Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Abdominal Pain/discomfort?


LisaaaNoel

Recommended Posts

LisaaaNoel Explorer

It's always interesting to me how the symptoms vary so greatly with celic patients. I was wondering what were your personal experiences prior to going gluten-free in terms of abdominal pain/discomfort? Was it constant? Did it come and go? What did it feel like? Where in your abdomen did you feel it?

(I have NOT been officially diagnosed with celiac) but I have constant stomach discomfort every single day. My problems started about a year ago and since it started, I have some form of discomfort every day. In general, I would say I feel an extreme amount of pressure and fullness. It feels like a tightness in my stomach. I do have occassional cramping, but that is not an every day issue.

My discomfort actually started in my upper abdomen on the left side, right under my ribs. (not beneath my ribs, but just under them) It felt (and still feels) like there is something pushing up against my ribs. When I went to the doctor, that was the only discomfort I was feeling. At the time, I was experiencing D daily, usually in the mornings. Without much testing, he said it was IBS. He gave me an antispasm medicine which I don't use, because as I said, I don't feel much cramping.

Since then, I have started to feel a bit more cramping. And my discomfort can also be felt throughout my abdomen and not just the upper portion. I have began to alternate between C & D. I haven't noticed any particular "IBS trigger food" that actually worsens my symptoms.

If I had insurance, I would go back to the doctor and make him do some more testing, but unfortantely that's not possible right now. So I just started a gluten-free diet less than a week ago. So far, I haven't felt any difference. (Not that I expected it to be that quickly, just stating..)

Thank you for reading. Sorry about being a bit long winded. <_<


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator
Without much testing, he said it was IBS. He gave me an antispasm medicine which I don't use, because as I said, I don't feel much cramping.

This is the "norm" as far as most doctors go. I had one doctor tell me, "IBS simply means, I Be Stumped!" IBS is kind of a "catch all" when a doctor doesn't really know what's going on with your tummy. I was diagnosed with it too. Irritable bowel, spastic colon, nervous stomach, and my favorite, "It's all in your head!"

My stomach hurt a good portion of the time too, I oftened referred to it as a huge black and blue spot. When cramping began, I knew diarrhea would follow very soon. I had diarrhea a good share of the time, thankfully, usually at night. Which, in time, caused my anxiety/panic to become worse. For years, a heating pad was my best friend, I cuddled with it so much.

I was in your situation too. I was newly divorced, no insurance, and could not live with the pain any longer. My sister had been diagnosed with celiac in March 2000, by July, she convinced me to go gluten free too. It's been 9 years for both of us.

LisaaaNoel Explorer
This is the "norm" as far as most doctors go. I had one doctor tell me, "IBS simply means, I Be Stumped!" IBS is kind of a "catch all" when a doctor doesn't really know what's going on with your tummy. I was diagnosed with it too. Irritable bowel, spastic colon, nervous stomach, and my favorite, "It's all in your head!"

My stomach hurt a good portion of the time too, I oftened referred to it as a huge black and blue spot. When cramping began, I knew diarrhea would follow very soon. I had diarrhea a good share of the time, thankfully, usually at night. Which, in time, caused my anxiety/panic to become worse. For years, a heating pad was my best friend, I cuddled with it so much.

I was in your situation too. I was newly divorced, no insurance, and could not live with the pain any longer. My sister had been diagnosed with celiac in March 2000, by July, she convinced me to go gluten free too. It's been 9 years for both of us.

Hope you're feeling better now. :) Doctors can be so frustrating.

If so, how long did it take on your gluten-free diet before your stomach started to feel better?

boobybabs Rookie
It's always interesting to me how the symptoms vary so greatly with celic patients. I was wondering what were your personal experiences prior to going gluten-free in terms of abdominal pain/discomfort? Was it constant? Did it come and go? What did it feel like? Where in your abdomen did you feel it?

(I have NOT been officially diagnosed with celiac) but I have constant stomach discomfort every single day. My problems started about a year ago and since it started, I have some form of discomfort every day. In general, I would say I feel an extreme amount of pressure and fullness. It feels like a tightness in my stomach. I do have occassional cramping, but that is not an every day issue.

My discomfort actually started in my upper abdomen on the left side, right under my ribs. (not beneath my ribs, but just under them) It felt (and still feels) like there is something pushing up against my ribs. When I went to the doctor, that was the only discomfort I was feeling. At the time, I was experiencing D daily, usually in the mornings. Without much testing, he said it was IBS. He gave me an antispasm medicine which I don't use, because as I said, I don't feel much cramping.

