Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fatigue


Nancy Kotlowski

Recommended Posts

Nancy Kotlowski Apprentice

I have a real quick question. Do any of you or did any of you suffer from issues with fatigue? My husband has Celiac and for the past 5 years it has gotten worse. He sleeps alot. He has been glutten free for 1 month and it seems to be worse then before the gluten-free eating. Has anyone else noticed that? Any advise?

Thanks and have a great day!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



digmom1014 Enthusiast

I think the 1st 3 months are the hardest. You are getting used to what you can and can't have. My experienced was feeling less tired at about 6 months.

Ariauna Apprentice

It has been 3 months for me after spending at least 3 years killing myself and I still find myself needing an afternoon nap a few times a week. It is getting better but of course when I have an accident with gluten it sets me back for about a week. I have been doing good though only 2 glutens in 3 months so I am getting there lol.

Good luck to you and your husband, just be patient and continue to support him through the beginning months I think you will be happy when you get to the other side!! :)

OptimisticMom42 Apprentice

I've been gluten free since March, so about four months. Until the last couple weeks it felt like I really needed those healing naps on my days off and I was in bed at 9pm. Now I'm working 10 hour days and staying up until about 11pm. I'm still not planning fun things to do on my days off or jumping right into my chores like I need to but I'm awake.

angieInCA Apprentice

Debilitating Fatigue took control of my life for years before my diagnosis. It also took several months before I even started to feel close to normal. About 3 months ago I started getting bi-weekly B-12 injections which has helped tremendously. I also take 1mg of folicate acid daily and a daily dose of SAM-E.

Also, remember that he is dealing with a life changing diagnosis and he may go through a period of depression which can cause you to shut down and want to sleep. I know I went through a period of mourning which is very normal.

Nancy Kotlowski Apprentice
Debilitating Fatigue took control of my life for years before my diagnosis. It also took several months before I even started to feel close to normal. About 3 months ago I started getting bi-weekly B-12 injections which has helped tremendously. I also take 1mg of folicate acid daily and a daily dose of SAM-E.

Also, remember that he is dealing with a life changing diagnosis and he may go through a period of depression which can cause you to shut down and want to sleep. I know I went through a period of mourning which is very normal.

Thank you all for you great advise. I cannot imagine having to give up stuff like people on a gluten-free diet. Kudos to you all!!

lovegrov Collaborator

It took about 10 months for me to get back to normal. If your husband remains strictly gluten-free, the fatigue will go away.

richard


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Amyleigh0007 Enthusiast

B-12 also helped me a lot. I take a pill that dissolves under my tongue. I believe the brand is Nature Made and it states gluten free on the bottle.

Billygean Apprentice

Fatigue was my only real symptom, I didn't sit up for 6 months after a bout of mono, I was so debilitated. It took about 3 months of gluten free to get back to anywhere near 'normal' and even now, a year after gluten free, I still sleep for ten hours every night and nap sometimes too! it does get better though, a baby step every day

BG

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,655
    • Most Online (within 30 mins)
      7,748

    Sandy Bromberg
    Newest Member
    Sandy Bromberg
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I don't see how cornstarch could alter the test results. Where did you read that?
    • knitty kitty
      For pain relief I take a combination of Thiamine (Benfotiamine), Pyridoxine B 6, and Cobalamine B12.  The combination of these three vitamins has analgesic effects.  I have back pain and this really works.  The B vitamins are water soluble and easily excreted.   Hope this helps!  Keep us posted on your results!
    • knitty kitty
      Welcome to the forum, @Xravith. I experienced similar symptoms before my diagnosis.  Mine were due to the loss of vitamins and minerals, essential nutrients we must get from our food.  With Celiac Disease, the intestinal lining, made up of thousands of villi, gets damaged and cannot absorb essential vitamins and minerals, especially the eight B vitamins.  The loss of Thiamine B 1 can cause muscle loss, inability to gain weight, edema (swelling), fatigue, migraines and palpitations.  Low thiamine can cause Gastrointestinal Beriberi with symptoms of nausea, abdominal pain and bloating.   Thiamine is only stored for a couple of weeks, so if you don't absorb enough from food daily, as the thiamine deficiency worsens physical symptoms gradually worsen.  If you're eating lots of carbs (like gluten containing foods usually do), you need more thiamine to process them (called high calorie malnutrition).  Thiamine works with all the other B vitamins, so if you're low in one, you're probably getting low in the others, too, and minerals like iron, magnesium, zinc, and calcium, as well as Vitamin D..  Talk to your doctor about checking for nutritional deficiencies.  Most doctors rarely recognize vitamin deficiency symptoms, especially in thiamine. Get a DNA test to see if you carry any Celiac genes.  If you do not have genetic markers for Celiac, it's probably IBS.  If you do have genetic markers for Celiac, it's probably Celiac.  I was misdiagnosed with IBS for years before my Celiac diagnosis.   Keep us posted on your progress. P. S. Deficiency in thiamine can cause false negatives on antibody tests, as can diabetes and anemia.  
    • Julie 911
      No she didn't because if I want to ask I have to pay 700$ for 1 hour appointment so I couldn't even ask. I read that fillers like cornstash can alter the result and tylenol contains it so that's why I tried to find someone who can answer. 
    • trents
      Did the GI doc give you any rational for stopping the Tylenol during the gluten challenge? I have never heard of this before and I can't imagine a good reason for it. Ibuprofen, maybe, because it is an anti inflammatory but acetaminophen?  I don't see that it would have any impact on the test results to take Tylenol.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.