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Question About Celiac...


Becci

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Becci Enthusiast

Two years ago, almost immediately, I started getting weird symptoms.

Bad Nausea almost daily

Lost 30 pounds in about two-three months without trying/no diet change (came about a month after the nausea)

Dizziness

Weakness

(both the dizziness and weakness got to the point I either had to sit down or I would fall down)

Hard to concentrate

not (regular) bowel movements

hard time sleeping all of a sudden

Teeth turning yellow, even though I brush my teeth daily, even used a whitening paste for a while...

I have seen my doctor about it atleast 10 times, and everytime I mention something I would like for her to check, she comes up with some reason not to.

I do not have the money to go see a doctor about it, so I started a gluten-free diet, and within Days started feeling better.

I haven't been nauseas, except for one time when I ate a gluten-free cheese pizza (which my guess is dairy is effecting me too)

Does it sound like it to ya'll?

I want to get tested, but can't afford it now...

So, I am going to the 'experts'...


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GFinDC Veteran

Hi Becci,

Those could be celiac symptoms. Sounds like it to me anyway. If you can stick to the diet for a couple months, you should see an improvement if it is celiac. But you need to be strictly 100$ gluten-free for it to work. Most people can do this by sticking to whole foods. Take a look around, there are quite a few threads about starting the diet and what to eat at first. Some things to watch out for are vitamins etc that might have gluten, or spices, sauces, salad dressings, etc. Processed foods are also often sources of gluten.

Welcome to the site, I hope you find a solution to your problems here.

Becci Enthusiast

I stopped eating gluten and stuff for a while, and then ate it again just to test it, and I have been sick for about 3 days since eating it...

I was fine before.

So, something to do with gluten most definitely.

GFinDC Veteran

Sure sounds like a gluten issue Becci. In celiac, the reaction is to wheat, rye, and barley proteins. If you are really curious, you could get some barley and eat it to see if you react. And maybe try some rye later too. And some wheat germ perhaps later. Then again, I'd have to be real curious before I would try that at this point, since I know how I react to it.

There is a home test called Biocard available in Canada for $50 bucks,but they don't sell it here yet. Bummer for us USA'ers.

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      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
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    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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