Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dh Can It Go Away Eventually?

hippo33

By hippo33
in Dermatitis Herpetiformis

Recommended Posts

hippo33 Apprentice
hippo33
Posted

ive had the symptoms for the last 6 years and no one knew what i had.finally after seeing my 3rd dermo he sed try staying away from beer for 3 weeks,mayby its the barley he sed.so i did my own research and what he failed to tell me was that there is wheat,barley,rye in almost everything i eat.my sores are on my face and a bit on my skalp,i should have did the reasearch earlier and now i probly have to do the gluten-free thing for ever.my diet has gone well for the past 7 days but 2 nights ago i had some whiskey and sprite zero and i have a little break out i dont know if its that or somthing else that i missed,it is hard lol.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tarnalberry Community Regular
tarnalberry
Posted
ive had the symptoms for the last 6 years and no one knew what i had.finally after seeing my 3rd dermo he sed try staying away from beer for 3 weeks,mayby its the barley he sed.so i did my own research and what he failed to tell me was that there is wheat,barley,rye in almost everything i eat.my sores are on my face and a bit on my skalp,i should have did the reasearch earlier and now i probly have to do the gluten-free thing for ever.my diet has gone well for the past 7 days but 2 nights ago i had some whiskey and sprite zero and i have a little break out i dont know if its that or somthing else that i missed,it is hard lol.

If you are 100% gluten free, then yes, DH goes away. But eventually. For a while, you may also need to eliminate sources of iodine from the diet. But it can take months for everything to clear up. (The DH is caused by IgG deposits under the skin, which require iodine to form. It takes a while for those deposits to be cleaned out.)

hippo33 Apprentice
hippo33
Posted
  • Author
If you are 100% gluten free, then yes, DH goes away. But eventually. For a while, you may also need to eliminate sources of iodine from the diet. But it can take months for everything to clear up. (The DH is caused by IgG deposits under the skin, which require iodine to form. It takes a while for those deposits to be cleaned out.)

can u give me an example of what has iodine in it,im kinda fortunate i only get 1-4 spots at a time but sometimes i can get a big one that looks like a cigarett burn its kinda gross i wonder y on the face it dont get as rashy as th ones on the knees ans elbows is it because they scratch them a lot?

lovegrov Collaborator
lovegrov
Posted
can u give me an example of what has iodine in it,im kinda fortunate i only get 1-4 spots at a time but sometimes i can get a big one that looks like a cigarett burn its kinda gross i wonder y on the face it dont get as rashy as th ones on the knees ans elbows is it because they scratch them a lot?

Lots of things have iodine but a couple of the bigger ones are iodized table salt and shellfish. You cat'y completely eliminate iodine nor would you want to. You need it to live.

richard

hippo33 Apprentice
hippo33
Posted
  • Author
Lots of things have iodine but a couple of the bigger ones are iodized table salt and shellfish. You cat'y completely eliminate iodine nor would you want to. You need it to live.

richard

maybe u are right i just started back up a couple days ago on my glucosamine and it has sulphate from shell fish mayby i should stop taking it for a while

JillianLindsay Enthusiast
JillianLindsay
Posted

Also, if you've only been completely gluten-free for a week then it will take time for your body to start repairing itself. I've also only been on the diet for 6 days. I am feeling a bit better but am told it takes 2weeks to 2months for your body to be back to "normal". Good luck :)

ive had the symptoms for the last 6 years and no one knew what i had.finally after seeing my 3rd dermo he sed try staying away from beer for 3 weeks,mayby its the barley he sed.so i did my own research and what he failed to tell me was that there is wheat,barley,rye in almost everything i eat.my sores are on my face and a bit on my skalp,i should have did the reasearch earlier and now i probly have to do the gluten-free thing for ever.my diet has gone well for the past 7 days but 2 nights ago i had some whiskey and sprite zero and i have a little break out i dont know if its that or somthing else that i missed,it is hard lol.
tarnalberry Community Regular
tarnalberry
Posted
Lots of things have iodine but a couple of the bigger ones are iodized table salt and shellfish. You cat'y completely eliminate iodine nor would you want to. You need it to live.

richard

Yup, you can't eliminate iodine (and as richard said, you don't want to), but you can - until the DH heals, not consume extra iodine - so eliminated iodized sald, shellfish, regular fish, seaweed, dairy, and eggs.

Once you no longer are having DH outbreaks (and are gluten free, consistently, the whole time), then you would allow more of those foods back in. But it isn't an intolerance thing - it's not a "avoid wholesale". It's just a reduction, so you're not getting *a lot* of it. (Most of us, in the US, get more than enough iodine, if you're eating dairy, meats, and sea-originated items.)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ang1e0251 Contributor
ang1e0251
Posted

My DH took about 6-8 weeks to completely heal. I didn't know anything about iodine at the time so didn't reduce it. Maybe mine would have cleared up sooner if I had.

mysecretcurse Contributor
mysecretcurse
Posted

I have been gluten free for going on 2 years (only occasional accidents) and my DH still is really bothering me. I haven't yet eliminated dairy and other grains such as corn. Should I? I don't understand it, because within 6 months of first going gluten free my skin got crystal clear, but then the DH began returning. I have no idea what is triggering me and I'm really confused and sad. :( I can't get testing to see what is bothering me, no job and no health insurance. :(

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    2. cristiana
      - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms. I was diagnosed in 2013 and was told immediately that my parents, sibling and children should...
    3. chrisinpa
      - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

      Maybe they can attribute certain skin conditions to either being susceptible to getting Celiac......or the other way around....but I have to ask if certain people are prone to Celiac because of genetics and some people aren't. It's kind of the same thing as what came first.....the chicken or the egg.?
    4. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities. If you are trying to add more fiber to your diet to ease constipation, considering...
    5. trents
      - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,696
    • Most Online (within 30 mins)
      7,748
    Knotalota
    Newest Member
    Knotalota
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    • cristiana
      Issues before diagnosis

      By cristiana · Posted

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Issues before diagnosis

      By trents · Posted

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      Dizziness after eating green beans?

      By knitty kitty · Posted

      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.