Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Any Non-caucasians On Here?


zeta-lilly

Recommended Posts

zeta-lilly Apprentice

I spotted a website about celiac disease and it actually had a lot of good information on it, but it also had the statement that it was mainly a disease of people of caucasian descent and if you aren't caucasian, you probably don't have it. I didn't think that was the case and I haven't seen it mentioned elsewhere. Anyway, I was just wondering if there was any truth to that.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rissmeek Newbie
I spotted a website about celiac disease and it actually had a lot of good information on it, but it also had the statement that it was mainly a disease of people of caucasian descent and if you aren't caucasian, you probably don't have it. I didn't think that was the case and I haven't seen it mentioned elsewhere. Anyway, I was just wondering if there was any truth to that.

My best friend is non-Caucasian and has Celiac. At one time there was a belief that only certain Caucasians could/would get it. I have not seen that kind of information in a very long time though.

Fiddle-Faddle Community Regular

I have met Chinese, Indian, and African-Americans with celiac disease.

Perhaps this might be useful:

From Open Original Shared Link

"HLA typing and Celiac Disease

Some people have had the notion that Celiac was almost totally absent in African-American and Asian populations, however clinical observations and some studies of immigrants who have added gluten-containing foods have shown surprising rates of Celiac. Therefore it is unclear if the historical low reported rates of celiac disease were due to lack of gluten, lack of proper diagnosis, or lower genetic susceptibility.

Additional information on celiac disease in these populations can be found at:

(a) Brueton & al Coeliac disease in Asian children in United Kingdom: in McConnell RB (ed): The Genetics of Coeliac Disease. Lancaster, MTB Press, 1981, pp. 103-108

(B) Sher & al. High risk of coeliac disease in Punjabis. Epidemiological study in the South Asian and European Populations of Leicestershire. Digestion 1993; 54: 178-182).

© Boudraa et al. Epidemiology of gluten intolerance in North Africa. In: Common Food Intolerances. I.: Epidemiology of Celiac disease. Dyn. Nutr. Res., Basel, 1992. vol.2, pp 64-70."

FMcGee Explorer

It's just patently untrue that only Caucasians get celiac. Proportionally, my understanding is that it occurs at the same or similar rates amongst all groups of people all over the world, with the exception of a lower incidence in Japan.

The internet is full of bad information on celiac (and in general) so be careful! Gluten Free Living just did a good article on myth busting for this very reason. I'd recommend it.

daphniela Explorer

I am half Mexican and I beleive I inherited Celiac from my Mexican side of the family. My grandmother had many symptoms and I beleive she died because of undiagnosed Celiac. She was morbidly obese and tried many diets but could never lose the weight. She also had some brain tumors removed and cronic migraines and TMJ. I have a cousin who just died a few months ago of a rare brain tumor which I also beleive was 'cause of undiagnosed Celiac.

I have been wondering the same thing. Are there any other Mexicans here?

StrongLikeBull Newbie

I'm African-American and gluten intolerant. But somewhere far, far down my bloodline I have German and French ancestors from which I may have gotten this predisposition. Maybe not. But in the great melting pot that is the United States, you can never be too sure what someone's lineage is, even if they're categorized as belonging to a particular race.

OptimisticMom42 Apprentice

I just had this conversation with a woman who adopted two Korean children. She has been useing the SCD and was considering a gluten challenge for her adopted son. We were in agreement that Celiacs being a "white thing" had to be a bit of arrogance.

I still think it's only happens to people with charm and wit! :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



zeta-lilly Apprentice

It's really sad that there's so much misinformation floating around out there. I'm a nurse and I try to give my patients the best information I can about celiac and other diseases and I've had several who had multiple autoimmune diseases plus tons of symptoms and then they are told by their doctor that celiac disease isn't possible because they are overweight or don't have diarrhea. One lady told me that her doctor said that she couldn't possibly have celiac disease because she wasn't in severe pain every time she ate gluten. That was his idea of celiac disease, that when you eat gluten, you are in severe pain and then have diarrhea. It's really disgusting that physicians aren't more up to date on the disease. I'll have to see if I can find that site again and email the administrator. I don't think I bookmarked it though.

Hmm, I wonder if lower rates in Japan are due to their diet? I've never been to Japan, but I would imagine they would eat less gluten than we do here.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - tiffanygosci posted a topic in Coping with Celiac Disease
      0

      New Celiac Mama in My 30s

    2. - knitty kitty replied to klmgarland's topic in Dermatitis Herpetiformis
      8

      Help I’m cross contaminating myself,

    3. - Yaya replied to Jhona's topic in Introduce Yourself / Share Stuff
      29

      Does anyone here also have Afib

    4. - larc replied to Jhona's topic in Introduce Yourself / Share Stuff
      29

      Does anyone here also have Afib

    5. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      8

      Help I’m cross contaminating myself,


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,919
    • Most Online (within 30 mins)
      7,748

