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Anyone In Metro-detroit?


daphniela

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daphniela Explorer

I live in Warren, Mi. Anyone else in or around Metro Detroit?


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mommida Enthusiast

I'm in Oxford/Brandon area. (Just north of DTE)

mimommy Contributor

Hi! I'm near Lakeside Mall--Clinton Township. Warren's just a jog down Schoenner from here :)

Mommida--do you ever go to Pine Knob Golf Course?

mommida Enthusiast

I don't have the patience for golf. I'm sure I would be like a Happy Gilmore if I went out on a course. ;)

I still drive into the Warren area for doctor appointments. I used to live right by Lakeside Mall. I didn't even have to take a main road to get there. I just drove through the subdivision and entered the parking lot next to McDonald's.

mimommy Contributor
I don't have the patience for golf. I'm sure I would be like a Happy Gilmore if I went out on a course. ;)

I still drive into the Warren area for doctor appointments. I used to live right by Lakeside Mall. I didn't even have to take a main road to get there. I just drove through the subdivision and entered the parking lot next to McDonald's.

Hee--me neither for golf (only I'd be more like a Bill Murray).

I asked because of a past connection I have there--I did their PR when they re-opened the mansion to the public in 2006.

I know exactly where you lived--it's right up the road from me. This area has changed so drastically you might not recognise it of you've been away for long.

Do you remember "The Silo" on Hayes?

mommida Enthusiast

I loved the silo! I remember looking up and spinning, just to see if I could walk straight after.

I used to live on Saal rd. Remember that cow that would get loose and cause a commontion?

I drive out there for my kids Pediatrician's office. One office is on Hayes in Clinton Twp., the other office is on Hoover in Warren.

OK, If I ever have to go golfing ~ I'll only go if you come with me! :lol:

mimommy Contributor
I loved the silo! I remember looking up and spinning, just to see if I could walk straight after.

I used to live on Saal rd. Remember that cow that would get loose and cause a commontion?

I drive out there for my kids Pediatrician's office. One office is on Hayes in Clinton Twp., the other office is on Hoover in Warren.

OK, If I ever have to go golfing ~ I'll only go if you come with me! :lol:

Was your peds. office on the east side of Hayes, s. of Canal, by the car wash? My SIL was a medical assistant there until a few months ago.

Our first apartment after we got married was at Ashgrove, directly across the street from the old SILO.

OK, you're on for 18 holes, but get ready to laugh. I am an eejit of the highest order. I'll probably flip the cart.

When I worked for them we spent a July 4th there on the lake off the course and watched the fireworks the owner put on. The Pat Benetar concert was going on at DTE (the back of the stage pavilion backs up to the golf course), so we got a free show and they got free fireworks. The owner even got me backstage passes to the Tom Petty/Stevie Nicks concert a few years ago. It was great fun.

PM me--let's chat.


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mommida Enthusiast

Macomb pediatrics?

mimommy Contributor
Macomb pediatrics?

I just sent SIL an e-mail to find out.

Poor Daphnie--we kind of shanghied her post :lol:

You know us Michiganders--friendly, chatty folks we are ;)

mommida Enthusiast

Well I know there are more of us from this area. ;)

I think because summer finally showed up, they just aren't online right now. :P

dtgirl Rookie

I live in southgate! hello all :)

mommida Enthusiast

Hi dtgirl!

I just read your anemia, pica, fatigue post! I don't know how to help you with that, but stay away from matches! :o

dtgirl Rookie
Hi dtgirl!

I just read your anemia, pica, fatigue post! I don't know how to help you with that, but stay away from matches! :o

lol, some women crave chocolate I get non-food items!

mommida Enthusiast

Hopefully the anemia will resolve soon, and there will be no pica.

Interesting that you mention chocolate!!?

Have you ever seen the movie "Like water for Chocolate"? I think the sister character had Celiac. The end of the movie shows the main character eating matches. It's pretty slow, but I did laugh my tush off about the knitting for sexual frustration and the scene of this long knit piece trailing behind a moving car.

dtgirl Rookie

no, I have not sounds interesting!

I recently moved to MI and I must say, the people here are so friendly.

AMQmom Explorer

I live in Brandon Township/Ortonville/Clarkston area - near Pine Knob.

Serversymptoms Contributor

Lansing, Michigan

SGWhiskers Collaborator

Brighton area. Hello there folks. I hear there is a great gluten-free bakery out in the Macomb twp area. Anyone ever try them out?

daphniela Explorer
Brighton area. Hello there folks. I hear there is a great gluten-free bakery out in the Macomb twp area. Anyone ever try them out?

I don't travel too far out of my area. The furthest I go is to Mejiers on 16 and Van Dyke. I wish I lived closer to the areas that have a lot of gluten free friendly foods. Where is this bakery? If I ever go out that way, I might check it out.

mimommy Contributor
Brighton area. Hello there folks. I hear there is a great gluten-free bakery out in the Macomb twp area. Anyone ever try them out?

I don't travel too far out of my area. The furthest I go is to Mejiers on 16 and Van Dyke. I wish I lived closer to the areas that have a lot of gluten free friendly foods. Where is this bakery? If I ever go out that way, I might check it out.

I think the bakery you are referring to is Celiac Specialties in Chesterfield Township on Jefferson. You can get some of their products at Lifesmart Foods on Hall Rd (M-59) between Schoenner and M-53. Vince & Joe's also carries their products, but Vince & Joe's have their own gluten free baked goods that they make right there in their bakery and they are MUCH better and far less expensive (and nicer, too). There are Vince & Joe's on 25 Mile in Macomb Twsp. and on Garfield Rd. in Clinton Twsp. My daughter has eaten several of their gluten-free baked goods and has not reacted to them.

In any case, they are all well worth a trip. You can buy many products frozen, or bring them home and freeze them--they will be fine.

Also, G F Cucina's Restaurant on Mound between 16 Mile and 17 Mile roads is AWESOME!!!! They are CSA certified for their entirely gluten free menu, and the food is better than you can get at most restaurants--very reasonably priced.

**I probably sound like a Macomb County ad rep or something, but it's only because I have tried them all and am a loyal customer to those who don't poison my kid. We are truly grateful for establishments who are educating themselves to the needs of a celiac family, and who strive to maintain the stringent quality needed to make safe products. So I will give them all high marks whenever I can ;)

dtgirl Rookie

welcome everyone! nice to see other michiganders around. I will sometime check out these places, I live sooo far from everywhere. Livonia is like a day trip for me.

SGWhiskers Collaborator

Thank you for that list of restaraunts and stores. I have relatives out that way, and eating out is always embarassing to bring my lunchbox. Now I want to go visit the relatives just so I can try the restaraunts and bakeries.

daphniela Explorer

Anyone know of any Asian Markets around here? I haven't found any and I want cheap flour! Even a middeastern Market would be nice. I think they have special flours too.

mommida Enthusiast

Celiac Specialties or maybe Specialty in Chesterfield township.

They have THE BEST gluten free doughnuts! If I remember right they are 23 mile and Jefferson.

Some of the local health food stores sell the products in the frozen food sections.

unaBella Newbie

Hello everyone. Michigander here :P

Though I am closer to Flint than Detroit. Especially since I am north of Flint :)

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    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
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