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Some Rather Graphic Bm Discussion Follows


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Well I know you all are no strangers to this discussion, and I can't really share this with anyone else...

Before my diagnosis, I got the big D on the avergae about 1 in 10 days, and serious cramps about 1 in 4 days. But even on the 'good days' my BMs were rather bothersome and somehow just wrong - rather loose and usually foul-smelling, and it seemed like I went through TP at a incredible rate. Also had what I think was mucus with the stool. The other bothersome thing is that when I flushed, the stool would practically disintegrate in the bowl as it went down - it just didn't look right at all. (My doctor did not find any of this interesting). Plus I was getting horrible hemmoroids too.

But now, after just 3.5 days of gluten-free, I am having the most normal BMs I have ever had! One solid peice, no discomfort, no wateriness, no disintegrating in the bowl. Did anyone else notice this change, or am I just experiencing a coincidence?

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I never had "D" it was more the other way around for me but yes I noticed quickly that cleared up. Some people see a difference as quick as you did and others don't....that's great that cleared up alot :D Did you tell your family about celiac yet or are they still out of town?

Kaiti

Positive bloodwork

Gluten-free since January 2004

Arkansas

Jeremiah 29:11- "For I know the plans that I have for you, declares the Lord, plans for you to prosper and not harm you,plans to give you a hope and future"

"One Nation, Under God"

Feel free to email me anytime....jkbrodbent@yahoo.com

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Glad that you're feeling better so quickly! :D

Your stool descriptions did sound classic celiac. Celiac is often associated with diarrhea or constipation--moreso diarrhea, I think. The cramps were symptoms many of us had (myself included). Loose stools, mucus, etc. all sound celiac. Another thing some celiacs have is floating stools, but your stools are celiac enough without that :lol: .

Once again, happy to hear you're having success so quickly. Keep up the good work! :)

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I never had "D" it was more the other way around for me but yes I noticed quickly that cleared up. Some people see a difference as quick as you did and others don't....that's great that cleared up alot :D Did you tell your family about celiac yet or are they still out of town?

They got back to town yesterday. This whole thing has got me so frazzled that I screamed at my wife this morning. I feel like such a jerk. Funny how I am physically feeling better but mentally I am shot.

Just dropped $250 on new cookware and kitchen stuff. Spent the AM cleaning and tossing stuff out. My wife agreed for now to throw out the flour. They can have bread, cereal, frozen pizzas, tortillas, but no powdery stuff.

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Part of my symptoms include the typical celiac stools, however, I suffered from sever constipation (sometimes not going for a month!) I've been gluten-free for 2 weeks and haven't noticed a change. I am eating all the fruits and veggies and stuff, but nothing seems to help. What can I do? Anyone with similar problems that has advice?

Blood test diagnosed with celiac disease 3/05

gluten-free since March '05

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It is extremely mentally and emotionally draining at first. Once we feel like we have everything under control, though, this diet works mental/emotional wonders on us. Many here had anxiety or depression before starting the diet, some even on pills for it, and are now 100% fine.

You seem to be doing very well, though, at educating yourself on this--and knowledge truly is power.

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Peaches503, It will take a lot longer than 2 weeks to notice any difference. The average seems to be at least three months for any noticable changes to occur and a good year to really be healthy. There is no instant cure. You will have to carefully monitor your diet and give it more time. It WILL get better and you will be glad you stuck with it.

If all the world is indeed a stage and we are merely players then will someone give me the script because I have no f!@#$%^ clue as to what is going on!

What does not kill you makes you stronger.

Nobody cares about losers and quitters never win. If you fail with the cowards then what's the message you send?

Can't get it right, no matter what I do. Might as well be me and keep fu@$ing up for you. - Brian Thomas (Halloween, the greatest metal band ever!)

Ian Moore. Self diagnosed at 36 because the doctors were clueless.

Started low-carb diet early 2004, felt better but not totally gluten-free. Went 100% gluten-free early 2005 and life has never been better.

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Peaches:

My celiac symptoms included cramping, bloating and constipation. When fiber from fruits, vegies and grains didn't resolve my constipation, I learned that European doctors often suggest a combination of Vitamin C (starting with 500 mg) and Magnesium (starting with 400 mg). You can add more until you get loose stools and then cut back. I can't use laxatives because I'm sensitive to sorbitol/mannitols which are used to stimulate intestines in most laxatives, but the vitamin C/Magesium really helped me. Long after vitamin C/Magnesium combo helped me get 'regular', I learned that most celiacs are severely deficient in Magnesium which would explain why that helped me. I also had floating (hard) stools BEFORE I began to abstain from DAIRY (even after abstaining from gluten). Now, after 10 dairy free months, when I get gluten contamination, I react like a 'classic' celiac with diarrhea. So I'm curious ... do you react to dairy? I thought I was just lactose intolerant until I got my Enterolab results which indicated casein intolerance (antibodies like with gluten). After I completely abstained from the dairy, my stools gradually became more normal and then finally more 'celiac' after gluten slips.

