Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free Diet Not Working Help!

bonnarooski

Recommended Posts

bonnarooski Newbie
bonnarooski
Posted

Hello, my boyfriend was recently diagnosed with celiac disease and hes been extremely strict about keeping gluten out of his diet he even washed every dish in his house to make sure there was no gluten on a dirty dish. We have analyzed everything he is eating (most of the stuff he eats come from wegmans where they put a gluten free label on the package and guarantee that it is not cross contaminated) his symptoms were gone for the first few days of the diet but are now coming back and worsening....anyone have any ideas why this could be or are having the same problem?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


psawyer Proficient
psawyer
Posted

Hello, and welcome.

You didn't say what his symptoms were, so I am guessing a bit here.

Lactose intolerance symptoms can be similar to some celiac symptoms. This can be temporary, as lactase, the enzyme to digest lactose, is produced in the villi. When the villi heal, lactase is again produced, but it may be useful to avoid most dairy products for the first few months.

The amount of damage to the body varies from person to person, and so does the time to heal and recover. During the early parts of the process, it can be like a roller coaster, with extreme ups and downs.

Gfresh404 Enthusiast
Gfresh404
Posted

My guess is that he is having issues with other foods. I would start out by cutting out dairy, soy, and corn. When I initially went gluten free I felt amazing then I had some setbacks. I have found that for some reason corn bothers me. A lot of people have sensitivities. When going gluten-free you expose yourself to a lot of foods that you did not normally eat before, so you might have a sensitivity or intolerance that you're unaware of.

curlyfries Contributor
curlyfries
Posted

Is he eating gluten-free breads of any kind? Often the fragile digestive system can't handle it at first. He may need to eliminate those until he has had some time to heal.

ravenwoodglass Mentor
ravenwoodglass
Posted

Another thought in addition to the great advice already given. You say he is your BF, to me that means you at least kiss. Have you made sure any lip products you use are gluten-free?

bonnarooski Newbie
bonnarooski
Posted
  • Author

Thanks everybody!! i have made sure that my lipgloss/makeup is gluten free so i think he is just gunna try to avoid lactose for the time being and maybe avoid soy like some of you have suggested

ANix Newbie
ANix
Posted

Here is a really good article I found for following a gluten free diet.

Open Original Shared Link

Also, often times people with gluten-intolerance also have dairy intolerance, yeast intolerance or other intolerances. I was wondering why I wasn't getting completely better until I discovered I also had dairy and yeast intolerances. My dairy intolerance is related to the casein in dairy, not the lactose.

Aana

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted
Here is a really good article I found for following a gluten free diet.

Open Original Shared Link

Also, often times people with gluten-intolerance also have dairy intolerance, yeast intolerance or other intolerances. I was wondering why I wasn't getting completely better until I discovered I also had dairy and yeast intolerances. My dairy intolerance is related to the casein in dairy, not the lactose.

Aana

Hi Aana, and welcome.

That cdhnfsite is a winner for newbies who don't know where to start.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,916
    • Most Online (within 30 mins)
      7,748
    kls888
    Newest Member
    kls888
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Help I’m cross contaminating myself,

      By knitty kitty · Posted

      I followed the Autoimmune Protocol Diet which is really strict for a while, but later other foods can be added back into your diet.  Following the AIP diet strictly allows you digestive system to heal and the inflammation to calm down.  Sort of like feeding a sick baby easy to digest food instead of spicy pizza.   It's important to get the inflammation down because chronic inflammation leads to other health problems.  Histamine is released as part of the autoimmune response to gluten.  High histamine levels make you feel bad and can cause breathing problems (worsening asthma), cardiovascular problems (tachycardia), and other autoimmune diseases (Hashimoto's thyroiditis, diabetes) and even mental health problems. Following the low histamine version of the AIP diet allows the body to clear the histamine from our bodies.  Some foods are high in histamine.  Avoiding these makes it easier for our bodies to clear the histamine released after a gluten exposure.   Vitamin D helps regulate the immune system and calm it down.  Vitamin D is frequently low in Celiacs.  The B Complex vitamins and Vitamin C are needed to clear histamine.   Supplementing with essential vitamins and minerals boosts your intestines' ability to absorb them while healing.   Keep in mind that gluten-free facsimile foods, like gluten-free bread, are not enriched with added vitamins like their gluten containing counterparts are.   They are empty calories, no nutritional value, which use up your B vitamins in order to turn the calories into fuel for the body to function.   Talk to your doctor or nutritionist about supplementing while healing.  Take a good B Complex and extra Thiamine in the form Benfotiamine (shown to promote gut health).  Most B Complex vitamins contain thiamine mononitrate which the body cannot utilize.  Meats and liver are good sources of B vitamins.   Dr. Sarah Ballantyne wrote the book, the Paleo Approach.  She's a Celiac herself.  Her book explains a lot.   I'm so glad you're feeling better and finding your balance!
    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure!
    • knitty kitty
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By knitty kitty · Posted

      Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night.  You might want to try that and see if that makes any difference.   Several slices of toast for breakfast sounds okay.  Just try to work up to the Ten grams of gluten.  Cookies might only have a half of a gram of gluten.  The weight of the whole cookie is not the same as the amount of gluten in it.  So do try to eat bread things with big bubbles, like cinnamon rolls.   Yeah, I'm familiar with the "death warmed over" feeling.  I hope you get the genetic test results quickly.  I despise how we have to make ourselves sick to get a diagnosis.  Hang in there, sweetie, the tribe is supporting you.  
    • Clear2me
      Gluten free nuts

      By Clear2me · Posted

      Thank you, a little expensive but glad to have this source. 
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      @knitty kitty  Thank you very much for the advice. I did the exam this morning, my doctor actually suggested me to take something called "Celiac duo test" in which I first do the genetic test and if it's positive, then I'll have to do the antigen blood test. I have to attend 1 month until my results are ready, so I have some weeks to increase the amount of gluten I eat daily. It will be hard because my health is not the best right now, but I also did a blood test to cheek my nutritional deficiencies. The results will arrive on Tuesday, so I can ask my doctor what should I do to control my symptoms and blood levels during this month. For now I'm resting and paying attention to what I eat— at least I don’t look like a vampire who just woke up, like I did yesterday. I'm still scared because is the first time I've felt this sick, but this is the right moment to turn things around for the better.  I realized that if I eat gluten at lunch I cannot finish the day properly, I become severely tired and sometimes my stomach hurts a lot - let's not talk about the bloating that starts later. Do you think is it ok to eat gluten just in the morning, like some cookies and slices of bread for breakfast? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.