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Am I Missing Something?

Ariauna

By Ariauna
in Coping with Celiac Disease

Recommended Posts

Ariauna Apprentice
Ariauna
Posted

I was diagnosed with celiac disease 2 months ago. I immediately started a gluten-free diet and within the first few days I noticed drastic improvement in my Acid Reflux, Bloating, IBS and fatigue. I was at a bbq and there were Lays BBQ chips there and I had read that Lays chips are safe... dumb me I did not read the label until I had eaten two handfuls of them. There it was clearly labeled... Barley Malt I felt my stomach go to crap with the twisting and cramping within an hour of eating them. I was so sad and disappointed after spending 2 months with very mild symptoms to then be thrown into a full blown attack. Anyway that was about two weeks ago.

Today I woke up and had major IBS symptoms I ended up taking a (Bentyl/Dyclomine) which helps to take the edge off of the horrible stomach and bowel twisting that was going on. Then by the end of the evening I had to run to the bathroom 3 times within 1 hour and ended up taking another 20mg of Bentyl. My problem here is as I look back at what I ate over the past few days, the things I did differently was to use ===MRS DASH: Onion and Herb=== Is this gluten-free? I also ate grapes and I do not usually eat them. I also bought pre-sliced mushrooms and got them at Walmart instead of Food Lion. Could any of those suddenly irritated me?

Here is the list of foods I have consumed in the past few days do any of you see something I haven't?

Fruity Pebbles or Rice Chex with Silk (Plain) soy milk

Quakes Rice Snacks Cheddar

Carrots, strawberries, grapes (all fresh)

Schwans plain chicken breast cooked gluten-free pan, with PAM cooking spray ( I normally do not spice it)

Schwans or Birdseye corn on the cob: cobblets

Birdseye steamfresh white rice

2 baby tomatoes

Colby/Jack cheese Great Value brand labeled gluten-free

A handful of cheesecorn (Chester's)

About 5 to 6 almonds/cashews from Planters mixed nuts

Glutino's Pretzel Twists

Schar Chocolate Sandwich cookies

Sunkist soda 1 can

If not since I am still in the early recovering phase could something as simple as a mild spice set me off? OR could I still be feeling the effects of the gluten I ingested almost two weeks ago? It seems to me since I got over that incident with several good days before tonight it would not be from that bbq but obviously I am typing here because I have NO IDEA!

I am very concerned because I know how important it is to figure out what it was because I do not want to deal with this pain can anyone help me please!

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GlutenGalAZ Enthusiast
GlutenGalAZ
Posted
Here is the list of foods I have consumed in the past few days do any of you see something I haven't?

Fruity Pebbles or Rice Chex with Silk (Plain) soy milk

Quakes Rice Snacks Cheddar

Carrots, strawberries, grapes (all fresh)

Schwans plain chicken breast cooked gluten-free pan, with PAM cooking spray ( I normally do not spice it)

Schwans or Birdseye corn on the cob: cobblets

Birdseye steamfresh white rice

2 baby tomatoes

Colby/Jack cheese Great Value brand labeled gluten-free

A handful of cheesecorn (Chester's)

About 5 to 6 almonds/cashews from Planters mixed nuts

Glutino's Pretzel Twists

Schar Chocolate Sandwich cookies

Sunkist soda 1 can

What stood out to me in your list was:

Quakes Rice Snacks Cheddar -- If this is Quaker Rice Snacks you could be having a problem with it. The ingredient label may look safe but they cannot guarantee their items are not CC. Some people have posted on here that they can eat their products and others can. I stay away from the brand due to possible CC (a lot of their products contain oats).

Open Original Shared Link

Corn -- In the beginning some people have a problem with corn. This may or may not be part of your problem.

A handful of cheesecorn (Chester's) -- If these are the Frito Lays brand... they have a list on their website of gluten free items but also state that they cannot be guaranteed gluten free due to possible CC. I personally stopped eating Frito Lays brand mainly because I was getting sick a lot. I would get a bag that I was fine with then a bag that I got sick from then pretty much any chip I tried with that company I was getting sick so I just stopped buying them (this was over a period of time where I would try a bag then stop for a while then try it again and pinpointed that it was the problem).

The Soy Milk you are drinking -- Have you been okay with Soy before?

I tried Soy a long time ago seemed okay with it then tried it again after going gluten free and could not handle it.

I know milk products in the beginning bother some people while your stomach is healing not positive about soy since I do not drink it.

I hope you figure out the culprit(s) and feel better.

