Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cooking With 'whine'


mimommy

Recommended Posts

mimommy Contributor

Hi all. Not feeling good, need to unload. My little one was officially diagnosed in January, but we've been at this for a lot longer than that. I started her on gluten free in August '08 and never looked back--results miraculous. But recently (about 2 months ago), I made the decision to make our entire household gluten free. I had made too many cc mistakes with dd and also wanted to see if the diet would help my own symptoms of inflammation, D, C, skin irritations, neuro, and so on (too many to list :( ).

We've been doing great with it. I cook a lot, learn new recipes every week, buy many organic items--a regular gluten-free gourmet. I have to say, my 'itis' has been far, far less painful, frequent, and of shorter duration, but can't exclusively contribute it to the diet--just not sure. BUT, today I feel like I went on a bender last night (and I assure you, I didn't.) I had a small glass of red wine on Saturday, the first drink I've had in months. I also accidentally ate some gluten on Easter, and again last night--didn't realize there was wheat starch in the Honey Baked ham glaze. I looked into HB Ham this am and their website says it's in the glaze, even though I've read that it was removed from the ingredients.

The weird thing is, my daughter--the actual celiac in the family--did not react to it. However, she only ate a few bites? I am having the same old D, with some lovely stomach pain, and I feel like rats are gnawing at my connective tissues and joints and muscles. My knees HURT, darn-it!! My eyes are bothering me (the blurred vision and vertigo is getting worse and worse), my face is hot, and I have zero energy. But, I don't feel sick, not like a cold or flu.

Anyway, I was tested for celiac last month and the TtG was .6 on a reference range of >3.4 or something. And, my RA test was negative. Soy is definitely a culprit for me, but I've been sooo careful. I did indulge in a "fun-sized" Mounds Bar last night which has soy lecithin in it, but by the way I'm feeling it might as well have had a fifth of whiskey in it.

So (whoa is me, wowsy-wowsy-boo-hoo) I don't want to feel bad anymore and really don't want to discourage anyone, but for G's sake I work 2 jobs to pay for my groceries and I STILL feel this bad?

I'm going to drag myself off to do some laundry and try to give my little girl a decent birthday (she's 9 years old today :) ). As always, thanks for listening. You are my "Village".


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ranger Enthusiast

Sorry you feel so bad. It is frustrating to put so much effort into the diet and still feel bad. But, it does work and you'll feel better. Happy B-day to your little one!

mommida Enthusiast

Happy birthday to your 9 year-old!

Have you been keeping a food journal?

Look back over the labels to see if it is a different food allergy.

Since we live so close, I know a lot of bugs are going around too.

Hang in there! :rolleyes: I know how frustrating some days can be.

With the weather today, I feel chilled to the bone. I actually can't wait to fold the warm laundry!

DingoGirl Enthusiast

Mimms,

Sorry you're feeling so rotten. :(

the symptoms you're describing sound like things from which sooooooo many people suffer here, that are sometimes beyond the reach of a gluten-free diet. I had no idea you had this joint pain, vision problems, etc.

First, I'm concerned that your post will not be read by many due to its (admittedly quite funny) title, which sounds like it would be a thread about cooking only.....you might want to write another post with a title that FULLY captures your misery! (you could copy and paste the same post, just re-name it)

Was your blood work done after you'd been on the gluten-free diet? for - about a month, I'm guessing? That WILL change your results....body has a chance to heal, antibodies subside, and readings change once gluten is removed.

It's hard to say why your daughter didn't react to the ham....people all have different reactions to things. I once, in a very angry and fed-up period of time (had been gluten-free for about eight months) intentionally cheated two days in a row. (let me back up by saying that at that time, if I ingested a SPECK of gluten, I became quite ill about 12 hours later and for nearly half the day.) So - I ate three donuts one day.....absolutely NOTHING happened the next day. I waited. So taht day I ate an entire (small) loaf of banana bread. Still nothing. But - the pain began building.....and building......to the point that four days later on a Saturday night, I was jack-knifed in pain adn weeping. I won't even bother going into details about the poop :ph34r:

and the misery and fog in my brain.

All of my joint pain subsided after a few months on the gluten-free diet.......but sometimes there are other causes.....one must look into removing oxalates (sp?) or salicylates (I can't spell either of those), or dairy, you've already mentioned a problem with soy.

I'm sorry I can't offer more help....but many of your friends on the silly thread have been through this, and I think they will have more to say. :)

Keep reading here, hang tight, and happy b-day to your daughter. :)

SalmonNationWoman Newbie

Red wine could be a culprit; alcohol effects intestinal permeability which could make you more sensitive to other things. As others mentioned, you could be sensitive to sulfates, salicylates, oxylates and have a different gluten threshold than your daughter.

Did you know that what most people call "stomach flu" is usually mild food posioning?

Take care of yourself and stay well hydrated.

Jestgar Rising Star
Did you know that what most people call "stomach flu" is usually mild food posioning?

Based on what?

tarnalberry Community Regular
Based on what?

My docs have told me the same thing, IF the "stomach flu" lasts approximately 24-72 hours and tends to be fairly intense, and is confined to *just* the intestinal symptoms and fever. (The symptoms of the actual flu are fairly different.)

