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Any Body Near Indianapolis..i Am Newly Diagnosed...

ME AND ME

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ME AND ME Newbie
ME AND ME
Posted

JUST LOOKING FOR SOMEONE TO TALK TOO....FAMILY DOESNT UNDERSTAND AND MOST OF THE SO CALLED FRIENDS DONT CARE...

DONT REALLY WANT TO WHINE ABOUT IT (BOO HOO..LOL) BUT I FEEL KINDA ALONE WITH ALL THIS...

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Darn210 Enthusiast
Darn210
Posted

Hi ME&ME,

Indy has a local support group. Here is there website:

Open Original Shared Link

Take a look around, there is a lot of good information. They also hold beginner's meetings (schedule is on the site). They meet on the north side (Carmel) in the new Clarion building at 116th and Meridian.

In addition, this forum is also a great place for info.

  • 1 month later...
Momoftwo Newbie
Momoftwo
Posted
JUST LOOKING FOR SOMEONE TO TALK TOO....FAMILY DOESNT UNDERSTAND AND MOST OF THE SO CALLED FRIENDS DONT CARE...

DONT REALLY WANT TO WHINE ABOUT IT (BOO HOO..LOL) BUT I FEEL KINDA ALONE WITH ALL THIS...

I was recently diagnosed with celiac disease and I feel the same way. Are you in Indianapolis?

  • 11 months later...
shayre Enthusiast
shayre
Posted

I'm newly diagnosed too. I'm in Indy (Fishers). I just met a neighbor who has it as well. My hubby and I are planning a nice night out tomorrow for our anniversary. We are going downtown to eat and stay at the Conrad, so I've been online trying to research accomodating restaurants. I ran across this board, and I was already a member of celiac.com. Nice to meet you! Always good to stay in touch with local people. Are any of you intolerant of everything? I really don't know how I'll eat anything...or drink anything. I wish now that it was JUST gluten that I had a problem with. Hang in there dude! I wish that I could go back to when I just had to avoid gluten, so if that's all that you have to avoid...PLEASE count your blessings! There are a lot of people on this site who can't eat anything without feeling sick. I know that doesn't help right now, and believe me...I go through my angry phases!!! Just realize that it could always be worse! If you guys want to talk, I will try to stay on here more!

  • 5 months later...
Asianmom Newbie
Asianmom
Posted

Hello! I am from the Carmel area and have had Celiac for 12+ years now! I know how frustrating it can be, especially right now, as I am 7 1/2 weeks pregnant and SO sick anyways, and it actually takes me back to the days before being diagnosed with the constant stomach aches, and nausea. UGH! I hope you are able to find some people to reach out to and have talked to them...if not sounds like there are a few of us around here!!! Share your frustrations and vent away! It is hard when people do not understand! Nice to see you on here!

Financialman Newbie
Financialman
Posted

Hello from Southern Indiana. Hang in there. You have lots of friends on this forum who have gone through the same thing. Just stay in touch and keep posting and you will get through this.

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  • Posts

    • kpf
      ttg iga high (646 mg/dl) other results are normal

      By kpf · Posted

      I think you may be correct. The way the results are printed makes it appear as though it’s the ttg iga but I think you’re right—the 646 is total iga. So this would be indicative of another issue (another autoimmune condition, infection, cancer, etc.) and my doctor would need to do further testing. Thank you for saying this! 
    • RMJ
      ttg iga high (646 mg/dl) other results are normal

      By RMJ · Posted

      Are you sure that is the TTG IgA? Based on the units (mg/dL) and having an upper limit to the normal range, it looks like a total IgA result. 
    • kpf
      Vegetarians and vegans with celiac disease

      By kpf · Posted

      I am wondering if there are any vegetarians or vegans on this forum. I’ve been vegan for 15+ years and am just finding out I likely have celiac disease (blood panel done, need biopsy). My favorite foods—outside of vegetables, fruits, nuts, seeds—I will likely have to give up. Anyone else? 
    • trents
      Fiber Supplement

      By trents · Posted

      Welcome to the forum, @Trish G! "Gluten free" does not necessarily equate to "no gluten". According to FDA standards it actually means that a food product contains no more than 20ppm of gluten. This is safe for most celiacs but would not be for those who are on the more sensitive end of the spectrum. So, it would depend on the individual celiac and their level of sensitivity to minor amounts of gluten. That's the long and nuanced answer. The short answer is that it is a product derived from wheat and so you can be certain it will contain some residual amounts of gluten. No gluten removal process is 100% effective. So, to be absolutely certain, stay away from it. Have you tried chia seeds? Very high in fiber and quickly turns into a gel when added to water. Make sure you get seeds that are gluten free if you decide to try it.
    • Trish G
      Fiber Supplement

      By Trish G · Posted

      I was taking Benefiber for my IBS-C before my celiac diagnosis. It does say Gluten Free but lists Wheat Dextrin on the label. I really dont like psyllium fiber, so is there anything else I can take or is the Benefiber really ok for someone with Celiac disease?  Thanks!!!
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