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Feel Like Im Gonna Explode

sharkmom

By sharkmom
in Coping with Celiac Disease

Recommended Posts

sharkmom Apprentice
sharkmom
Posted

I have been gluten, soy, dairy, and egg free for a week, but I still have a tremendous amount of gas, although definately less smelly :huh: . Could this be from the fruits & veggies? I thought the bloating and gas would have decreased. All I have been eating is chicken, fish, fruits, veggies, gluten-free cereal in am

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Lisa Mentor
Lisa
Posted

A food diary might be helpful to pin-point some issues.

psawyer Proficient
psawyer
Posted

If you are in the early stages of recovery from celiac disease, you may still experience reactions to "safe" foods. It takes time for damage to the intestines to heal--one week is not enough--and while you are healing the effects of malabsorption will continue. Undigested food passing into the colon will lead to gas. The carbs did not get absorbed, so they feed the bacteria in the lower gut, who in turn produce gas.

Give it some time and things should get better. My own recovery showed positive signs quickly, but took about three months before things really became "normal."

SLB5757 Enthusiast
SLB5757
Posted

I sympathize with you and feel your pain. I was going to ask a similar question myself. I went gluten-free on 5/19 and was feeling pretty good until I challenged the gluten-free diet with a Subway sandwich yesterday. It was my first gluten in about 3 weeks and I have had the dreaded stomach bloat ever since. Yesterday it was at least twice it's size. I am praying that remaining gluten-free will eventually make it go back to normal.

Veggies could be an issue but from what I am hearing we have to give it adequate time to make substantial progress. Just remember it took longer than a week for you to start feeling bad.

I hope you feel better very soon.

ang1e0251 Contributor
ang1e0251
Posted

You may not be able to digest the grains in your cereal at first. You may want to back off that for a little while. It just takes time for the whole system to calm down and start to heal. There is a lot of healing to do and just like it didn't become damaged overnight, it cannot heal over night. Imagine that a broken bone takes six weeks in a cast, your intestine and digestive system takes time too. A cast gets you off the bone completely but you are still running food through your body so it has to work and heal at the same time. It's amazing really that it can do that! It will, but not over night.

GFinDC Veteran
GFinDC
Posted

You might try eliminating sugar and sugary foods for a while also. Many fruits have lots of sugar and could cause gas because of that.

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  • Posts

    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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