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GottaSki Mentor

Mom, Property Manager -- currently awaiting the results of my biopsy to confirm celiac...been gluten free for 8 days. Praying that this is the correct diagnosis after years and years of docs looking at me with that ok, dear you are either nuts or depressed expression. I know that I have told at least 6 primary docs over the years that I get depressed after being sick for months on end, not sick because I'm depressed. This past year has been the worst of all...horrible bloating, achy joints, weight gain, extreme intolerance of heat (not sure many celiac's have this?) with C, not D....finally got so frustrated I've been like a dog with a bone insisting there must be a blood test that wasn't run on me. After nearly 50 blood tests coming back NORMAL my IgA tissue transglutaminase antibody (tTG) led to the possible celiac diagnosis.


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Bosque Rookie
Mom, Property Manager -- currently awaiting the results of my biopsy to confirm celiac...been gluten free for 8 days. Praying that this is the correct diagnosis after years and years of docs looking at me with that ok, dear you are either nuts or depressed expression. I know that I have told at least 6 primary docs over the years that I get depressed after being sick for months on end, not sick because I'm depressed. This past year has been the worst of all...horrible bloating, achy joints, weight gain, extreme intolerance of heat (not sure many celiac's have this?) with C, not D....finally got so frustrated I've been like a dog with a bone insisting there must be a blood test that wasn't run on me. After nearly 50 blood tests coming back NORMAL my IgA tissue transglutaminase antibody (tTG) led to the possible celiac diagnosis.

We will all pray for you that the doctors will finally have the wisdome to heal you body. I was sick for 16-18 years before I was diagnosed. You are deffently taking the correct steps. Many times, doctors are just to overwhelmed themselves to spend the time to really listen to their patients needs.

emcmaster Collaborator

I'm the head of Accounting for a tech company.

:)

FarmCat Newbie
Thanks everyone for your input. Being on sabbatical with Celiac
Bosque Rookie
I'm up for the commune idea--and I'll do the farming! Seriously.

About 8 years ago I was laid off from my demanding, anxiety-inducing pharmaceutical industry job. I was not able to get back into the professional arena because of the brain fog and anxiety that I now know were the effects that gluten and soy have on me! I have now been working for 5 years at a part-time, low-stress (low-pay) position at my local library. Last year, after eliminating soy from my diet, I felt enough better to start a part-time business as an organic vegetable grower; I sell at the local farmer's market. This year, with gluten out of my diet as well, I feel well enough to expand. Fresh tomatoes, anyone?

I think that I would be more willing to purchase something from someone with Celiac's. Where is your farmers market? I'll take some of those tomatoes!

1morething Explorer

Hi all, I'm a sales rep. for a beverage packaging company. My territory is Eastern Canada so I travel alot. It's not easy going to restaurant. I have to say I get glutened alot. When glutened, I get the C with bloating & pains . Not very comfortable when I'm talking with customers. But at least I'm not worried about having to run to the bathroom. Sometimes I wish that was the case, cause then that would make me pay more attention and be more careful of what I eat :(

Rachel

nb-canada Apprentice

Interesting topic! I am a Purchasing Agent for a hospital. Off work due to recent diagnosis of Hypothyroid and Shingles and contemplating retirement. :D


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Nadia2009 Enthusiast
As many on here, I was misdiagnosed with Celiac
ranger Enthusiast

Thank God I retired way early. I don't know how people work with celiac. All I've done for almost 2 years is stay close to the bathroom! Before that, I had a small restaurant. When I closed it, I decided to retire and work in my garden. That worked for a couple of years - untill the Big "D" hit me. Last year, I got only half of the garden even planted. It was just too far from the house. I've been gluten free for 3 months now and much better, but still not right. I hope I can do the garden better this year- it's more important now more than ever. Not only from the health standpoint, but also because of the rotten economy. Because of my past restaurant experience, I sometimes think about a gluten free restaurant but then remember the 80 hour work week. No, thank you! I'll be happy if I can just work in my garden and maybe creat a little art. My question isn't so much about what you all do, but how do you do it with this illness?

