Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Periods Off Diet Do They Really Have An Impact?


UnhappyCoeliac

Recommended Posts

UnhappyCoeliac Enthusiast

Been of my gluten-free diet for a week now, indulging in any normal food I feel like. I am returning tommorow as my symptoms are fairly limited but I have been naturally slipping more, and a touch of dirhea.

Anyone I will go back on for 4-6mths + now.

At some point this rebellion builds up though, sick of policing food, sick of not feeling normal, sick of being stared at while eating bunless burger, sick fo REGULATION of my life. So hence I go crazy eating all my former favourite foods, then after a week or so I worry about damage I am doing and I hop back on the wagon

How will this affect me? Doc told me he has diagnosed someone 88 with celiac so this guy had had a long life with it not regulating diet at all. I ask because I am travelling oseas for the first time soon, and am most likely not going to be missing out on the taste of the world due to this disease. I will follow it up by 4-6mths each side gluten free though.

My last test result said I had fully recovered besides slightly raised anti bodies, that was in 3mths of GR so yeh someone talk to me, I am sure other people must do this as well, maybe not on this site but three people I have met all in RL at all times say they dumped the diet somewhat

Is a week off really going to do much? :(:huh:<_<


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



The Fluffy Assassin Enthusiast
Been of my gluten-free diet for a week now, indulging in any normal food I feel like. I am returning tommorow as my symptoms are fairly limited but I have been naturally slipping more, and a touch of dirhea.

Anyone I will go back on for 4-6mths + now.

At some point this rebellion builds up though, sick of policing food, sick of not feeling normal, sick of being stared at while eating bunless burger, sick fo REGULATION of my life. So hence I go crazy eating all my former favourite foods, then after a week or so I worry about damage I am doing and I hop back on the wagon

How will this affect me? Doc told me he has diagnosed someone 88 with celiac so this guy had had a long life with it not regulating diet at all. I ask because I am travelling oseas for the first time soon, and am most likely not going to be missing out on the taste of the world due to this disease. I will follow it up by 4-6mths each side gluten free though.

My last test result said I had fully recovered besides slightly raised anti bodies, that was in 3mths of GR so yeh someone talk to me, I am sure other people must do this as well, maybe not on this site but three people I have met all in RL at all times say they dumped the diet somewhat

Is a week off really going to do much? :(:huh:<_<

You risk dying painfully of intestinal cancer. Up to you, of course.

tarnalberry Community Regular

Yup, your chances of intestinal cancers, blood cancers (e.g. lymphoma), and nutritional deficiencies (e.g. aenemia and osteoporosis), and developing other auto-immune conditions (like type 1 diabetes), all go up. In some cases, significantly. It's absolutely your choice, but no matter how careful you are, there is a risk of contamination and microscopic amounts of gluten getting in to your body every day. Your body has to repair the damage caused by this, and can likely take care of it, but then giving it this huge insult... Eh... It's not without it's consequences.

(Don't let one anecdotal piece of evidence fool you. Plenty of people die *earlier* due to celiac. Average decrease in life span due to untreated celiac? 10 years.)

Mrs. Smith Explorer

Believe me, if I had found this out a lot sooner, like you I would have done it in a second and saved myself and my family a ton of heart ache and medical bills! I however did not know until I was very ill, couldnt have babies, and very deficient. I would not recomend going back on gluten AT ALL....trust me its not worth it. You should feel lucky that you are so young and can save yourself a lot of pain and misery because it will only get worse. I felt great at 22 and by 28 I was in declining health fast! 2yrs later, I am just now getting back my life. DONT DO IT!

ang1e0251 Contributor

If I recall your main reason for testing were neurological problems affecting your gait and strength. You were afraid of MS and relieved when the diet helped these problems. Do I have your story?

So I guess you have to take yourself back to that moment when you were your sickest and most scared. Is that where you want to be again? I know, you don't like to refer to it as sick because your symptoms were mostly away from the gut. But you were sick and that's what you need to admit to yourself.

The problem with see-sawing back and forth with your health is you don't have a little window into your insides where you can see when damage is done. It just sits there rather silently then gives you the Big Whammy! Would you put a little sugar in the gas tank of your car for a week and then if it doesn't gum up too bad stop doing that for awhile hoping everything will be OK? You wouldn't because an engine can't run on sugar as fuel. It will damage the engine. Your engine can't run on gluten. It will damage it. Your body has been telling you that but you want your own way and don't want to listen to it. Your body will find a more drastic and, heaven forbid, maybe permanant way to get your attention in the long run.

JNBunnie1 Community Regular

If it helps, I can give you a graphic description of what it was like to watch my father die of leukemia. I promise, you don't want to go there.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,382
    • Most Online (within 30 mins)
      7,748

    victimm
    Newest Member
    victimm
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • lauramac
      I was diagnosed with Celiac Disease abput 10 years ago. When I was initially diagnosed my only "symptom" was persistently low iron (that occasionally dipped into anemia). After diagnosis,  over time, I started to develop symptoms when exposed to gluten--they have been overall relatively minor, but have increased over time (and yes, I realize my guts are likely being wrecked regardless of the symptoms) on the rare occasions I've been exposed to gluten. I had COVID19 last week (now testing negative) and was glutened last night (never trust anything labeled gluten-free in a mixed environment). I had my traditional symptoms (sharp gas pains, burping, nausea, stomach ache) but they were accompanied by new, more intense symptoms (muscle cramps all over my body--feet, calves, biceps, neck, shoulders, jaw, abdomen, I'm still sore today and cold sweats). I spent about 6 hours writhing before I felt well enough to get up.  I have been told by my allergist that COVID19 can cause your immune system to hyper react. I'm wondering if that's what happened here.   Has anyone else had experience getting glutened post COVID19? Relatively shortly after recovering from COVID19? Was it a more extreme reaction or same? I can't seem to find any articles on this, so I thought I'd ask the community.  Thank you!
    • Rogol72
      A friend of mine is in the bar trade most of his life and has never heard of lines being mixed for different type of beers and ciders. Better to stick with cans.
    • Rejoicephd
      Thanks very much for confirming my suspicion @Scott Adams! That helps a lot because I'm really trying to track down and get rid of these sources of cross-contact and so I'm going to just rule out the draft ciders and hope that helps. Also @Rogol72 its nice to hear you haven't had a problem on that side of the pond - draft cider lines being used for cider only certainly sounds like the right way to do it, but I think that must not always be practiced over here! 
    • Zuma888
      I didn't ask a doctor about this actually. I did ask several doctors a long time ago and they told me gluten has nothing to do with hashimoto's. One of them told me to do a gluten challenge to test for celiac, but at the time I was in graduate school so couldn't afford to be even more ill than I was. If you have the symptoms, I really don't advise you to do a gluten challenge. It messed me up mentally and physically for months. At the same time, I benefitted from doing the challenge in the sense that it convinced me that all my symptoms were truly from gluten - even stuff like insomnia! So now I am terrified to eat gluten, whereas before I would have a little once in a while and not notice anything dramatic. 
    • Winnie-Ther-Pooh
      I am in a similar situation where I can't feasibly do a gluten challenge but have all the symptoms and I have 2 celiac genes. I'm curious if your doctor advised you to eat as if you had a diagnosis or if they were more dismissive about it. 
×
×
  • Create New...