Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

"getting Glutened"


LandonL

Recommended Posts

LandonL Contributor

How do you keep from freaking out about wether or not you have been glutened or not? Let me be more specific. After you eat something, rather it be right after or a couple days after, how do you decipher between what was glutening and what was just a fluke feeling or something that just didn't agree with me. The reason why i'm asking, is like others have suggested i'm keeping a food journal, but I don't want to find something I like, eat it, then a couple of days later have some pain, or not so good feeling and blame it on that food if it wasn't glutening and then eventaully axe out all possible foods because at some point in time I felt something after eating it. My problem is before I found out I had celiac disease which I had never even heard of, I never even went to the doctor. I just "toughed" things out all the time. Now that I have been diagnosed with this, I attribute EVERYTHING to it and it sucks. If I wake up with a little muscle pain (after playing softball the night before) I wonder to myself oh no did I eat something with gluten. Or if I get a headache, I think must have got glutened. This is probably one of my biggest obstacles so far is just deciphering what is what? sorry this probably makes no sense to most, just feel lost sometimes in this whole process


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



miles2go Contributor

It makes sense to me. I think a lot of people are in a strange place when they are doing the food journal thing, at least I was. I have multiple allergies, too, so it was a matter of trying to make sense of the limited testing that I had to try and figure out what was okay to eat. My dietician told me to have three columns, one that was for 'bad' food, one for 'good' and one for 'questionable'. I still have a column for questionable foods four years later, but I can eat even the foods that I'm allergic to, as long as my body is fairly balanced on the allergy front. As far as you getting glutened, you will probably soon learn how to distinguish that from other things, once you stop eating gluten and then get glutened again. It's usually much more pronounced than it was before going gluten-free and for most of us, it's a specific reaction that is the same ol' thing every time.

Once you get your 'gluten-legs' you'll probably be able to narrow down what you ate that likely contained gluten. So, for me, for instance, it's always 15 minutes afterwards that I have debilitating cramps that come from my side and work their way toward my belly and the bathroom, or want thereof, comes right after that. No headache, no nausea, but brain fog and the shiz for the next 9 days. This is quite different from my sulfite reactions, which involve hives or my lobster reactions which involve my insides itching like crazy. HTH.

Margaret

sneezydiva Apprentice

I know EXACTLY what you're talking about. It is very hard to distinguish things at times, especially if dairy and/or high fiber foods aren't agreeing with your right now. Miles2go is right though, after a while, you will be better able to distinguish between true glutenings versus a random "tummy rumbling."

Also when keeping the diary, I look over things carefully, and if I prepared it myself, and I'm positive it is gluten-free, I know it was just a fluke. If it appeared gluten-free, but is a processed food, I carefully reexamine the ingredients and do a little internet searching. If other people seem to also have trouble with the food, I eliminate it from my diet. If it still appears safe, I wait a couple of weeks before trying it again. More often than not, it turned out to be okay. But the easiest way to keep things straight is to use whole foods to prepare your meals. and as little processed foods as possible. That way there are only a couple likely culprits.

LandonL Contributor

i don't worry so much bout the actual foods, as that is one thing i'm good about it using whole foods cause chicken and fish and veggies are tasty to me now just as much as before being celiac. It's all the cross contamination talk that terrifies me, i'm always scared I got cross contaminated even if I don't have reactions, I just always feel scared that a crumb found its way into my food, or something. its the FEAR that is my number 1 problem.

sneezydiva Apprentice

Another thing I keep track of in my diary is whether all my meals for the day were prepared at home. Not only do I record that th particular day was all homemade, but I also record streaks such as "4 days in a row eating meals from home" My house is gluten-free, so if I do get symptoms, and I look back over the last couple of days, I can immediately zero in on the day I ate out as the culprit. If everything was prepared at home, you know to either check up on certain processed foods, or you can be confident you didn't get any gluten, and your body is still just "working out the kinks"

ang1e0251 Contributor

It's all the cross contamination talk that terrifies me, i'm always scared I got cross contaminated even if I don't have reactions, I just always feel scared that a crumb found its way into my food, or something. its the FEAR that is my number 1 problem.

It is very frightening at first. But every time you go out and Don't have a problem, relive that time over and over in your head. Reassure yourself. You know what you're doing. Every time you do it, you'll do it better with more knowledge. When you have a slip, remember that too so not to repeat the same mistake. It's kind of like dating, you might get burned but you also might have a great time. So keep trying.

miles2go Contributor
i don't worry so much bout the actual foods, as that is one thing i'm good about it using whole foods cause chicken and fish and veggies are tasty to me now just as much as before being celiac. It's all the cross contamination talk that terrifies me, i'm always scared I got cross contaminated even if I don't have reactions, I just always feel scared that a crumb found its way into my food, or something. its the FEAR that is my number 1 problem.

Are you in a household that can be completely gluten-free? This is important, because you can weed out a whole lot of variables there. And, I guess, when I say the above, I mean no other humans consuming gluten, pets eating (any) gluten kibble/wet foods only with your utmost mindfulness and maybe some appliances and pots and pans kicking around from the olden days that are clean beyond belief? And, you don't eat out much?

B)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



adelaidez Rookie

Im very new here but i thought id start off here, i am new to this whole situation so im not sure how long it truly takes for my symptoms to go but i mean it takes a good week for them to subside but then the bloating isn

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    2. - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

    3. - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    4. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?

    5. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,878
    • Most Online (within 30 mins)
      7,748

    Peta Dunn
    Newest Member
    Peta Dunn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.