GOOD LUCK

ksymonds84 Enthusiast
ksymonds84
Posted

It could be the dairy. I didn't know I had a problem with dairy (casein not lactose) until I went gluten free. Cheddar popcorn and cheese maybe setting you off. Most times the GI will say no dairy in the beginning and the lucky one's get to add it back after awhile. I can't do soymilk. A little soy in foods seem okay but liquid soymilk makes me very gassy. Also, in the beginning, our intestines are so sensitive that really anything can set them off until some healing takes place. I still can't do grapes or most fruits....everyone is individual. Keep tracking everything you eat for awhile, that will help you discover a pattern.

Ahorsesoul Enthusiast
Ahorsesoul
Posted

Check your Sunkist soda. It may not be gluten free.

Ariauna Apprentice
Ariauna
Posted
  • Author
What stood out to me in your list was:

Quakes Rice Snacks Cheddar -- If this is Quaker Rice Snacks you could be having a problem with it. The ingredient label may look safe but they cannot guarantee their items are not CC. Some people have posted on here that they can eat their products and others can. I stay away from the brand due to possible CC (a lot of their products contain oats).

Open Original Shared Link

I have been eating these for a long time with no problems at all I am aware of the possible cc but since I had not had an issue with them I continued to keep them in my diet. If after eliminating some other things I still have a problem I will for sure consider this!!!

Corn -- In the beginning some people have a problem with corn. This may or may not be part of your problem.

I have not had an issue with the corn/corn on the cob but I absolutely can not tolerate corn tortilla chips in any form whether they are gluten-free or not... from what I am reading as I am healing other things can start to bother me that haven't before... this concept confuses me since I am "healing" but can one form of corn hurt me and another not? Is there something else in the corn tortilla (chips) that could be upsetting me... I do NOT eat them anymore though.

A handful of cheesecorn (Chester's) -- If these are the Frito Lays brand... they have a list on their website of gluten free items but also state that they cannot be guaranteed gluten free due to possible CC. I personally stopped eating Frito Lays brand mainly because I was getting sick a lot. I would get a bag that I was fine with then a bag that I got sick from then pretty much any chip I tried with that company I was getting sick so I just stopped buying them (this was over a period of time where I would try a bag then stop for a while then try it again and pinpointed that it was the problem).

This is interesting as I had not been eating cheesecorn or cheese twists until just a couple weeks ago after eating them successfully I started keeping them around... however knowing that it is a dangerous food I will probably start with eliminating this item FIRST unless others post something different.

The Soy Milk you are drinking -- Have you been okay with Soy before?

I tried Soy a long time ago seemed okay with it then tried it again after going gluten free and could not handle it.

I started drinking soy milk about a month after I went gluten-free a friend of mine drank it and I do notice if I eat too much dairy or intake too much fat for my days that I get gas and IBS but it usually takes alot or something very very rich. I did forget to mention that I had eaten a hot fudge sundae from McDee's on Friday evening but I would think I would have been ill faster than 24 hours after? I know I am super sensitive to Barley Malt but not sure about dairy or a small cc if there is such a thing. So anyway using the soy and non dairy creamer has improved my digestion for me.

I know milk products in the beginning bother some people while your stomach is healing not positive about soy since I do not drink it.

I hope you figure out the culprit(s) and feel better.

GOOD LUCK

Thank you for the input I know for sure that I had to have glutened myself I ended up on the sofa all night and not able to sleep until 4am that was with all the meds. I woke this morning at 10am took my prilosec like normal but had to take another Bentyl because my system is still twisting and rumbling. No fever though so I know this is gluten and possibly the peanuts stirred my IBS! I am just desperate to figure it out because as you all know here feeling sick this way is not something I want to repeat and this time has taken a day from me :(

Oh and for the day I will be sticking with my cream of rice, Rice Chex, steam fresh white rice and maybe a chicken breast for the day...that's if I get to the point that I "want" to eat! I hear lots of water is good too!

Ariauna Apprentice
Ariauna
Posted
  • Author
It could be the dairy. I didn't know I had a problem with dairy (casein not lactose) until I went gluten free. Cheddar popcorn and cheese maybe setting you off. Most times the GI will say no dairy in the beginning and the lucky one's get to add it back after awhile. I can't do soymilk. A little soy in foods seem okay but liquid soymilk makes me very gassy. Also, in the beginning, our intestines are so sensitive that really anything can set them off until some healing takes place. I still can't do grapes or most fruits....everyone is individual. Keep tracking everything you eat for awhile, that will help you discover a pattern.

You know back when I was about 6 I was diagnosed as having a milk allergy and was told I would outgrow it. Around age 20 I introduced milk back into my diet without any issue over the years. Dairy and high fat foods will set off my GERD so I do try to watch how much I consume.... I really hadn't thought about the cheese flavored snacks irritating me but that WITH the Colby/Jack slices perhaps was too much.

I have checked with Sunkist company and they stated that it is gluten-free as well as:

Gluten-Free Product of the Day

Sunkist

Soda Pop

sunkist-soda-pop

Barbecues, picnics and summer activities are not just about grilling; they also are about great tasting refreshing drinks. Sunkist soda pop is a refreshing gluten-free orange flavored soda that is a real treat.