    SB Willow
    Newest Member
    SB Willow
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • tiffanygosci
      Hello all! My life in the last five years has been crazy. I got married in 2020 at the age of 27, pregnant with our first child almost two months later, gave birth in 2021. We had another baby in April of 2023 and our last baby this March of 2025. I had some issues after my second but nothing ever made me think, "I should see a doctor about this." After having my last baby this year, my body has finally started to find its new rhythm and balance...but things started to feel out of sorts. A lot of symptoms were convoluted with postpartum symptoms, and, to top it all off, my cycle came back about 4m postpartum. I was having reoccurring migraines, nausea, joint pain, numbness in my right arm, hand and fingers, tummy problems, hives. I finally went to my PCP in August just for a wellness check and I brought up my ailments. I'm so thankful for a doctor that listens and is thorough. He ended up running a food allergy panel, an environmental respiratory panel, and a celiac panel. I found out I was allergic to wheat, allergic to about every plant and dust mites, and I did have celiac. I had an endoscopy done on October 3 and my results confirmed celiac in the early stages! I am truly blessed to have an answer to my issues. When I eat gluten, my brain feels like it's on fire and like someone is squeezing it. I can't think straight and I zone out easily. My eyes can't focus. I get a super bad migraine and nausea. I get so tired and irritable and anxious. My body hurts sometimes and my gut gets bloated, gassy, constipated, and ends with bowel movements. All this time I thought I was just having mom brain or feeling the effects of postpartum, sleep deprivation, and the like (which I probably was having and the celiac disease just ramped it up!) I have yet to see a dietician but I've already been eating and shopping gluten-free. My husband and I have been working on turning our kitchen 100% gluten-free (we didn't think this would be so expensive but he assured me that my health is worth all the money in the world). There are still a few things to replace and clean. I'm already getting tired of reading labels. I even replaced some of my personal hygiene care for myself and the kids because they were either made with oats or not labeled gluten-free. I have already started feeling better but have made some mistakes along the way or have gotten contamination thrown into the mix. It's been hard! Today I joked that I got diagnosed at the worst time of the year with all the holidays coming up. I will just need to bring my own food to have and to share. It will be okay but different after years of eating "normally". Today I ordered in person at Chipotle and was trying not to feel self-conscious as the line got long because they were following food-allergy protocols. It's all worth it to be the healthiest version of myself for me and my family. I would be lying if I said I wasn't a little overwhelmed and a little overloaded!  I am thankful for this community and I look forward to learning more from you all. I need the help, that's for sure!
    • knitty kitty
      On the AIP diet, all processed foods are eliminated.  This includes gluten-free bread.  You'll be eating meats and vegetables, mostly.  Meats that are processed, like sausages, sandwich meats, bacons, chicken nuggets, etc., are eliminated as well.  Veggies should be fresh, or frozen without other ingredients like sauces or seasonings.  Nightshade vegetables (eggplant, potatoes, tomatoes, peppers) are excluded.  They contain alkaloids that promote a leaky gut and inflammation.  Dairy and eggs are also eliminated.   I know it sounds really stark, but eating this way really improved my health.  The AIP diet can be low in nutrients, and, with malabsorption, it's important to supplement vitamins and minerals.  
    • Yaya
      Thank you for responding and for prayers.  So sorry for your struggles, I will keep you in mine.  You are so young to have so many struggles, mine are mild by comparison.  I didn't have Celiac Disease (celiac disease) until I had my gallbladder removed 13 years ago; at least nothing I was aware of.  Following surgery: multiple symptoms/oddities appeared including ridges on fingernails, eczema, hair falling out in patches, dry eyes, upset stomach constantly and other weird symptoms that I don't really remember.  Gastro did tests and endoscopy and verified celiac disease. Re heart: I was born with Mitral Valve Prolapse (MVP) and an irregular heartbeat, yet heart was extremely strong.  It was difficult to pick up the irregular heartbeat on the EKG per cardiologist.  I had Covid at 77, recovered in 10 days and 2 weeks later developed long Covid. What the doctors and nurses called the "kickoff to long Covid, was A-fib.  I didn't know what was going on with my heart and had ignored early symptoms as some kind of passing aftereffect stemming from Covid.  I was right about where it came from, but wrong on it being "passing".  I have A-fib as my permanent reminder of Covid and take Flecainide every morning and night and will for the rest of my life to stabilize my heartbeat.   
    • larc
      When I accidentally consume gluten it compromises the well-being of my heart and arteries. Last time I had a significant exposure, about six months ago, I had AFib for about ten days. It came on every day around dinner time. After the ten days or so it went away and hasn't come back.  My cardiologist offered me a collection of pharmaceuticals at the time.  But I passed on them. 
    • klmgarland
      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure! Thank you kitty kitty   I am going to look this diet up right away.  And read the paleo diet and really see if I can make this a better situation then it currently is.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.