Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Building A Gluten Tolerance

Lawrence

Recommended Posts

Lawrence Apprentice
Lawrence
Posted

I read this article and although it does not mention gluten I think it can be applied to it:

Open Original Shared Link

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Darn210 Enthusiast
Darn210
Posted

Celiac disease is NOT an allergy. It is an autoimmune disease. What may work for an allergy is not going to work for Celiac disease.

I'm going to repeat myself . . .

Celiac disease is NOT an allergy. This type of therapy would be dangerous for someone with Celiac Disease.

Takala Enthusiast
Takala
Posted
" while it doesn't mention gluten, I think it can be applied to it..."

NO. <_<

Pac Apprentice
Pac
Posted
... it does not mention gluten I think it can be applied to it:

Of course it can be applied to gluten, if you are ALLERGIC to it, but trying this with a celiac disease is like trying to cure diabetes buy using gradually smaller doses of insulin. It's not gonna work.

From what I've read so far, there are documented cases when diagnosed celiacs, after their symptoms disappeared on gluten-free diet, started to eat gluten again and the symptoms didn't reappear until years, in one case over 30 years, later. But at the same time, the symptoms can be so diverse that the first one you notice may as well be cancer. Is the taste of wheat really worth the risk? (IMHO, lot of gluten-free grains taste much better than wheat ;) )

Amyleigh0007 Enthusiast
Amyleigh0007
Posted
Of course it can be applied to gluten, if you are ALLERGIC to it, but trying this with a celiac disease is like trying to cure diabetes buy using gradually smaller doses of insulin. It's not gonna work.

From what I've read so far, there are documented cases when diagnosed celiacs, after their symptoms disappeared on gluten-free diet, started to eat gluten again and the symptoms didn't reappear until years, in one case over 30 years, later. But at the same time, the symptoms can be so diverse that the first one you notice may as well be cancer. Is the taste of wheat really worth the risk? (IMHO, lot of gluten-free grains taste much better than wheat ;) )

That's right. That's why a long time ago doctor's thought you could outgrown Celiac disease. When kids went gluten free they healed, their symptoms went away and the doctors told them they were cured! They could eat gluten again! Only now we know that is not true at all! Once you have Celiac disease you have it forever.

phakephur Apprentice
phakephur
Posted
Only now we know that is not true at all! Once you have Celiac disease you have it forever.

I'm wondering how we know this. What studies prove it? I've posted this question several times before and never gotten the answer.

Please note that I am not disputing that celiac is a lifelong disease, just wondering about research that steered the medical community away from the belief that gluten tolerance could be regained.

Switch2GF Rookie
Switch2GF
Posted
I think it can be applied to it

Celiac disease is NOT an allergy. This type of therapy would be dangerous for someone with Celiac Disease.

:D

Personally, I've seen the opposite of the article. I switched to gluten-free because of non-bathroom related symptoms. After almost a year of being gluten-free, I have more symptoms now than I did before I switched to the gluten-free diet. It is VERY frustrating in the short term, but I know I am better off in the long run.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Korwyn Explorer
Korwyn
Posted
:D

Personally, I've seen the opposite of the article. I switched to gluten-free because of non-bathroom related symptoms. After almost a year of being gluten-free, I have more symptoms now than I did before I switched to the gluten-free diet. It is VERY frustrating in the short term, but I know I am better off in the long run.

I have had similar issues. I had a very rapid improvement when I went gluten-free, then I started to deteriorate again. As I eliminated various things I found that I am sucrose (sugar), soy, and casein (I knew this from my lab work but didn't want to accept it) intolerant. I actually have an almost immediate response to soy that is even worse than my gluten response.

I'm doing much better now, and I'm losing weight for the first time in 20 years.

Nancym Enthusiast
Nancym
Posted

I think when you're immune system isn't constantly bombarded with stuff it finds issue with it can mount a stronger attack when it does find badness. So lets say your immune system is working at 80% trying to deal with what it thinks is a foreign invader, gluten. It doesn't have the resources to deal so much with soy and casein, or whatever else is bugging you. So when it finally calms down from the gluten it might have additional resources to apply to other things it dislikes. That's what I think happens.

And when you finally get everything out that your body dislikes... then when you get accidentally glutened you're going from 0% immune response to 100% and it's a pretty violent shift.

Anyway that's how I think of it. :)

I think allergies operate similarly, I heard some allergy doctors talking about a patient who wasn't allergic to ferrets. His ferret died, he got a new one, and suddenly he was allergic. They suggested he probably was allergic before but his immune system getting a rest from it responded much, much stronger when he got the new ferret.

ang1e0251 Contributor
ang1e0251
Posted
I'm wondering how we know this. What studies prove it? I've posted this question several times before and never gotten the answer.

Please note that I am not disputing that celiac is a lifelong disease, just wondering about research that steered the medical community away from the belief that gluten tolerance could be regained.

I don't have a scientific link to post here for you. All I know is that reading the signatures of members and hearing their stories, I am convinced it is true. I have to keep in mind there's a lot the medical community doesn't know about celiac disease and what they seem to know, they argue about like the different genes linked to it.

I'm not looking for a cure because I don't think I would believe the truth of it anyway. I have been overlooked by dr's for years from their ignorance and I have seen many "great" drugs pulled after they killed people. I have to go with my gut and my gut says I'm off gluten for life.

Pac Apprentice
Pac
Posted
I'm wondering how we know this. What studies prove it? I've posted this question several times before and never gotten the answer.

It's just a theory. Leading and generally accepted theory based on current research. There's nothing like proving a theory right in science. You can prove it wrong or prove the opposing theory wrong to support the original theory. It like you don't get "true" and "false" theories, just "false" and "not-yet-false" ones.

Maybe someone should go through medical records and find out what happened to all those "cured" celiacs, who were diagnosed while CS was believed to be a childhood disease. It would be a good topic for some med student disertation.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jsingh
      - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

      Hi, My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine...
    2. lizzie42
      - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin. He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her...
    3. trents
      - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified...
    4. trents
      - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you...
    5. Paulaannefthimiou
      - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Are Bobresmill gluten free oats ok for sensitive celiacs?
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,859
    • Most Online (within 30 mins)
      7,748
    Santa Don
    Newest Member
    Santa Don
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Jsingh
      Son's legs shaking

      By Jsingh · Posted

      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Bob red mill gluten free oats

      By trents · Posted

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Bob red mill gluten free oats

      By Paulaannefthimiou · Posted

      Are Bobresmill gluten free oats ok for sensitive celiacs?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.