Since then, I have started to feel a bit more cramping. And my discomfort can also be felt throughout my abdomen and not just the upper portion. I have began to alternate between C & D. I haven't noticed any particular "IBS trigger food" that actually worsens my symptoms.

If I had insurance, I would go back to the doctor and make him do some more testing, but unfortantely that's not possible right now. So I just started a gluten-free diet less than a week ago. So far, I haven't felt any difference. (Not that I expected it to be that quickly, just stating..)

Thank you for reading. Sorry about being a bit long winded. <_<

Hi - in reference to your abdominal pain........I used to get a wierd feeling on my left side low rib cage...felt like there was something sticking out (often in the car I would put my hand there or position my seat belt - made it feel less obtrusive - no pain just felt odd.....my stomach issues started on a trip away....stomach pain, sweating, heart racing...feeling very off...went to emergency and they did blood work (looking for glallblader....no sign)...felt off for remainder of trip....bouts of stomach discomfort - week after iniatial problem, had a night of same thing....stomach ache - ill feeling..etc...lasted from about 8 p.m. to 2 a.m.....after that, I experienced some stomach issue almost daily....ache, gnawing or felt like I had been clenching my stomach muscles all day and they were sore....had a couple episode of diarrhea, once with severe cramping beforehand...but not daily problems with this at all - began experienceing anxiety, breathlessness, etc....spent a lot of time laying on the bed ....had blood work done for thyroid, heart, liver, diabetes, cholesteral, ..etc...all test were fine......was crying all the time....had upper GI done and diagnosed with acid reflux....now take losac everyday..and have tried to eliminate gluten and dairy from my diet......stomach has been pretty good...feeling like a normal person....although if I stray from my diet,,,,I still get stomach issue\anxiety feelings which remind me of how I used to feel everyday....I have no idea if I have a food intolerance or celiac - tend to think just food intolerance since I would think that I would have more serious symptoms if celiac.....hope this helps you..

LisaaaNoel Explorer
Hi - in reference to your abdominal pain........I used to get a wierd feeling on my left side low rib cage...felt like there was something sticking out (often in the car I would put my hand there or position my seat belt - made it feel less obtrusive - no pain just felt odd.....

YES! That is sounds a lot like me. It's like my ribs feel like they're resting on something. It doesn't hurt, it's just terribly uncomfortable. :(

And like you said, my episodes of diarrhea started with extreme pain, heart racing, overall feeling of being ill. These episodes have only happened a few times.

I just experience abdominal discomfort every single day and cannot find anything to help!

pchick Rookie
It's always interesting to me how the symptoms vary so greatly with celic patients. I was wondering what were your personal experiences prior to going gluten-free in terms of abdominal pain/discomfort? Was it constant? Did it come and go? What did it feel like? Where in your abdomen did you feel it?

Hi ~ I don't have insurance either... that's why I haven't been to see a doctor in a long time. That is until recently. I've always had tummy aches and was nauseas as a kid all the time. I went through a rough period where I was homeless... and pregnant. (1990 - long story) But that is when a lot of my symptoms started.

I had massive abdominal pain as well as dizziness, and blackouts ~ I had to go to the emergency room where they removed my gall bladder in 2000. Since then, I've been having other symptoms that I've been trying to self diagnose.

I have a lot of pain around my liver, especially where my gall bladder used to be, I also have an occasional pain in my stomach (right below ribcage) where it feels like someone kicked me hard and I can't even stand up straight for a few days. I have a lot of tenderness over my spleen (left upper ab). My lower belly bloats and becomes hard sometimes, and has pain if touched. I also have this INTENSE burning pain in my very low back, almost my butt area. A couple years ago I had a few "attacks" of some sort... everytime I ate anything it felt like the most intense pain I've ever had... almost like labor. The pain would come and go like contractions and by the third day of this I was having severe panic attacks.

I went to an acupuncturist who was able to relieve the pain immediately. I've been seeing him for 1.5 years now 2x a week and he helps immensely with the pain. Unfortunately he couldn't diagnose anything.

Between the abdominal pain and all my other symptoms we finally decided I needed to go see a doctor.

so I went to a naturopathic/MD, and the doc did tests and found out I was born Gluten Intolerant with a leaky gut. I don't know the difference between that and celiacs... but either way, I have to cut gluten. I've been on a gluten-free diet almost 3 weeks and I've had a BM everyday for the last 3 days!! I've also lost 7 pounds :)

Oh yeah... I'm one of the overweight/constipated GI intolerant types... that's why no one ever tested me before, I've always been overweight.