What gets tricky is that viral gastroenteritis and bacterial infections with similar symptoms are - well, similar. But both of them, and even parasites, can be considered types of food poisoning (norwalk - virus, e.coli - bacteria, giardia - parasite), but you can get them other ways too.

Some references found quickly online:

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

Thanks for posting those, Tiffany. It wasn't something I'd ever wondered about and it was nice to get some education.

mimommy Contributor

Thanks for your advice and well wishes, everybody.

Definitely NOT the flu (happens way too often). Not food poisoning either, unless I've been eating the same rotten food every few weeks for years. I'm pretty sure it wasn't the wine I had 3 days ago; I only had about 3 or 4 ounces--half a normal sized wine glass.

I know I ate one bite of some scalloped potatos my mil made on Easter, then thought better of it. Had a Coke the same day--the first glass of pop I've had in months. I really have no idea if there was soy in any of the food my mil prepared, but I avoided most of it anyway.

I think that to keep a food diary is the next step for me. That, and some reading glasses. Maybe some celebrex (ugh!).

By the way--Thanks for the b-day wishes for my daughter. I did what any self-respecting, joint aching, head spinning parent should do, I took her and her friend stomping through the mall and watched them spin around on the carousel :rolleyes:

Mommida, pm me some time. I'd love to know where in Michigan ("The 12% Unemployment Rate State!") you are. Take care--R

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      My Journey Continues some notes

    2. - Cecile replied to Cecile's topic in Related Issues & Disorders
      3

      Symptoms

    3. - Jmartes71 posted a topic in Introduce Yourself / Share Stuff
      0

      Not validated

    4. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      4

      New issue

    5. - Jmartes71 replied to chrish42's topic in Doctors
      3

      Doctors and Celiac.com

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,194
    • Most Online (within 30 mins)
      7,748

    TBH
    Newest Member
    TBH
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I have increased my vitamin intake Vitamin B Complex plus 2 Thiamax, NeuroMag, Benfotiamine with breakfast. I continue reading and watching gluten free items that I eat. Breakfast is Bobs Redmill gluten-free oatmeal with Chobani zero sugar yogurt a banana and blueberries. Lunch since im at a deli gluten-free is hard to come by so I stick with turkey with gluten-free Promise bread. Dinner varies like gluten-free pasta, tacos, chicken, sausage, meat etc. rice or take out from gluten-free places. I have decided to stay away from gluten-free pizza as I feel I felt weird with it unless its store bought frozen. I am going to try to make my own gluten-free bread, Bagels. I have been good with baking gluten-free treats like cookies, muffins. Snacks if its not fruit, veggies I grab a protein bar or chocolate guilty pleasure reeses, hersheys, York PP. I am going to start to use my fitness pal app to track what I eat and note when I feel off to see if I can pinpoint if a trend of a certain gluten-free food is a culprit. I noticed once in a while I feel a little bloated, gassy that I think is from the pizza so I am going to avoid it and continue narrowing it down. I have been doing very well and I have learned even if you think you are doing everything 100% gluten-free eating it can sneak in without you knowing. This year is more traveling which im afraid of but have already looked into gluten-free places in Nashville which they have and back to Aruba I went last year and have the gluten-free places already selected. Most restaurants I have been to have been very helpful with what to stay away from to avoid CC. If a place states they don't have any gluten-free the I stick with a salad or when I took my kids to breakfast as much as I miss the breakfast this place serves I played it safe with yogurt and a fruit bowl so at least my kids were happy to go there again. Local farmers market has great gluten-free items that I treat myself to like different types of breads, baked goods. My journey continues...
    • Cecile
      Thank you Scott for your wonderful info. I will pry my Doctor for more extensive blood testing. I appreciate your time. 
    • Jmartes71
      After waisted time of new care team, yet again EXHAUSTED saw new gi today in Modesto, though all my ailments im not getting any kind of concern of me being celiac and sentive to just about everything since menopause. Dr daid why don't I go see you guys because my blood shows zero for celiac. I told him im glutenfree since 1994 by colonoscopy with biopsy positive celiac sprue by GI.Its RIDICULOUS when im bringing in material from this site of knowledge as well as the autoimmune institute,and  there's zero interest on their part.Medical IS causing me depression.Im view as a disability chaser, IM STILL RECOVERING from being a bus driver that im still healing and having more issues, now I may have multiple sclerosis or meningioma. Ive reached out, wrote letters, NOT feeling well. This is inhumane. 
    • Jmartes71
      I was taking medicine for sibo but it was not agreeing with my stomach at all.Was on gabapentin but it amps me up.I was taking in morning because it wasn't allowing me to sleep.This has always been an issue with medicine and me.Even going to dentist, the good shot that numbs you once, I can't take because it makes my heart beat fast and I  get the shakes.I have to take the crappy stuff and get injected always more than 4 times always.Its infuriating 
    • Jmartes71
      I showed one doctor I went to once because completely clueless of celiac disease and yes that one was connected to a well known hospital and she said oh thats just a bunch of people that think they are celiac coming together. I said um no they have doctors and knowledge behind what is being written. So bay area is Downplaying this site! SADLY 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.