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Its Been 3 Months

Nicole H.

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Nicole H. Explorer
Nicole H.
Posted

Ok so in short, I was diagnosed in Feb. with celiac. My blood test results of the Tga? or Tgg?, I cant remember what its called but anyway the results were 100. So I had a endoscopy to see and it was confirmed. 3 months later and had another blood test and it came out 19. So my doctor said he was encouraged and we will check again in 3 months. Right away after I went gluten free my symptoms went away! Especially the loud gas and being gassy all the time. So today I am experiencing the loud gas again. Just since 4:00. And I had already had gone to the bathroom(#2) twice once in the morning and then in the afternoon and the third time when I got home there was an awful lot in the toilet. I cannot understand because I dont eat that much! but anyway, could this be a cross contamination issue? Or could it have been the 5g of fiber I added to my milk this morning(with FiberSure), and I also had broccoli with my lunch. Am I crazy for looking into this too much?!

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happygirl Collaborator
happygirl
Posted

Nicole,

Did you eat anything different today than normal? Did you eat anything not prepared by yourself?

Is the fiber a new addition?

I hope you feel better soon.

Liveenjoylife Apprentice
Liveenjoylife
Posted

I am the same way. Seems to be a lot more of my ummm situation when had gone to the bathroom. :blink: Your b.m will never be like it was when you did eat wheat. I have learned that. It sure does not sound like a contamination issue at all.

lizajane Rookie
lizajane
Posted

well, my pre-diagnosis issue was constipation... but to me, it sounds like contamination because i just took too many risks and ended up in a similar spot as you describe. just with constipation instead of frequent visits to the bathroom. the good news is that after only 2 days of being very careful, the gas has let up. i was super foggy and sleepy on monday, better yesterday, and most of today i felt pretty normal.

Nicole H. Explorer
Nicole H.
Posted
  • Author
Nicole,

Did you eat anything different today than normal? Did you eat anything not prepared by yourself?

Is the fiber a new addition?

I hope you feel better soon.

Everything I ate I had made myself. And theres NO gluten in this house! haha...The fiber is a once and a while thing Like when Im feeling like I cant go...So im guessing it was that(but it was only 5 grams thats why I was confused) It has let up and I am fine today so I do feel better! thank you guys!

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      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Samanthaeileen1 · Posted

      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
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      Thoughts? Non-endoscopic Celiac diagnosis in two year old

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      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By RMJ · Posted

      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Samanthaeileen1 · Posted

      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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