BURDEE

Gluten, dairy, soy, egg, cane sugar, vanilla and nutmeg free. Enterolab diagnosed gluten/casein intolerant 7/04; soy intolerant 8/07. ELISA test diagnosed egg/cane sugar IgG allergies 8/06; vanilla/nutmeg 8/06. 2006-10 diagnosed by DNA Microbial stool tests and successfully treated: Klebsiella, Enterobacter Cloaecae, Cryptosporidia, Candida, C-diff, Achromobacter, H. Pylori and Dientamoeba Fragilis. 6/10 Heidelberg capsule test diagnosed hypochloridia. Vitamin D deficiency, hypothyroiditis, hypochloridia and low white blood cells caused vulnerability to infections. I now take Betaine HCl, probiotics, Vitamin D and T3 thyroid supplement to maintain immunity.

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Not only BM consistency is a clue, but color. Especially noted is colorless, grey or tan, or even white-ish coloring. This cleared up after about a month gluten-free.

Husband has Celiac Disease and

Husband misdiagnosed for 27 yrs -

The misdiagnosis was: IBS or colitis

Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,

most prestigious medical groups in northern NJ which constantly advertises themselves as

being the "best." This GI told him it was "all in his head."

Serious Depressive state ensued

Finally Diagnosed with celiac disease in 2003

Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.

Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle

Developed neuropathy in 2005

Now has lymphadema 2006It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003

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Peaches, I agree with Burdee on the Magnesium and Vita C. I used to go to the IBS Forum and was told about it. I started taking the Mag about 9 months ago and it did alright for me. I was still having gluten in my diet, though - didn't know about the gluten-free thing yet. Anyway, try it. I also had sevre constipation (not going for a month) and then D out of no where for days. Poop floated big time and I actually thought I was a rabbit from the size of them! I have been gluten free after almost 6 weeks still taking the Mag (and every other vitamin under the sun) and it has made a big difference in my constitution.

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Peaches:

My naturopathic guidebook said start with 500 mg of Vitamin C and 400 mg of Magnesium. If that's not enough increase by 100 mg increments of each until you get really loose stools. Then cut back if necessary. However, after staying gluten-free and dairy free for almost a year, I have 'normal' stools for the first time in my life. Mg and Vitamin C prevented hard constipation, but abstaining from dairy and gluten made me NORMAL. :D

BURDEE

Gluten, dairy, soy, egg, cane sugar, vanilla and nutmeg free. Enterolab diagnosed gluten/casein intolerant 7/04; soy intolerant 8/07. ELISA test diagnosed egg/cane sugar IgG allergies 8/06; vanilla/nutmeg 8/06. 2006-10 diagnosed by DNA Microbial stool tests and successfully treated: Klebsiella, Enterobacter Cloaecae, Cryptosporidia, Candida, C-diff, Achromobacter, H. Pylori and Dientamoeba Fragilis. 6/10 Heidelberg capsule test diagnosed hypochloridia. Vitamin D deficiency, hypothyroiditis, hypochloridia and low white blood cells caused vulnerability to infections. I now take Betaine HCl, probiotics, Vitamin D and T3 thyroid supplement to maintain immunity.

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Burdee,

Thank you so much! I really appreciate your help. I can't tell you how much better it makes me feel to know that I'm not alone- and that there's help for my symptoms! I'm going to start the VC and Mag right away. I'm looking forward to feeling normal again!

Blood test diagnosed with celiac disease 3/05

gluten-free since March '05

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I do, too. Supposedly it reflects fat in your stool so I figured I had malabsorption issues but my test indicates I don't. I don't know.

Oh, isn't this fun??? :P

Stephanie

Diagnosed by food challenge, 10/04

Gluten-free since 10/04

Gluten-sensitive genes: HLA-DQ 1,3 (Subtype 6,9)

Interstitial Cystitis, 7/07

Fibromyalgia, 6/11

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I have heard that not all stools that float are necessarily bad. It doesn't always mean malabsorption.

