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Hashimotos Thyroiditis

finally diagnosed

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finally diagnosed Apprentice
finally diagnosed
Posted

I was just diagnosed with hasimotos even though my blood tests were normal, but my thyroid is enlarged and i have nodules that they watch every year with ultrasound.

My endocrinologist said that it can be it even though my blood work doesn't show it, but they don't give you anything to txt it unless symptoms get worse.

has anyone else experienced this, meaning hasimotos, no meds etc.

i am not looking to be on meds, have enough med allergies as it is.

looking for input.

thanks lorrie

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Crayons574 Contributor
Crayons574
Posted

Hi Lorrie,

I know you said you are not wanting to get on meds., but if you have no other choice, I just wanted to suggest Nature-Throid. It is a natural thyroid. Armour thyroid is as well, but I have many med. allergies like yourself, and I was allergic to Armour (must have been the fillers/dye?). If you are allergic to a lot, I would def. not suggest the synthetic thyroid. How are you planning on getting your thyroid in a normal range without meds? Best of luck! :)

finally diagnosed Apprentice
finally diagnosed
Posted
  • Author
Hi Lorrie,

I know you said you are not wanting to get on meds., but if you have no other choice, I just wanted to suggest Nature-Throid. It is a natural thyroid. Armour thyroid is as well, but I have many med. allergies like yourself, and I was allergic to Armour (must have been the fillers/dye?). If you are allergic to a lot, I would def. not suggest the synthetic thyroid. How are you planning on getting your thyroid in a normal range without meds? Best of luck! :)

Hi Crayons, that is the funny part about this diagnosis, my thyroid levels are normal.... but when they measure the nodules yearly and this time she said my thyroid is rubbery and larger, and that she has come to the conclusion that i have Hashimotos, and she said she wouldn't treat it with meds unless things are changing.. which came to my question of did anyone every get diag w/this with normal labs... everywhere i read tells me that i need meds so i am curious if she is jumping the gun because of the celiac or is she laid back? but thank you for the infor for the other meds, i think most of my allergies to medicine was due to i always used generic and most of the time it has gluten in it. or over use with the antibiotics.

Salax Contributor
Salax
Posted

I got diagnosed with hashimoto's to start with an enlarged thyroid/goiter. Then labs confirmed it. Meds where the only thing I could do to get the goiter down in size. It came down quite a bit after a couple of months of meds. I take synthyroid, it doesn't bother me. I an not familar with alternatives or other options for treatment. I guess you could have it removed. But they would most likely want you on meds for sure if you did that.

Best of luck!

Mother of Jibril Enthusiast
Mother of Jibril
Posted

Just curious... who noticed the goiter? It was quite forward-thinking to do an ultrasound even with normal labs! :)

Another way you could get a diagnosis of Hashimoto's with normal TSH is to test positive for thyroid antibodies. Here's an article from Mary Shomon (a well-known author on thyroid disorders) about treatment possibilities for people in your circumstances:

Open Original Shared Link

finally diagnosed Apprentice
finally diagnosed
Posted
  • Author
Just curious... who noticed the goiter? It was quite forward-thinking to do an ultrasound even with normal labs! :)

Another way you could get a diagnosis of Hashimoto's with normal TSH is to test positive for thyroid antibodies. Here's an article from Mary Shomon (a well-known author on thyroid disorders) about treatment possibilities for people in your circumstances:

Open Original Shared Link

they ultrasound i been having for the last 4 years, pre celiac diagnosis, they have been following my nodules, today was a routine yearly for ultrasound and endocrine apointment, and she said my thryoid is larger and leathery

georgie Enthusiast
georgie
Posted

I am curious - what blood tests have you had done for Thyroid ? Endos are usually the worst for dx borderline cases of Thyroid. Open Original Shared Link

Typical hypothyroidism diagnosis for an endocrinologist will involve assessment of the TSH level. If the level is above the normal range (at most U.S. labs, the top end of normal is from 4.0 to 5.5), then hypothyroidism is diagnosed. (Note, however, that since 2003, some endocrinologists have recommended that thyroid disease be diagnosed and managed according to a new, narrower range of .3 to 3.0.) Some endocrinologists are so cautious that they don't even believe in treating TSH levels under 10, a level at which many patients report significant and debilitating symptoms.

Where you will not necessarily get much help from an endocrinologist is if you suspect you have hypothyroidism, and have numerous symptoms of the condition, as well as a family history, but test in the "normal range" TSH-wise.

There are doctors who believe that the TSH level is only one factor in diagnosis, and that other levels, symptoms, family history, and other clinical factors can be more important in making a thyroid diagnosis. These doctors do offer options you can pursue, including antibodies testing, treatment for TSH levels above 2 that are accompanied by significant hypothyroidism symptoms, detailed T4/T3 testing, and TRH tests to help identify low-level or subtle hypothyroidism.

Most endocrinologists, however, will not be willing to pursue these types of options with you. You will need to find one of the growing number of general practitioners and holistic/alternative MDs who focus on diagnosing and treatment hypothyroidism.

All the Endos I have seen have only known about diabetes and not much else. I don't bother with them now. My GP is 10x better.

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finally diagnosed Apprentice
finally diagnosed
Posted
  • Author
I am curious - what blood tests have you had done for Thyroid ? Endos are usually the worst for dx borderline cases of Thyroid. Open Original Shared Link

All the Endos I have seen have only known about diabetes and not much else. I don't bother with them now. My GP is 10x better.

Thank you for the info georgie, my PCP ran all the blood tests he can think of, i know i had the tsh, t3,t4 i even did a 24 hour urine test. my test are all normal except for low calcium and vit d. the reason i am seeing the endo for last 4 yrs was due to the nodules on the thyroid, we are now well over 5 cm and she still doesn't want to check them gives me a diag of hashimotos and doesn't want to txt it, i have symptoms of hypo and at time hyper, i'm also on of the people whose sugar ranges from hypo to hyper with a normal A1C range. I can wake up at 150 some days and other days wake up at 70, then i drop or go way up. she is also a diabetes spec, so i understand that i need to see someone who specializes in thyroid only. i sent my results off to MGH in boston and they are setting me up with some thyroid spec for a sec opinion. I just want to know that this is nothing, as you and everyone else knows, it took forever to get diagnosed with celiac (being misdiagnosed many times) and if it is something i want to correct it.

thanks for the advice. ,

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