Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

47 And 3+ Weeks Ago It All Went Crazy

GB2000

Recommended Posts

GB2000 Newbie
GB2000
Posted

Can this just hit you all at once. I thought I could eat anything and Easter day it all went bad. I have been sick since and even in emergency. Tomorrow I go to the gastroligists. sorry about spelling. I cut out all gluten yesterday after the worse day on the toilet. After finding this site Thanks to Elizabeth Hasselback (GMA)I realized I have had this rash around the neck area and even wash tested (negative) for allergies. Bone pain and weird body pains have been the norm. what do I ask my doctor? thanks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Storm Apprentice
Storm
Posted

Sorry to hear you have been ill...

I would be up front and ask your doctor if it could be celiacs disease!

Been very open with them, my doctor asked if my bowel movements were regular, what colour the stools were etc

Strange I know, but she said it was part of the diagnosis. I was completely open and upfront with all my symptoms and was finally correctly diagnosed after many many months of illness, pain and substantial weight loss...

Good luck, I hope it goes well.. please let us know what the outcome is

GottaSki Mentor
GottaSki
Posted

Celiac has a variety of symptoms...not all are the commonly know ones...best to see a GI that "wants a possible celiac case"...these words came from the primary doc that diagnosed me after many years of mis/undiagnosed problems.

Welcome!

flourgirl Apprentice
flourgirl
Posted

I've had health problems all of my life. 2 years ago I fell apart. My doctor was looking for cancer! I truly thought I was dying. When I was scheduled for colonoscopy, it was decided last minute to do an endoscopy at the same time. Thank God! Finally I had a diagnosis, which I had never heard of, and a new road to travel. While I am doing so much better I still have a ways to go. Have discovered recently that I also have Sjogrens, Fibromyalgia and Raynauds....all auto-immune disorders. Good luck with your visit. Request endoscopy if your doctor doesn't. Keep in mind that a negative result is not always actually negative. Once you've had your tests, even if you don't get a positive diagnosis, you can try the gluten free diet anyway and see if it helps. It certainly couldn't hurt. By the way...I'm 50 :)

msmini14 Enthusiast
msmini14
Posted

I didnt get digestive problems until I was 25 years old. My aunt didnt have problems until she was 16. I am not sure what triggers this. I had food poisoning and was never the same after that.

But I had all the other signs growing up, depression, mood swings, irritability, etc.

Only thing you can do is talk to your doctor and ask him to test you. I wish the best of luck to you and hope you feel better soon.

GB2000 Newbie
GB2000
Posted
  • Author

Finally a doctor that makes sense. Says Viral and after we fix this we retest for Celiac. Thank for all your support. Also says you can have it and a stomach issue sets it free. makes more sense now.

SGWhiskers Collaborator
SGWhiskers
Posted

Although looking back, there were mild symptoms for 10+ years, my "mystery illness" went from normal to crisis over the course of a weekend. It hit hard enough that I went to the urgent care/ER and probably should have gone to the hospital.

Good luck.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mattathayde Apprentice
mattathayde
Posted
I didnt get digestive problems until I was 25 years old. My aunt didnt have problems until she was 16. I am not sure what triggers this. I had food poisoning and was never the same after that.

But I had all the other signs growing up, depression, mood swings, irritability, etc.

Only thing you can do is talk to your doctor and ask him to test you. I wish the best of luck to you and hope you feel better soon.

hmmm you know i had food poisoning around 14 and i guess my gi issues got worse after that (but i did have some issues before that). other than some GI issues i didnt have any symptoms really other than a bit of being tired, around senior year of highschool i started to gain weight ad then freshman year of college i got more brain fog and slightly depressed.

but ya the symptoms can come on over time or all of a sudden, a stressful event could have triggered more to happen and also i wouldnt be surprised if a stressful event could bring it on all together if you have the genetics for it since it is basically an autoimmune disease that is triggered by something

-matt

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748
    Tara M
    Newest Member
    Tara M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      The Happy Tart review

      By Scott Adams · Posted

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Stomach burning and neuropathy

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.