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Acid Reflux


jknnej

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mommida Enthusiast

The original post was a long time ago. 2005

My daughter has probable Celiac disease and Eosinophilic Esophagitus. The EE has severe GERD like symptoms and there is a connection to "food triggers" or airborn allergens. The testing would have to be done through an endoscopy with biopsy and specifically ordered pathology report. The eosinophils can be embedded in normal looking tissue.

A hernia, H. Ployri, intestinal parasites, and organ defects can also cause some of the same symptoms to name a few options.

Celiac sufferers have noticed GERd symptoms have dissappeared after going gluten free.

  • 11 months later...

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hermpal Newbie

My first symptom of celiac disease was nausea. I was put on gluten free diet on Nov 6, 2011 and am still having nausea off and on. My doctor after several visits decided I did need some help and put me on a nausea patch you wear behind the ear. She also put me on steroids which I really hate to take because I feel they do as much harm as good. Of course, they would help my colon heal faster, but still don't like them. This disease I have found to have more than one symptom and seems to be several diseases. I hope some day research can tell us more and we will know better how to cope with all these strange symptoms. I'm looking forward to that day!!

Lisa Mentor

My first symptom of celiac disease was nausea. I was put on gluten free diet on Nov 6, 2011 and am still having nausea off and on. My doctor after several visits decided I did need some help and put me on a nausea patch you wear behind the ear. She also put me on steroids which I really hate to take because I feel they do as much harm as good. Of course, they would help my colon heal faster, but still don't like them. This disease I have found to have more than one symptom and seems to be several diseases. I hope some day research can tell us more and we will know better how to cope with all these strange symptoms. I'm looking forward to that day!!

Sorry that you are so young and feeling so poorly. Have you been officially tested and diagnosed for Celiac Disease? I ask, because going gluten free will render the official testing inaccurate if you are gluten free, should you decide to take the full Celiac Panel Test.

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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