Kaiti

Positive bloodwork

Gluten-free since January 2004

Arkansas

Jeremiah 29:11- "For I know the plans that I have for you, declares the Lord, plans for you to prosper and not harm you,plans to give you a hope and future"

"One Nation, Under God"

Feel free to email me anytime....jkbrodbent@yahoo.com

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Just to add my experience to the 'floating stool' topic ... I had them all my life UNTIL I after eliminated casein (dairy). Even after abstaining from gluten I still had floating (and often hard) stools. My Enterolab malabsorption tests were normal. Several months after I eliminated all dairy (as well as gluten and soy), I finally experienced 'normal' stools (not loose or hard). When I get gluten contamination, I now get 'classic' celiac diarrhea, instead of my former constipation and excruciating pain. I suspect dairy influenced my constipation all along. <_<

BURDEE

Gluten, dairy, soy, egg, cane sugar, vanilla and nutmeg free. Enterolab diagnosed gluten/casein intolerant 7/04; soy intolerant 8/07. ELISA test diagnosed egg/cane sugar IgG allergies 8/06; vanilla/nutmeg 8/06. 2006-10 diagnosed by DNA Microbial stool tests and successfully treated: Klebsiella, Enterobacter Cloaecae, Cryptosporidia, Candida, C-diff, Achromobacter, H. Pylori and Dientamoeba Fragilis. 6/10 Heidelberg capsule test diagnosed hypochloridia. Vitamin D deficiency, hypothyroiditis, hypochloridia and low white blood cells caused vulnerability to infections. I now take Betaine HCl, probiotics, Vitamin D and T3 thyroid supplement to maintain immunity.

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I read somewhere once that floating stools indicate you are eating a lot of fiber. These discussions just get more gripping everyday :lol: .

If all the world is indeed a stage and we are merely players then will someone give me the script because I have no f!@#$%^ clue as to what is going on!

What does not kill you makes you stronger.

Nobody cares about losers and quitters never win. If you fail with the cowards then what's the message you send?

Can't get it right, no matter what I do. Might as well be me and keep fu@$ing up for you. - Brian Thomas (Halloween, the greatest metal band ever!)

Ian Moore. Self diagnosed at 36 because the doctors were clueless.

Started low-carb diet early 2004, felt better but not totally gluten-free. Went 100% gluten-free early 2005 and life has never been better.

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I am so glad someone is willing to talk about s#@$! I have always been constipated and bloated and gassy then I'd just let "loose" every so often. Never normal stool. My GI is an antisocial moron (who of course knows everything) and my Internal Medicine guy is just passing this to the GI (same clinic network). But getting to the point: I know I'm not getting this total gluten free thing right because I am still bloating altho not to the point I was, My ulcerative proctitis is better but not symptom free, and stools vary so much that I am ready to get an outhouse so no one in the house has to deal with me anymore. (but then I would probably disrupt the neighbors) :unsure: I have blood and mucus in my stool most times and sometimes just pass blood and mucus sans stool. (symptoms of the proctitis, which I am sure is gluten related). Funny twist tho, I was on the atkins diet for over a year and all my intestinal problems went away completely. ALL OF THEM altho i did not notice the floaters incident. I was regular for the first time in my life! and then added all those pesky carbs back in and BOOM what a mistake. All my symptoms came back ten fold. Now it seems I am intollerant to other grains as well and can not figure out which ones I can have.

OK so now that I have been so graffic and you know me so personally now, Does anyone have any insite?

Also, how much is the entrolab testing, I have only been tested for Celiacs while on atkins or restriting gluten

Thanks,

Christi

Christi

gluten-free just recently. Found out about Celiacs and sounds like me. Bloat and pain when eat wheat and some other unidentified foods. Went on Atkins diet for 1.5 years and no symptoms. Went off diet and ouch owie agony pain. Test negative, know positive.

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Peaches,

My daughter and i tend to have the "D". My son, HOLY (*^ has the constipation. It is like he is giving birth! No toilet on earth can get these suckers down. Defies the laws of physics. The cal/mag advice sounds right. I've learned to let my son eat as many oranges as he can to get him going again. Vitamin c and fiber. I will never let it go longer than 3 days without the b.m. which means suppository. Sounds cruel, but 3 days and the kid can't even walk right.

All those b.m. descriptions sound familar to me, guess we found our own kind of normal.

Thanks for letting me get that off my chest.

Michigan

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Christicrete, The Atkins diet has worked wonders for me. The only time grain is allowed in the Atkins diet is in the final maintenance stage and only in very small quantities. I follow the diet to the letter except for grains of course. Sounds to me like you should go back on the Atkins diet.

When you started eating more carbs what kind of carbs were you eating? I cannot eat tree fruits like apples and citrus because the come out as fast as they go in. I stick with green veggies and low fructose fruits like berries and buckwheat is great, lots of fiber, protien and low carb.

If all the world is indeed a stage and we are merely players then will someone give me the script because I have no f!@#$%^ clue as to what is going on!

What does not kill you makes you stronger.

Nobody cares about losers and quitters never win. If you fail with the cowards then what's the message you send?

Can't get it right, no matter what I do. Might as well be me and keep fu@$ing up for you. - Brian Thomas (Halloween, the greatest metal band ever!)

Ian Moore. Self diagnosed at 36 because the doctors were clueless.

Started low-carb diet early 2004, felt better but not totally gluten-free. Went 100% gluten-free early 2005 and life has never been better.

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