Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

A Little Advise Needed


egmag29

Recommended Posts

egmag29 Newbie

Hi Having been Gluten free for almost a year I still don't know all the forbidden foods and where gluten may be hiding. So I have a list of foods that I like to eat and was wondering if anyone would know if they are either gluten free or if only certain brands are gluten free.

Hummus ( I have only eaten brands from a grocery store i.e Josephs brand)

Canned Tomatos (normally store brand)

Yogurt (stoneyfields)

trail mixes (for some reason I have recently been getting a reaction to these! I look at the ingredients and don't see any indication that there is any gluten in them)

I am also curious to know if anyone gets more severe symptoms than they ever used to after follow a gluten-free diet and then accidently ingesting some. I seem to be more sensitive to gluten then I have ever been which is tough when I am still learning where it is hidden.

Thanks for any info that people can send me. :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

https://www.celiac.com/st_main.html?p_catid=12

Here is a link to some lists of forbidden foods, safe foods, and extra things to be sure about.

It all depends on the brands that you get. Yoplait will clearly say wheat,rye, barley,oats on the label.

General Mills and Kraft will also clearly list anything. These are some brands beloww that Richard posted a while ago and they will clearly list wheat,rye,barley, oats on the label.

Aunt Nelly's

Balance

Baskin Robbins

Ben & Jerry

Betty Crocker

Blue Bunny

Breyers

Campbells

Cascadian Farms

Celestial Seasonings

Country Crock

Edy's

General Mills

Good Humor

Green Giant

Haagen Daz

Hellman's

Hershey

Hormel

Hungry Jack

Jiffy

Knorr

Kozy Shack

Kraft

Libby's

Lipton

Martha White

McCormick

Nabisco

Nestle

Old El Paso

Ortega

Pillsbury

Popsicle

Post

Progresso

Russell Stover

Seneca Foods

Smucker

Stokely's

Sunny Delight

T Marzetti

Tyson

Unilever

Wishbone

Yoplait

Zatarain's

For other things...you should check lipsticks, lotions, etc. Lipsticks often contain wheat starch. Things like lotions can easily get on your food since it is on your hand. There is a list on the link for extra things to watch out for.

Ifyou find a brand you do not know about you need to call the manufacturer...gluten can be hidden under many things...check the forbidden list...you can always post questions on here...I am sure someone will know the answer. Everyone here is great and very supportive :D

The reason why you still may be feeling sick is that you could be getting some gluten into your system. Do you have a separate toaster in your house? Is there gluten containing foods in your house?

If you have any more questions feel free to ask and you can email me anytime. Good luck :D

SharonF Contributor

Yes, I have noticed that symptoms are more severe when I accidentally ingest gluten, now that I have gone gluten free.

Canadian Karen Community Regular

I notice that you a a mom to two children, one being 1 yr old. Are you being very careful when preparing their foods? Or is your whole house gluten-free?

Karen

SharonF Contributor

No, my whole house is not gluten-free, since I am the only with celiac (so far as we know). I am careful when preparing their foods, though. It gets frustrating to have to wash my hands every time I dole out teddy grahams, or make a PB&J for the older child, but I do it because it's more frustrating to be sick.

KaitiUSA Enthusiast

I am also the only one in the house with celiac...my mom had a wheat allergy though so she is on the diet with me....my dad follows it too when he is not at work...we sometimes get my dad prepackaged gluten containing foods for him to eat at work but everything in the house we eat here is gluten-free because it would be more of a frustration and risk.

If you don't like the whole washing your hands after handling glutened foods then is there something they would like just the same that is in fact gluten free? That way you wouldn't be frustrated or sick.

Are you careful with glutened products as well?

SharonF Contributor

Yes, I'm careful--separate pots for cooking, separate utensils, separate peanut butter jars, etc.

However, I'm not going to switch the whole family to gluten-free just to make things more convenient for me. With gluten-free foods costing so much more, I can't afford it.

And I'm not getting "accidentally glutened" all the time, if that's your fear. The last time it happened, I believe McDonalds and a non-dedicated fryer was to blame.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest gfinnebraska

You will find that the more gluten-free you get and the more healed you are, the more of a reaction you will have when you accidentally get gluten. Hang in there!!! :) I hate the washing of hands constantly too, and it is really hard, when cooking, to remember NOT to lick something that gets on my fingers!! Ha! I have caught myself many times about to lick something yummy off that is full of gluten! Eeek!

AND, the most frustrating part... knowing how much salt and pepper to put in a cream sauce without tasting it!!! Ugh! :blink:

lotusgem Rookie

Hi! Just putting in my two cents worth... In the 9 months that I have been gluten free, I've been "glutened" twice and both times it was immediate and painful, much more painful than before the diet. I tend to be very detail-minded and some might say compulsive, so for the sake of my safety and sanity, we have a gluten free house. I'd go nuts, otherwise. It makes me feel selfish sometimes, knowing that there is something that the others might enjoy that is on the list of forbidden foods, but then, it's a matter of my safety as opposed to a moment of sense pleasure for them. Ultimately, they understand this and are sympathetic. I try to make good foods and every so often bake some kind of treat, like cookies, so the family stays happy. Kimberly's comment about not knowing how much salt to put in the cream sauce, cracked me up. In my little town, there is a baker who is diabetic. Her cookies and cakes are, in my opinion, highly oversweetened, owing to the fact that she is unable to sample her own baking. Fortunately for her and her business, though, plenty of people here enjoy her wares just the way they are!

Take care.

