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Sick Again...d Bad!


Mrs. Smith

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Mrs. Smith Explorer

I havent been feeling myself for a few days. I had my 2 week massage yesterday. I am really sore, could not sleep lastnight, and today I have really bad D! I dont get it! I have been gluten-free for 5 mos. I started to feel really good, normal BM's, no pain for like 2 mos. Its like a friggin roller coaster. Im either really great or really sick. I did run out of acidophilis and digestion enzymes for a week and this all started. I got some again yesterday and took them. Does anyone have any advice? I feel like it's always something! I feel better but not as good as I would like to. Did anyone else have this roller coaster in the first year? Are my bowels screwed up? I also got some L-glutamine cause my friend in the nutrition dept at the health food store said its suppost to heal your bowels. Any info or advice or even words of encouragement would be great. Thanks! I feel like crap! :(


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ang1e0251 Contributor

I did have ups and downs in the first year. It was mostly do to my own stupidity. I would take for granted something was gluten-free and not check. Or I did something as simple as share jelly jars. I also had to learn that my body just doesn't like some teas or many alternate grains. I've been on a very low card diet and I'm actually feeling the best I have in a long time. Getting off the sugar has been a good step for me also.

I dont' know what to tell you besides listen to your body. It will tell you what it needs and doesn't need even if you really don't want to hear it. Sometimes I just didn't want to hear it.

Ahorsesoul Enthusiast

Digestion enzymes cause me the same symptoms as gluten. I won't take them anymore.

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
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      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
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