Enjoy!

Cecelia

ang1e0251 Contributor
ang1e0251
Posted

You mentioned chicken breast. Was that a frozen chicken breast? Sometimes those are coated or injected with broth. You have to check the package to see if it is or not and if it is what are the ingredients.

I'm sorry you're feeling so bad. Maybe you can go back to a very simple whole food diet for a few days until things calm down. Have you checked all your spices? Some spices, especially mixes, contain gluten. Also you want to throw out any you might have double dipped a gluteny spoon into.

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Ariauna Apprentice
Ariauna
Posted
  • Author
You mentioned chicken breast. Was that a frozen chicken breast? Sometimes those are coated or injected with broth. You have to check the package to see if it is or not and if it is what are the ingredients.

I'm sorry you're feeling so bad. Maybe you can go back to a very simple whole food diet for a few days until things calm down. Have you checked all your spices? Some spices, especially mixes, contain gluten. Also you want to throw out any you might have double dipped a gluteny spoon into.

I eat Schwans Unbreaded Chicken Breast Filets they are individually sealed and the ingredients read as follows:

INGREDIENTS: BONELESS, SKINLESS BREASTS OF CHICKEN WITH RIB MEAT CONTAINING UP TO 12% OF A SOLUTION OF WATER, SALT AND SODIUM PHOSPHATE.

I eat them all the time and never have an issue with them.

I did use MRS. DASH ONION AND HERB?

Mrs. Dash

ang1e0251 Contributor
ang1e0251
Posted

Possibly a yes on the spices. I usually avoid anything that lists natural flavors but does not identify gluten-free. I'm just lazy about calling the company. I know some of those are OK but without a call to the company, I'd rather skip it. You need to be cautious about spice mixes. As an example, I use Lawry's Seasoned Salt but the generics of that product contain wheat in my area.

You can call the company and get more info. It could contain barley malt or another grain derivative. Talk to them before you use it again. Your chicken looks OK.

Ariauna Apprentice
Ariauna
Posted
  • Author
Possibly a yes on the spices. I usually avoid anything that lists natural flavors but does not identify gluten-free. I'm just lazy about calling the company. I know some of those are OK but without a call to the company, I'd rather skip it. You need to be cautious about spice mixes. As an example, I use Lawry's Seasoned Salt but the generics of that product contain wheat in my area.

You can call the company and get more info. It could contain barley malt or another grain derivative. Talk to them before you use it again. Your chicken looks OK.

Thanks Ang I appreciate the information I was not aware that mixed spices are bad I was careless and read that all McCormick spices were safe and another place that all spices are generally safe. Interesting that it is usually barley malt I react VERY badly to that and it hits me fast as this attack did. Today feels like a turning point for my system but I will continue to eat basic and bland foods while slowly introducing other things back into my diet the rest of the week! All of you have been great I am so glad that I found this website it has by far been the best I have found and most helpful.

  • 3 weeks later...
txplowgirl Enthusiast
txplowgirl
Posted

Auriana,

I am gluten free and have a problem with the nightshade vegetables. All potatoes, tomatoes, eggplant and all peppers and paprika. I can't eat anything at all seasoned with black pepper in it. The other night I had a chicken breast grilled with lightly sauteed squash. I had no seasoning whatsoever except Mrs. Dash original. I got the usual symptoms, the big d, cramps bloating, etc. Come to find out I didn't read the label on the Mrs. Dash completely. It had paprika in it. Maybe you might want to cut out the nightshade veggies for a while and see what happens. JMO

GFinDC Veteran
GFinDC
Posted

I react to carrots, so maybe you do too?

carrotcake Newbie
carrotcake
Posted

I know it can be frustrating to try and determine what's causing the reaction. :( I've found that keeping a food journal of what I ate and how I felt before and after has helped.

I think your problem could be issues of cross contamination with some of the products you're eating. I am extremely sensitive to cross contamination and one way to know if it's occuring by a particular product is to contact the company. I've contacted several companies recently and was surprised by responses I received or didn't receive. <_< Some companies won't answer my questions and just tell me that they're not produced in the same facility as wheat, even though I asked specially about coming in contact wtih other ingredients. (oats, barely, rye) Or they they tell me that the allergen information varies on two products because there are different suppliers but they don't answer my question. So I know that I can't trust their products with my health.

And some confirm what I suspected and am now able to see where the gluten reaction is coming from. I really suggest your contact companies on how their products are produced because I think it could be an issue of cross contamination. You could think that you've never had a problem with a product but you might be even more sensitive now. Good luck in finding out the problem is and I hope you feel better soon. :)

Also, I thought I'd warn you that Quaker Rice Cakes are now made with wheat.

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