Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Periods Off Diet Do They Really Have An Impact?


UnhappyCoeliac

Recommended Posts

UnhappyCoeliac Enthusiast

Been of my gluten-free diet for a week now, indulging in any normal food I feel like. I am returning tommorow as my symptoms are fairly limited but I have been naturally slipping more, and a touch of dirhea.

Anyone I will go back on for 4-6mths + now.

At some point this rebellion builds up though, sick of policing food, sick of not feeling normal, sick of being stared at while eating bunless burger, sick fo REGULATION of my life. So hence I go crazy eating all my former favourite foods, then after a week or so I worry about damage I am doing and I hop back on the wagon

How will this affect me? Doc told me he has diagnosed someone 88 with celiac so this guy had had a long life with it not regulating diet at all. I ask because I am travelling oseas for the first time soon, and am most likely not going to be missing out on the taste of the world due to this disease. I will follow it up by 4-6mths each side gluten free though.

My last test result said I had fully recovered besides slightly raised anti bodies, that was in 3mths of GR so yeh someone talk to me, I am sure other people must do this as well, maybe not on this site but three people I have met all in RL at all times say they dumped the diet somewhat

Is a week off really going to do much? :(:huh:<_<


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



The Fluffy Assassin Enthusiast
Been of my gluten-free diet for a week now, indulging in any normal food I feel like. I am returning tommorow as my symptoms are fairly limited but I have been naturally slipping more, and a touch of dirhea.

Anyone I will go back on for 4-6mths + now.

At some point this rebellion builds up though, sick of policing food, sick of not feeling normal, sick of being stared at while eating bunless burger, sick fo REGULATION of my life. So hence I go crazy eating all my former favourite foods, then after a week or so I worry about damage I am doing and I hop back on the wagon

How will this affect me? Doc told me he has diagnosed someone 88 with celiac so this guy had had a long life with it not regulating diet at all. I ask because I am travelling oseas for the first time soon, and am most likely not going to be missing out on the taste of the world due to this disease. I will follow it up by 4-6mths each side gluten free though.

My last test result said I had fully recovered besides slightly raised anti bodies, that was in 3mths of GR so yeh someone talk to me, I am sure other people must do this as well, maybe not on this site but three people I have met all in RL at all times say they dumped the diet somewhat

Is a week off really going to do much? :(:huh:<_<

You risk dying painfully of intestinal cancer. Up to you, of course.

tarnalberry Community Regular

Yup, your chances of intestinal cancers, blood cancers (e.g. lymphoma), and nutritional deficiencies (e.g. aenemia and osteoporosis), and developing other auto-immune conditions (like type 1 diabetes), all go up. In some cases, significantly. It's absolutely your choice, but no matter how careful you are, there is a risk of contamination and microscopic amounts of gluten getting in to your body every day. Your body has to repair the damage caused by this, and can likely take care of it, but then giving it this huge insult... Eh... It's not without it's consequences.

(Don't let one anecdotal piece of evidence fool you. Plenty of people die *earlier* due to celiac. Average decrease in life span due to untreated celiac? 10 years.)

Mrs. Smith Explorer

Believe me, if I had found this out a lot sooner, like you I would have done it in a second and saved myself and my family a ton of heart ache and medical bills! I however did not know until I was very ill, couldnt have babies, and very deficient. I would not recomend going back on gluten AT ALL....trust me its not worth it. You should feel lucky that you are so young and can save yourself a lot of pain and misery because it will only get worse. I felt great at 22 and by 28 I was in declining health fast! 2yrs later, I am just now getting back my life. DONT DO IT!

ang1e0251 Contributor

If I recall your main reason for testing were neurological problems affecting your gait and strength. You were afraid of MS and relieved when the diet helped these problems. Do I have your story?

So I guess you have to take yourself back to that moment when you were your sickest and most scared. Is that where you want to be again? I know, you don't like to refer to it as sick because your symptoms were mostly away from the gut. But you were sick and that's what you need to admit to yourself.

The problem with see-sawing back and forth with your health is you don't have a little window into your insides where you can see when damage is done. It just sits there rather silently then gives you the Big Whammy! Would you put a little sugar in the gas tank of your car for a week and then if it doesn't gum up too bad stop doing that for awhile hoping everything will be OK? You wouldn't because an engine can't run on sugar as fuel. It will damage the engine. Your engine can't run on gluten. It will damage it. Your body has been telling you that but you want your own way and don't want to listen to it. Your body will find a more drastic and, heaven forbid, maybe permanant way to get your attention in the long run.

JNBunnie1 Community Regular

If it helps, I can give you a graphic description of what it was like to watch my father die of leukemia. I promise, you don't want to go there.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,029
    • Most Online (within 30 mins)
      7,748

    Jen72
    Newest Member
    Jen72
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.