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    • JoJo0611
      I have had my endoscopy this morning with biopsies. My consultant said that it looked like I did have coeliac disease from what he could see. I now have to wait 3 weeks for the biopsy results. Do I continue eating gluten till my follow appointment in three weeks.  
    • cristiana
      Hi @emzie and welcome to the forum. Perhaps could be residual inflammation and bloating that is causing sensitivity in that area.  I was diagnosed with coeliac disease in 2013 and I remember some years ago my sister telling me around that time that she had a lady in her church, also a coeliac, who  had real pain when she turned her torso in a certain direction whilst doing exercises, but otherwise was responding well to the gluten-free diet. As far as I know is still the picture of health. I often end up with pain in various parts of my gut if I eat too much rich food or certain types of fibre (for some reasons walnuts make my gut hurt, and rice cakes!) and and as a rule, the pain usually hangs around for a number of days, maybe up to a week.   When I bend over or turn, I can feel it.  I think this is actually due to my other diagnosis of IBS, for years I thought I had a rumbling appendix but I think it must have just been IBS.  Reading the experiences of other sufferers, it seems quite typical.  Sensitized gut, build up of gas - it stands to reason that the extra pressure of turning can increase the pain. When I am glutened I get a burning, gnawing pain in my stomach on and off for some days - it isn't constant, but it can take up a few hours of the day.  I believe this to be gastritis, but it seems to hurt irrespective of movement.   Anyway, you are doing the right thing to seek a professional opinion, though, so do let us know how you get on.   Meanwhile, might I suggest you drink peppermint tea, or try slices of fresh ginger in hot water? A lot of IBS sufferers say the former is very helpful in relieving cramps, etc, and the latter is very soothing on the stomach. Cristiana
    • emzie
      Hi! One of the usual symptoms I have with a gluten flare up has deviated a bit and I thought I'd search for advice/opinions here. Also to see if anyone goes through similar stuff. Monday all of a sudden I got really bad pain in my stomach (centre, right under the chest, where the duodenum would be located). I ended up having to throw up for 2 hours, my body was trying to get rid of something from all sides and it was just horrible. Since then I havent been nauseous anymore at all, but the pain has stayed and it always worsens the moment i start moving. The more I move the more it hurts, and when i rest longer it seems to dissapear (no movement). I've had this before, but years ago I think around when I first got diagnosed with coeliac, where each time I moved, my stomach would hurt, to the point where I went to the ER because doctors got freaked out. That only lasted 1 night though, and Now it's already wednesday, so 3 days since then, but the pain persists and remains leveled. it doesn't get crazy intense, but it's still uncomfortable to the point I cant really go out because Im afraid itll turn into a giant flare up again. I couldn't think of where I could possibly have been glutened at this bad of a level and why it hasn't passed yet. I went to the GP, and as long as I have no fever and the pain isnt insane then its fine which I havent had yet. Tomorrow im also seeing a gastroenterologist specialized in IBS and coeliac for the first time finally in years, but I thought I'd ask on here anyway because it still hasnt dissapeared. It also hurts when someone presses on it. Maybe it's just really inflamed/irritated. I'm just frustrated because I'm missing out on my uni lectures and I do a sports bachelor, so I can't get behind on stuff & next to that i'm also going to go to the beach with my boyfriend's family this weekend: ( 
    • Flash1970
      Hi. So sorry to hear about your shingles. There is a lidocaine cream that you can get at Walmart that will help numb the pain.  That's what I used for mine. It can't be put near your eyes or in your ears. I hope your doctor gave you valacyclovir which is an antiviral.  It does lessen the symptoms. If it is in your eyes,  see an ophthalmologist.  They have an antiviral eye drop that can be prescribed.  Shingles in the eye could cause blindness.  I was unsure whether you have celiac or not.  If you do,  follow the diet.  I believe that extra stress on your body does affect everything. Shingles can recur. If you start getting the warning signs of nerves tingling,  see the dr and start taking the valacyclovir to prevent a breakout. If I sound technical,  I am a retired pharmacist. 
    • Scott Adams
      You are right to be proactive, as research does indicate that individuals with celiac disease can have a higher predisposition to enamel defects, cavities, and periodontal issues, even with excellent oral hygiene. While many people with celiac successfully undergo orthodontic treatment without complication, your caution is valid. It may be beneficial to seek a consultation with an orthodontist who is familiar with managing patients with autoimmune conditions or who is willing to collaborate with your daughter's gastroenterologist or a periodontist. They can perform a thorough assessment of her current oral health, discuss your specific concerns about recession and decay, and create a tailored hygiene plan. This second opinion could provide a clearer risk-benefit analysis, helping you decide if addressing the cosmetic concern of the lower teeth is worth the potential risks for your daughter, especially if they are not currently affecting function or her confidence. 
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