Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Dr's Appointment Today..hhmmm...


foodiegurl

Recommended Posts

foodiegurl Collaborator

Today I had a follow-up with my reg. doctor, the one who ordered the tests in the first place during my physical in February, which discovered I had h.pylori and Celiac.

I went in with paper and pencil ready to write down all my exact numbers of my lab work, however I wasn't able to get it.

I asked her what all the Celiac results were, and she showed me the piece of paper, and it just said "positive" I saw where it said ENDOMYSIAL and >100, but that was it...there was another one listed as well, Trans-something, but no actual numbers. Just that one 'positive'...I am not saying i am doubting I have it, but it doesn't seem nearly as detailed as others on here have had done.

I never really had symptoms before except gas/bloating, which are definitely better now. However, I bet for anyone who eliminates wheat might feel this way. Again, I am not questioning it, but just my own personal observation.

I also asked about my vitamins, since I have been veggie, I always get these tested every year anyway. My iron is low, but not anemic, the Dr said. B-12 is fine, folate is fine as well as calcium. Thyroid was fine also.

I am going back in month to retest the iron just to see if it makes a difference, though my iron has been at this level as long as i can remember, and I was anemic when I was pregnant in 2004/2005.

Should I be asking for anything for thorough or additional Celiac testing?

I have not had a biopsy. I am waiting another month to see how the h.pylori feels, and I may get it done for that. But, I large part of me doesn't want an official celiac dx on my record for insurance reasons, but then I am sure there are positive reasons to have the official dx as well.

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamaw Community Regular

You have the right to have copies of all your lab work, surgeries & so on. I would ask for copies of everything you have done that way you can reference back to see if things are improving. And the doctor should tell you what you are being tested for not just give you some vague answer. If they are not willing to explain & give copies of your results I would be searching for a new doctor....you don't even know if you are getting the correct tests for sure. Sorry for the rant but doctors make me so angry at times!

Takala Enthusiast

They don't have copy machines at this office ?

happygirl Collaborator

They are required by law to provide you with copies of records that you request. You may have to pay for them. Call them and ask them to mail you a copy of your records.

foodiegurl Collaborator

I know I can get copies, I am not questioning that. I had the paper in my hand with the results, and could not understand it. I believe she ordered a full celiac panel, and I know it is on their lab order forms, but being that this is the only one that was labeled 'positive'...do I need more proof?

Does ENDOMYSIAL being positive means 100% I have Celiac anyway??

Mother of Jibril Enthusiast

Endomysial antibodies are recorded as either "positive" or "negative," you don't get a quantitative score. My understanding is that EMA is very specific for celiac disease... the most specific out of all the tests.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,371
    • Most Online (within 30 mins)
      7,748

    Nipas
    Newest Member
    Nipas
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Katerific
      I was diagnosed with microscopic colitis and celiac a couple of years ago.  The GI doctor prescribed a course of budesonide, which moderately helped until I tapered off.    After a lot of ups and downs over the course of 2 years, I am finally in microscopic colitis remission.  Since I am also diabetic, I was started on metformin and Jardiance.  Metformin by itself helped moderately.  I added Jardiance and I was much better.  I stopped the metformin and relapsed and when I added it back, I regained remission.  I think metformin and Jardiance helped my colitis because they reduce inflammation in the gut.  Metformin is known to favorably modulate the gut microbiome and reduce inflammatory cytokines.  Similarly, emerging evidence supports the anti-inflammatory properties of SGLT2 inhibitors like Jardiance.  Once I was on both, the diarrhea stopped completely, even though nothing else ever worked long-term.  There is a Facebook group that can be very informative and helpful.  Look for "Microscopic Colitis and Lymphocytic Colitis Support Group.  You will find that members of the Facebook group identify other pathways to remission of microscopic colitis.
    • knitty kitty
      Hello, @Mrs Wolfe, I crushed three vertebrae moving a chest of drawers.  I take a combination of Thiamine Vitamin B1, Vitamin B12, and Pyridoxine B6.  Together these vitamins have an analgesic effect.  I think it works better than OTC pain relievers.   I also like  "Takeda ALINAMIN EX Plus Vitamin B1 B6 B12 Health Supplementary from Japan 120 Tablets" .   It's all three vitamins together in one pill.  Works wonderfully!
    • knitty kitty
      It's the Potassium Iodide in the HRT pills that is triggering Dermatitis Herpetiformis and the increased IGG levels.   The thyroid is stimulated by the Potassium Iodide, which stimulates immune cells to make more IGG antibodies.   Thiamine Vitamin B1 helps the thyroid function.  I like Benfotiamine and TTFD Thiamax.  
    • Mettedkny
      @Scott Adams Xiromed is one of the generic manufacturers of Progesterone pills.
    • Scott Adams
      The topic has come up in the forum a lot: https://www.celiac.com/search/?q=lymphocytic colitis&quick=1&type=forums_topic and here are discussions with "colitis": https://www.celiac.com/search/?&q=colitis&type=forums_topic&quick=1&search_and_or=and&sortby=relevancy
×
×
  • Create New...