TiffLuvsBread Rookie
It's always interesting to me how the symptoms vary so greatly with celic patients. I was wondering what were your personal experiences prior to going gluten-free in terms of abdominal pain/discomfort? Was it constant? Did it come and go? What did it feel like? Where in your abdomen did you feel it?

(I have NOT been officially diagnosed with celiac) but I have constant stomach discomfort every single day. My problems started about a year ago and since it started, I have some form of discomfort every day. In general, I would say I feel an extreme amount of pressure and fullness. It feels like a tightness in my stomach. I do have occassional cramping, but that is not an every day issue.

My discomfort actually started in my upper abdomen on the left side, right under my ribs. (not beneath my ribs, but just under them) It felt (and still feels) like there is something pushing up against my ribs. When I went to the doctor, that was the only discomfort I was feeling. At the time, I was experiencing D daily, usually in the mornings. Without much testing, he said it was IBS. He gave me an antispasm medicine which I don't use, because as I said, I don't feel much cramping.

Since then, I have started to feel a bit more cramping. And my discomfort can also be felt throughout my abdomen and not just the upper portion. I have began to alternate between C & D. I haven't noticed any particular "IBS trigger food" that actually worsens my symptoms.

If I had insurance, I would go back to the doctor and make him do some more testing, but unfortantely that's not possible right now. So I just started a gluten-free diet less than a week ago. So far, I haven't felt any difference. (Not that I expected it to be that quickly, just stating..)

Thank you for reading. Sorry about being a bit long winded. <_<

See the thread I started by looking at "new posts" - same issue!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,747
    • Most Online (within 30 mins)
      7,748

    Suzanne Dar
    Newest Member
    Suzanne Dar
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Russ H
      The EMA test is an old and less sensitive test for anti-tTG2 antibodies. It relies on a technician using a microscope to check for fluorescence of a labelled substrate (typically monkey oesophagus or human umbilicus), giving a simple positive/negative result. It is similar to running a standard anti-tTG2 test but with a high cut-off, making it more specific but less sensitive. Transient rises in tTG2 can be caused by e.g. viral infections and inflammation. Very high levels of anti-tTG2 (>x10 standard range) are almost certainly coeliac disease but moderately raised levels can have several causes apart from coeliac disease. Other food allergies can cause villi blunting but that is much rarer than coeliac disease or other non-coeliac causes. Not All That Flattens Villi Is Celiac Disease: A Review of Enteropathies
    • Theresa2407
      Maybe you have a low  intolerance to Wheat.   Rye, Barley and Malt are the gluten in Celiac disease.  It has always been stated Wheat and Gluten, not just a Wheat intolerance.  Barley will keep me in bed for (2) weeks.  Gut, Migrains, Brain fog, Diahrea.  It is miserable.  And when I was a toddler the doctor would give me a malt medicine because I always had Anemia and did not grow.  Boy was he off.  But at that time the US didn't know anyone about Celiac.  This was the 1940s and 50s.  I had my first episode at 9 months and did not get a diagnosis until I was 50.  My immune system was so shot before being diagnoised, so now I live with the consequences of it. I was so upset when Manufacturers didn't want to label their products so they added barley to the product.  It was mostly the cereal industry.  3 of my favorite cereals were excluded because of this. Malt gives me a bad Gut reaction.
    • Gigi2025
      Thanks much Scott.  Well said, and heeded.   I don't have Celiac, which is fortunate.
    • Scott Adams
      Do you have the results of your endoscopy? Did you do a celiac disease blood panel before that?  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      It is odd that your Tissue Transglutaminase (TTG) IgA level has bounced from the "inconclusive" range (7.9, 9.8) down to a negative level (5.3), only to climb back up near the positive threshold. This inconsistency, coupled with your ongoing symptoms of malabsorption and specific nutrient deficiencies, is a strong clinical indicator that warrants a more thorough investigation than a simple "satisfactory" sign-off. A negative blood test does not definitively rule out celiac disease, especially with such variable numbers and a classic symptomatic picture. You are absolutely right to seek a second opinion and push for a referral to a gastroenterologist. A biopsy remains the gold standard for a reason, and advocating for one is the most direct path to getting the answers you need to finally address the root cause of your suffering. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.