Paula

Merika Contributor

You mentioned trail mix. Did you call the company and really quiz them? I've found that things like dried fruits can be dusted with flour. Personally I've run into rice flour (fine) and oat flour (not fine). I presume someone out there may use wheat flour. They dust things to keep them from sticking together in the packaging.

So, the company who makes the trail mix may not add any flour, but the source they get their ingredients from might. Oh, nuts can be coated too....

Merika

jknnej Collaborator

You know, I thought the make-up was just silly but I swear last week I put on lipstick (it was Mac lip gloss and I thought their make-up was gluten-free, but I got terribly sick. I guess it really can give you a bad reaction. That's the worst I've been sick since starting the diet.

I've stopped wearing make-up for awhile until i have the time to research and find a brand that is convenient to purchase in terms of location and price.

What i was going to add is that sometimes people think oats are gluten-free and we're not supposed to have them....yes the trail mix can be dangerous.

If you like trail mix, get the EnerG Foods kind, it is wonderful and gluten-free, dairy free, and yeast free:)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jane02 replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

    2. - Jane02 replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

    3. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

    4. - trents commented on Amiah's blog entry in Amiah
      1

      Help!!

    5. - Scott Adams replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,581
    • Most Online (within 30 mins)
      7,748

    MaggieSc
    Newest Member
    MaggieSc
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jane02
      Sorry, I just realized how old this thread is and only read the initial post from 2021. I'll have to catch up on the comments in this thread. 
    • Jane02
      Sorry to hear you're going through such a hard time. It would be worth looking into MCAS/histamine issues and also Long Covid. Perhaps there is something occurring in addition to celiac disease. It would be worth ruling out micronutrient deficiencies such as the b vitamins (B12, folate, B1, etc), vit D, and ferritin (iron stores). 
    • knitty kitty
      This sounds very similar to the neuropathic pain I experienced with type two diabetes.  Gloves and boots pattern of neuropathy is common with deficiencies in Cobalamine B12 (especially the pain in the big toe), Niacin B3, and Pyridoxine B6.  These are vitamins frequently found to be low in people with pre-diabetes and diabetes.  Remember that blood tests for vitamin levels is terribly inaccurate.  You can have vitamin deficiencies before there are any changes in blood levels.  You can have "normal" serum levels, but be deficient inside organs and tissues where the vitamins are actually utilized.  The blood is a transportation system, moving vitamins absorbed in the intestines to organs and tissues.  Just because there's trucks on the highway doesn't mean that the warehouses are full.  The body will drain organs and tissues of their stored vitamins and send them via the bloodstream to important organs like the brain and heart.  Meanwhile, the organs and tissues are depleted and function less well.   Eating a diet high in simple carbohydrates can spike blood sugar after meals.  Eating a diet high in carbohydrates consistently over time can cause worsening of symptoms.  Thiamine and other B vitamins like Niacin B3 and Pyridoxine B6, (which I noticed you are not supplementing), are needed to turn carbs, proteins and fats into energy for the body to use.  Alcohol consumption can lower blood sugar levels, and hence, alleviate the neuropathic pain.  Alcohol destroys many B vitamins, especially Pyridoxine, Thiamine and Niacin.  With alcohol consumption, blood glucose is turned into fat, stored in the liver or abdomen, then burned for fuel, thus lowering blood glucose levels.  With the cessation of alcohol and continued high carb diet, the blood glucose levels rise again over time, resulting in worsening neuropathy.   Heavy exercise can also further delete B vitamins.  Thiamine and Niacin work in balance with each other.  Sort of like a teeter-totter, thiamine is used to produce energy and Niacin is then used to reset the cycle for thiamine one used again to produce energy.  If there's no Niacin, then the energy production cycle can't reset.  Niacin is important in regulating electrolytes for nerve impulse conduction.  Electrolyte imbalance can cause neuropathic pain.   Talk to your doctors about testing for Type Two diabetes or pre-diabetes beyond an A1C test since alcohol consumption can lower A1C giving inaccurate results. Talk to your doctors about supplementing with ALL eight B vitamins, and correcting deficiencies in Pyridoxine, Niacin, and B12.  Hope this helps! Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ P. S.  Get checked for Vitamin C deficiency, aka Scurvy.  People with Diabetes and those who consume alcohol are often low in Vitamin C which can contribute to peripheral neuropathy.
    • Scott Adams
      I’m really sorry you’re dealing with this—chronic neuropathic or nociplastic pain can be incredibly frustrating, especially when testing shows no nerve damage. It’s important to clarify for readers that this type of central sensitization pain is not the same thing as ongoing gluten exposure, particularly when labs, biopsy, and nutritional status are normal. A stocking/glove pattern with normal nerve density points toward a pain-processing disorder rather than active celiac-related injury. Alcohol temporarily dampening symptoms likely reflects its central nervous system depressant effects, not treatment of an underlying gluten issue—and high-dose alcohol is dangerous and not a safe or sustainable strategy. Seeing a pain specialist is absolutely the right next step, and we encourage members to work closely with neurology and pain management rather than assuming hidden gluten exposure when objective testing does not support it.
    • Scott Adams
      There is no credible scientific evidence that standard water filters contain gluten or pose a gluten exposure risk. Gluten is a food protein from wheat, barley, or rye—it is not used in activated carbon filtration in any meaningful way, and refrigerator or pitcher filters are not designed with food-based binders that would leach gluten into water. AI-generated search summaries are not authoritative sources, and they often speculate without documentation. Major manufacturers design filters for water purification, not food processing, and gluten contamination from a water filter would be extraordinarily unlikely. For people with celiac disease, properly functioning municipal, bottled, filtered, or distilled water is considered gluten-free.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.