Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Am I Glutening Myself?

Karrin

By Karrin
in Coping with Celiac Disease

Recommended Posts

darlindeb25 Collaborator
darlindeb25
Posted

Tressemme does contain gluten, it's best you stop using it. I use Softsoap too, it's great. I can use Garnier Shampoo and Conditioner, yet my favorite is Pantene. St Ives has many lotions with wheat in them.

It is very difficult to read ingredients in these type of products.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


JillianLindsay Enthusiast
JillianLindsay
Posted

Optimistic Mom -- I just happened to catch your signature and noticed your food exclusions due to a mold allergy and I feel a bit silly! I was DX with Celiac earlier this month but DX with a mold allergy as a child. I have continued to use gluten-free vinegar and smoked meats (when I'm sure they're gluten-free) but I never realized that reactions might also be due to mold!

Those signatures sure are handy :) I happen to be seeing my gastroenterologist this afternoon and will ask him about that and also for a referral to a dietitian or nutritionist.

Cheers

I've had gluten like tummy troubles after using Lawry's on chicken breast and from an off brand chili powder we used to make taco seasoning. No trouble so far with McCormick's spices or The Vegetarian Express spices.

I also have my own PB and my own jelly. The Family likes grape. Blahhh, I like marmalade.

Jana315 Apprentice
Jana315
Posted

Karrin, If you do have an intolerance to nightshades, that would cut Lawry's and anything with paprika out of your diet...sad for me too! I react to the paprika that's in Lawry's & most pre-packaged gluten-free sausages & hotdogs. Just add it to the list - don't know about you, but my list is getting really long. I'm looking into the GAPS diet, but just don't know if I can go there yet though in the long run, it is probably the right thing to do.

Jana

GlutenGuy36 Contributor
GlutenGuy36
Posted
Karrin, If you do have an intolerance to nightshades, that would cut Lawry's and anything with paprika out of your diet...sad for me too! I react to the paprika that's in Lawry's & most pre-packaged gluten-free sausages & hotdogs. Just add it to the list - don't know about you, but my list is getting really long. I'm looking into the GAPS diet, but just don't know if I can go there yet though in the long run, it is probably the right thing to do.

Jana

I agree, I seem to have a problem with nightshades too. I feel horrible after eating some hot dogs that I know are gluten free. It's amazing how your body can turn on you. I use to be able to eat anything and never had an issue. Then after being diagnosed with Celiac Disease, I feel bad when I eat anything with milk ( casein), soy and nightshades. I'm looking into corn. It's been a long tough road though.

babysteps Contributor
babysteps
Posted
Karrin, If you do have an intolerance to nightshades, that would cut Lawry's and anything with paprika out of your diet...sad for me too! I react to the paprika that's in Lawry's & most pre-packaged gluten-free sausages & hotdogs. Just add it to the list - don't know about you, but my list is getting really long. I'm looking into the GAPS diet, but just don't know if I can go there yet though in the long run, it is probably the right thing to do.

Jana

For paprika substitute, you can try the spice form of sumac - used in Turkey, especially for kabobs. Not at every grocery store, but I know that Penzeys carries it and I bet a lot of natural food stores do, too.

Jana315 Apprentice
Jana315
Posted
For paprika substitute, you can try the spice form of sumac - used in Turkey, especially for kabobs. Not at every grocery store, but I know that Penzeys carries it and I bet a lot of natural food stores do, too.

Babysteps - don't mean to hijack - but I was just exhausting myself looking for red/pink peppercorns that aren't in a mix...can't find any, so maybe powdered sumac will be easier to come by! YEA!!! I love Turkish foods, esp. the kebabs! thanks for the tip.

Karrin Rookie
Karrin
Posted
  • Author

Thanks for all the suggestions everyone. I might eventually look into some of them, but right now I find the nightshade family remote as being the culprit. I've had maybe one tomato the whole month of June and one hot dog - and its been awhile. My spices have been basic (salt & pepper - if any) and I've not had any eggplants etc. Right now nothing and everything seems at fault - that is, I have not had a single day of solid relief since the beginning. The changes I experience are so subtle that I'm forced to write most off as my old fluctuations (with exception of a few clear incidents - corn and my shampoo/lotion for one) - that is, the relief and bad days are quite in time with how I felt throughout a month pre-diagnosis. I've followed suggestions here from pots and pans to my own sugar/spices, eating simply, vitamins, cutting out certain items such as soy etc. The whole process is incredibly frustrating and I just can't pinpoint anything!! I just have to conclude for now that my body is healing and hopefully things will clear up. I've tried going back to that same diet of that first week to no effect. I'm really at a loss, but I'm holding out hope that time will help and right now my intestines are just upset with everything that goes in. I'm also exploring other autoimmune problems with my doctor, which might explain my still feeling so yucky - RA is at the top of the list, and my joints have been really swollen and achy this past 2 weeks - so much that I have a hard time standing up.

