles In Hands And Ocassionally Down Arm


UnhappyCoeliac

Recommended Posts

UnhappyCoeliac Enthusiast

???

I seem to breaking out in pins and needles all to frequently. Down my whole arm last night but normally happens say when im carrying a shoping bag home I get basically pins and needles till have to swap hands has anyone else encountered this?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



digmom1014 Enthusiast

I get it when I sleep on one side or the other-down that sides arm. It is very annoying. I looked it up on the web and it was stated that it is a blood-flow problem. SUPPOSINGLY, a chiropractor can make an adjustment in your upper neck and fix it. I have had too many other medical problems going on right now to test the theory out.

Good luck, it is a pain but, they also stated that it is not something to be worried about.

ravenwoodglass Mentor

Those may be something called parathesias. It might help a great deal to get some sublingual B12 and start taking it daily. Celiacs don't utilize B12 very well until we are well healed and the sublingual will bypass the damaged gut and go straight into the bloodstream through the mucous membranes in the mouth. It may also help a bit with fatigue.

It would also be a good idea if you haven't had your blood sugar levels checked recently to do so. Parathesias can be one of the signs of diabetes. Other signs of diabetes are if your peeing more than normal, losing weight and feeling tired.

tarnalberry Community Regular

how are you carrying the shopping bags? any shoulder injuries, tightness, etc? the bulk of the nerves that run into the hand pass into a very small space in the shoulder, at the tip of the collarbone under the humoral head, so it is not difficult at all to pinch the nerve bundle there.

Janessa Rookie

I get that when I accidentally eat gluten and also when I eat corn

Crystal Brown Rookie

I get this too. I am not sure what correlation it has with anything, other than poor blood circulation. I remember my Orthopedic surgeon recommended holding my arm over my heart to improve blood flow. Sometimes it helps and sometimes it doesn't. I think B12 sounds like a good idea! Something that I may try.

trents Grand Master

Carpal tunnel?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 3 weeks later...
UnhappyCoeliac Enthusiast

just updating this symptoms occur when:

-Extreme tiredness I am talking close to 40 hrs of no sleep and workouts in there too

-Today while playing cricket... sorta like baseball for the americans. I gave one almighty swing of the bat ended up actually hiting the ground and got pins and needles like crazy from the impact, they were quick to subside though

And where they are most prevalent: carrying the shopping home... I like coke so I may have a two litres bottom in say two bags of shopping with assorted other stuff but on the walk home which is not one mile it is a km or so I inevitably get pins and needles and must switch hands. for them to go away..

Could it just be fatigue?

I hadnt played cricket ina while and I have hit alot of things hard with a bat before and NEVER broken out in pins and needles worried :(:angry:;):huh::o <_ :( <

edit: No disrespect Trents but I am 22 diagnosed at 21 not quite gluten free yet. I really hope what I have may not be related to what you have because I havent even hiot 30 and I am having health problems galore it depresses me and makes me angry at the same time

ravenwoodglass Mentor
just updating this symptoms occur when:

-Extreme tiredness I am talking close to 40 hrs of no sleep and workouts in there too

-Today while playing cricket... sorta like baseball for the americans. I gave one almighty swing of the bat ended up actually hiting the ground and got pins and needles like crazy from the impact, they were quick to subside though

And where they are most prevalent: carrying the shopping home... I like coke so I may have a two litres bottom in say two bags of shopping with assorted other stuff but on the walk home which is not one mile it is a km or so I inevitably get pins and needles and must switch hands. for them to go away..

Could it just be fatigue?

I hadnt played cricket ina while and I have hit alot of things hard with a bat before and NEVER broken out in pins and needles worried :(:angry:;):huh::o <_ :( <

edit: No disrespect Trents but I am 22 diagnosed at 21 not quite gluten free yet. I really hope what I have may not be related to what you have because I havent even hiot 30 and I am having health problems galore it depresses me and makes me angry at the same time

Have you been checked for diabetes? I am concerned that you are going up to 40 hours without sleep, if I read that right. You may want to consider switching to a different beverage, something without caffine and preferablly without lots of high fructose corn syrup. The more this idea shakes you the more likely it is that your addicted to the Coke which is a strong indication that it is doing damage. In addition if your issues are being caused or compounded with gluten intolerance being 'not quite gluten free' is going to keep those issues progressing. Unfortuantely being gluten free is not something we can pick and choose days for. We need to stick with the diet strictly to heal.

  • 2 weeks later...
spinsterwitch Rookie

Hello Unhappy Coeliac:

What you are experiencing is peripheral neuropathy. It is common in Celiac (or coeliac) Disease. In fact, when I get gluten it recurs and I know that the gluten has worked its way out of my system when it goes away.

Mine showed up at night when I was sleeping...in both arms and would sometimes linger for hours after I woke. I didn't even realize it was a symptom until I stopped eating gluten and it went away.

You really need to get gluten out of your diet. Once you have and you notice a dissipation of other symptoms, but that symptom persists, you may want to go see your doctor as they may want to look at other neurological issues.

Peace,

Kari

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,202
    • Most Online (within 30 mins)
      7,748

    Nana Susie
    Newest Member
    Nana Susie
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.