Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

First Anniversary


Rondar2001

Recommended Posts

Rondar2001 Apprentice

Today my daughter has been gluten free for 1 whole year. I can't believe the difference!

She has gained almost 20 lbs and 3 inches and looks healthy.

I remember my first shopping trip to Walmart, I bought potato flour (even thought I had no clue what to do with it) and Lays potato chips as these were all I could find that I knew were safe for her. I ended up in tears in the isle wondering what I was going to feed this child.

Now I find the diet second nature, I've even managed to control my dislike of baking to make her cookies and muffins on a regular basis. Its amazing how so many dishes we used to eat can be safe for her just by swapping out regular flour with a gluten free blend.

For all you newbies, it does get better - quicker than you can imagine right now.

For all of those that have been there, done that, thank you so much for all of your great advice to get us to this point!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



angel-jd1 Community Regular

Congrats!! That first year is the hardest to get through. :) It is amazing how quickly things improve, especially in little ones. Glad things are looking up!! Happy Anniversary!

-Jessica

eringopaint Newbie

Congrats on the 1 year anniversary!!! So happy to hear your daughter is flourishing. :-)

I hit my 1 yr mark in April, and yes the first 6 months were tough but it does keep getting easier. And I too have become a regular baker after having an aversion to baking for as long as can remember.

erin

The Kids Folks Apprentice

Congratulations and big hugs to you and your daughter. Best wishes for a life time of healthiness! :D

sugarsue Enthusiast

Awesome! Congrats on one year! I agree, it does get better with time and does seem pretty normal now. Her weight gain and growth is amazing. I wish we would see that at our one year mark but it's not looking that way. GOOD JOB Mom and Daughter!

Susan

Amyleigh0007 Enthusiast

Congratulations to you and your daughter! Doesn't it feel great to get through the first year?!

ang1e0251 Contributor

Kudos to your daughter and her amazing recovery!! Also thanks to you Mom for caring enough to get a diagnosis and all the battles you have fought for her. She very lucky to have such a caring parent!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lizard00 Enthusiast

Congratulations! You made it through the toughest part :)

bridgetsmommy Rookie

Congrats to you and your daughter (and family)! We've only just begun this "journey" and it's so encouraging to hear about the positive outcome you've had. I hope I'm feeling the same way next year.

All the best!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,330
    • Most Online (within 30 mins)
      7,748

    TamSta214
    Newest Member
    TamSta214
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • somethinglikeolivia
      Responding to both of your replies: thank you so much!! That makes a lot of sense and helps me feel better about it - I really appreciate the clarification and recommendations. You guys have been very helpful and this site is a gift. Thanks again! 
    • trents
      I think giving attention to the main sources of exposure such as direct consumption of gluten and gross cross contamination with reasonable attention to handwashing and thorough counter top cleaning and dishwashing should cover cross contamination issues. The biggest precautions would be eating in restaurants and at other's homes. Don't get paranoia over it and don't make trouble where there is none. As far a what you communicate with your physicians, just tell them what you know. Strongly positive antibody tests, negative biopsy, positive symptoms when consuming gluten with clearing of symptoms when gluten free.  
    • trents
      Occasionally we do see anomalies where celiac antibody tests are positive but biopsies are negative, and even visa versa. Sometimes, damage to the small bowel lining is patchy and unless numerous samples are taken from various areas, the damage can be missed. So, there's that issue as well. I think in your situation, the tell-tale indicator is the difference in symptoms between when you were off gluten and when you were consuming it.   
    • somethinglikeolivia
      Okay, that makes sense - so based off of the 90% odds that it is positive, it’s worth switching to fully gluten-free? How strict do I need to be with cross-contamination, handling, etc. Is it something that can go by feel, for instance if I feel okay making my family sandwiches and handling the bread as opposed to eating it, or is it something that is causing silent damage even if I feel fine? Also, do I make it clear to my rheumatologist and other medical providers that I am celiac? Or will they veto that due to negative endoscopy? Thanks again for the help!
    • Scott Adams
      If you look at the article that I shared you will notice that "The test is estimated to have a sensitivity of approximately 90%, which means that it correctly identifies 90% of people with celiac disease. It also has a high specificity of around 95%, which means that it correctly identifies 95% of people who do not have celiac disease," so your results indicate that you very likely have celiac disease, especially if you also have symptoms while eating gluten that go away when you stop eating it (although many celiacs don't have obvious symptoms).
×
×
  • Create New...