I sometimes also wonder if my monthly cycle has anything to do with how I'm feeling. I have endometriosis and my only relief from that is about 6 days after my period ends and a week before I ovulate.

At least my head fog is mostly gone and most my lower back pain. It's moved into my hands, wrists, pelvis and knees though! UGH! I'm terrified I'll wind up with twisted, unusable hands and legs.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Korwyn Explorer
Korwyn
Posted
Thanks for all the suggestions everyone. I might eventually look into some of them, but right now I find the nightshade family remote as being the culprit. I've had maybe one tomato the whole month of June and one hot dog - and its been awhile. My spices have been basic (salt & pepper - if any) and I've not had any eggplants etc. Right now nothing and everything seems at fault - that is, I have not had a single day of solid relief since the beginning. The changes I experience are so subtle that I'm forced to write most off as my old fluctuations (with exception of a few clear incidents - corn and my shampoo/lotion for one) - that is, the relief and bad days are quite in time with how I felt throughout a month pre-diagnosis. I've followed suggestions here from pots and pans to my own sugar/spices, eating simply, vitamins, cutting out certain items such as soy etc. The whole process is incredibly frustrating and I just can't pinpoint anything!! I just have to conclude for now that my body is healing and hopefully things will clear up. I've tried going back to that same diet of that first week to no effect. I'm really at a loss, but I'm holding out hope that time will help and right now my intestines are just upset with everything that goes in. I'm also exploring other autoimmune problems with my doctor, which might explain my still feeling so yucky - RA is at the top of the list, and my joints have been really swollen and achy this past 2 weeks - so much that I have a hard time standing up.

I sometimes also wonder if my monthly cycle has anything to do with how I'm feeling. I have endometriosis and my only relief from that is about 6 days after my period ends and a week before I ovulate.

At least my head fog is mostly gone and most my lower back pain. It's moved into my hands, wrists, pelvis and knees though! UGH! I'm terrified I'll wind up with twisted, unusable hands and legs.

Karrin, take a look at the GAPS diet. Open Original Shared Link It sounds like you might be a candidate for it. I'm in just preparing to start it next week.

Karrin Rookie
Karrin
Posted
  • Author
Karrin, take a look at the GAPS diet. Open Original Shared Link It sounds like you might be a candidate for it. I'm in just preparing to start it next week.

I took a look and I actually eat very similar to the guidelines they have posted! :) Lots of fresh fruit for snacks and veggies and fresh meat like chicken for meals, natural decaff teas (I have a sensitivity to caffeine). It's a rare thing that I eat processed foods, especially after being diagnosed. I did have a little breakdown a week or two back and I got some gluten free chocolate donuts (also dairy and soy free, I believe they were made with tapioca flour?). They were from a dedicated gluten free company and I had no tummy issues with them thankfully - I really needed a bakery fix!

I'm hoping my continuing symptoms are just my body healing yet and will cool off within another month or two so I can actually tell if and what might be making me ill. So far the only noticeable items was an accidental glutening, roughly a month back now, and corn, which gives me instant tummy issues.

Korwyn Explorer
Korwyn
Posted
I took a look and I actually eat very similar to the guidelines they have posted! :) Lots of fresh fruit for snacks and veggies and fresh meat like chicken for meals, natural decaff teas (I have a sensitivity to caffeine). It's a rare thing that I eat processed foods, especially after being diagnosed. I did have a little breakdown a week or two back and I got some gluten free chocolate donuts (also dairy and soy free, I believe they were made with tapioca flour?). They were from a dedicated gluten free company and I had no tummy issues with them thankfully - I really needed a bakery fix!

I'm hoping my continuing symptoms are just my body healing yet and will cool off within another month or two so I can actually tell if and what might be making me ill. So far the only noticeable items was an accidental glutening, roughly a month back now, and corn, which gives me instant tummy issues.

Oh good! Are you taking a good pro biotic? PB-8 Vegetarian is a good one and is reasonable priced if you get it on line.

Lisa79 Enthusiast
Lisa79
Posted

I had the same problem, I found I was intolerant to lots of foods, nightshades, dairy (mainly milk) cheeses and yoghurts seemed ok, soy.

I think I have posted a very similar post a couple of times.

I do see a great naturopath and its been 4 months now and I am feeling better, not 100 but definately on the road to recovery.

I am finding the other intolerances are settling down now, you can have such an inflamed gut for quite a while.

Try giving up some other foods for a while, apparently it takes at least 4 months for some cells to renew (my naturopath says) so give it time.

Keep doing what your doing, sounds like your been careful, just continue to check everything and avoid contamination, check all medications and you will see improvement eventually, everyone is so different.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,549
    • Most Online (within 30 mins)
      7,748
    Blough
    Newest Member
    Blough
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By Scott Adams · Posted

      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Protein or fat?

      By Scott Adams · Posted

      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.